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Thread: What do I tell a 4 year old about CF?

  1. #1
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    What do I tell a 4 year old about CF?

    My husband and I are the grandparents and legal guardians of a 4 year old with CF. He and his sister (non-CF) have lived with us for almost 3 years. Whenever he has asked why he takes enzymes, or does CPT, etc, I have always given him an accurate "science" answer (his belly needs extra enzymes to digest his food, etc). And when he asks why other children don't need or do these things, I usually explain that it's because we're all different and these are the things his body needs. We've talked about friends who have peanut allergies, glasses, asthma, wheelchairs, etc - always in terms of how different we all are - some have these things, some do not. He likes to note that he doesn't have any allergies! I have never sat down with him and said "you have CF" and explained it in more detailed terms. And although we discuss it at the doctor's office and other places with other people, he's never asked about "CF". I do not feel I have avoided it with him - but maybe! How and when do I explain what?

  2. #2
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    Join Date
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    What do I tell a 4 year old about CF?

    My husband and I are the grandparents and legal guardians of a 4 year old with CF. He and his sister (non-CF) have lived with us for almost 3 years. Whenever he has asked why he takes enzymes, or does CPT, etc, I have always given him an accurate "science" answer (his belly needs extra enzymes to digest his food, etc). And when he asks why other children don't need or do these things, I usually explain that it's because we're all different and these are the things his body needs. We've talked about friends who have peanut allergies, glasses, asthma, wheelchairs, etc - always in terms of how different we all are - some have these things, some do not. He likes to note that he doesn't have any allergies! I have never sat down with him and said "you have CF" and explained it in more detailed terms. And although we discuss it at the doctor's office and other places with other people, he's never asked about "CF". I do not feel I have avoided it with him - but maybe! How and when do I explain what?

  3. #3
    Super Moderator
    Join Date
    Jan 2009
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    575

    What do I tell a 4 year old about CF?

    My husband and I are the grandparents and legal guardians of a 4 year old with CF. He and his sister (non-CF) have lived with us for almost 3 years. Whenever he has asked why he takes enzymes, or does CPT, etc, I have always given him an accurate "science" answer (his belly needs extra enzymes to digest his food, etc). And when he asks why other children don't need or do these things, I usually explain that it's because we're all different and these are the things his body needs. We've talked about friends who have peanut allergies, glasses, asthma, wheelchairs, etc - always in terms of how different we all are - some have these things, some do not. He likes to note that he doesn't have any allergies! I have never sat down with him and said "you have CF" and explained it in more detailed terms. And although we discuss it at the doctor's office and other places with other people, he's never asked about "CF". I do not feel I have avoided it with him - but maybe! How and when do I explain what?

  4. #4
    Super Moderator
    Join Date
    Jan 2009
    Posts
    575

    What do I tell a 4 year old about CF?

    My husband and I are the grandparents and legal guardians of a 4 year old with CF. He and his sister (non-CF) have lived with us for almost 3 years. Whenever he has asked why he takes enzymes, or does CPT, etc, I have always given him an accurate "science" answer (his belly needs extra enzymes to digest his food, etc). And when he asks why other children don't need or do these things, I usually explain that it's because we're all different and these are the things his body needs. We've talked about friends who have peanut allergies, glasses, asthma, wheelchairs, etc - always in terms of how different we all are - some have these things, some do not. He likes to note that he doesn't have any allergies! I have never sat down with him and said "you have CF" and explained it in more detailed terms. And although we discuss it at the doctor's office and other places with other people, he's never asked about "CF". I do not feel I have avoided it with him - but maybe! How and when do I explain what?

  5. #5
    Super Moderator
    Join Date
    Jan 2009
    Posts
    575

    What do I tell a 4 year old about CF?

    My husband and I are the grandparents and legal guardians of a 4 year old with CF. He and his sister (non-CF) have lived with us for almost 3 years. Whenever he has asked why he takes enzymes, or does CPT, etc, I have always given him an accurate "science" answer (his belly needs extra enzymes to digest his food, etc). And when he asks why other children don't need or do these things, I usually explain that it's because we're all different and these are the things his body needs. We've talked about friends who have peanut allergies, glasses, asthma, wheelchairs, etc - always in terms of how different we all are - some have these things, some do not. He likes to note that he doesn't have any allergies! I have never sat down with him and said "you have CF" and explained it in more detailed terms. And although we discuss it at the doctor's office and other places with other people, he's never asked about "CF". I do not feel I have avoided it with him - but maybe! How and when do I explain what?

  6. #6
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    Apr 2007
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    7,731

    What do I tell a 4 year old about CF?

    I think you're doing a great job so far. It is always best to be honest with kids, but in an age-appropriate way. At this age, kids do start to question life. They are starting to learn things for themselves, and they will ask those tough questions. I am excited to read the experts' advice on this one.

    I also want to say that I was raised by my grandparents. I know that it is a huge undertaking to "do it all again", and I appreciated mine so much for their sacrifice. I know your kids will as well. Good luck.

    Stacey

  7. #7
    Senior Member
    Join Date
    Apr 2007
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    7,731

    What do I tell a 4 year old about CF?

    I think you're doing a great job so far. It is always best to be honest with kids, but in an age-appropriate way. At this age, kids do start to question life. They are starting to learn things for themselves, and they will ask those tough questions. I am excited to read the experts' advice on this one.

    I also want to say that I was raised by my grandparents. I know that it is a huge undertaking to "do it all again", and I appreciated mine so much for their sacrifice. I know your kids will as well. Good luck.

    Stacey

  8. #8
    Senior Member
    Join Date
    Apr 2007
    Posts
    7,731

    What do I tell a 4 year old about CF?

    I think you're doing a great job so far. It is always best to be honest with kids, but in an age-appropriate way. At this age, kids do start to question life. They are starting to learn things for themselves, and they will ask those tough questions. I am excited to read the experts' advice on this one.

    I also want to say that I was raised by my grandparents. I know that it is a huge undertaking to "do it all again", and I appreciated mine so much for their sacrifice. I know your kids will as well. Good luck.

    Stacey

  9. #9
    Senior Member
    Join Date
    Apr 2007
    Posts
    7,731

    What do I tell a 4 year old about CF?

    I think you're doing a great job so far. It is always best to be honest with kids, but in an age-appropriate way. At this age, kids do start to question life. They are starting to learn things for themselves, and they will ask those tough questions. I am excited to read the experts' advice on this one.

    I also want to say that I was raised by my grandparents. I know that it is a huge undertaking to "do it all again", and I appreciated mine so much for their sacrifice. I know your kids will as well. Good luck.

    Stacey

  10. #10
    Senior Member
    Join Date
    Apr 2007
    Posts
    7,731

    What do I tell a 4 year old about CF?

    I think you're doing a great job so far. It is always best to be honest with kids, but in an age-appropriate way. At this age, kids do start to question life. They are starting to learn things for themselves, and they will ask those tough questions. I am excited to read the experts' advice on this one.
    <br />
    <br />I also want to say that I was raised by my grandparents. I know that it is a huge undertaking to "do it all again", and I appreciated mine so much for their sacrifice. I know your kids will as well. Good luck.
    <br />
    <br />Stacey

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