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Thread: ddf508

  1. #1
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    ddf508

    I just had a couple questions about the drug coming out for ddf508 to treat the underlying cause of CF. Where is at in the process? I know the drug is going to be expensive. Right now I have medi-cal insurance through the state of CA. How much is it going to cost and how are we going to go about getting it? I have not looked into this so I know very little. I just know my doctor always tells me to take care of myself so when the drug comes out, the healthier you are, the more you will benefit. Any info would help, just thinking about it. I am almost 28 and I have another 4-5 years in school and would love to have a baby someday. I am healthy now but I hope to stay healthy to obtain these goals. I am a little behind of getting these done. I would of loved to be currently finished with school and on the road to having a baby. I am for sure learning that life hardly ever goes according to plan and I am going to be an older mother then planned. I am projecting that around age 32 to 33, I will be able to be a mother financially and my relationship ready for that. Engaged but my fiancé has an almost 7 year old child and is uninterested in having another anytime soon, unfortunately. I am very upset about this, but I guess that is life. If I was normal, I wouldn't mind as much but thinking of the "what ifs with cf" make me nervous even though I am healthy. I have to remind myself that life is life and it will play out accordingly. Going on 28 is a blessing for sure, but also a weight on my shoulders.
    http://i150.photobucket.com/albums/s...g?t=1365041767 27 year old female, ddf508, dx at 15 (L)

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