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Thread: Trying to rid PA!

  1. #1
    Junior Member
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    Nov 2011
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    Trying to rid PA!

    Our 6yo is still positive for PA. Since PA dx in Jan, we have done 11weeks of Tobi. Then went gluten free, dairy free, nearly sugar free, and 2weeks of inhaled colloidal silver. Also started glutathione, magnesium, and NAC during this time. Results came back today that she is still positive. Thoughts? Suggestions?

  2. #2
    Senior Member
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    Apr 2006
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    Trying to rid PA!

    Dunno if you'll ever get rid of it but if it works to keep the numbers down then that's a good thing. It's when the infection count gets too high that you get symptoms and feel like crap. Plus 2 weeks is hardly long enough time to judge - sure it took longer than that for her to have gotten it and for it to get to the level she has so surely it won't go away in a flash or we all would not have it anymore. Be patient and stay consistent with your efforts especially if you are seeing progress.

  3. #3
    Senior Member
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    Trying to rid PA!

    You need to be careful with inhaled collodial silver.

  4. #4
    Senior Member
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    Trying to rid PA!

    Did your CF SPECIALIST tell you to go gluten free, dairy free and sugar free, etc. or are you doing this on your own? This kid is only 6 years old.

    Bill

  5. #5
    kross10911
    Guest

    Trying to rid PA!

    Im guessing you will never be able to get rid of the PA. Its an unfortuante reality of CF. You cant avoid it with it being in the air, water, soil ect. We just suck it up and it sticks to our lungs and it loves us so much it stays around for the rest of our existence lol.

    To each their own but that is A LOT of stuff for a 6 year old to be doing. Im all about not having to do a lot of pills/IV meds and personally havent ever tried natural routes. As long as the CF docs are aware then Im sure it cant hurt to try some of those methods.

    one thing ive learned from hearing about others doing natural methods, not everything works the same for every CFer .

    Im not exactly sure the benefit of the dairy, sugar and gluten free method. seems like it would make it harder to get all of the nutrition needed ( unless she doesnt have issues with weight)

    Good luck! I think she is lucky to have made it to 6 and just now culturing PA

  6. #6
    Senior Member
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    Trying to rid PA!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> You need to be careful with inhaled collodial silver.</end quote>
    Can you elaborate on this or give a link to some info? I've been trying to find all the pros and cons of it. Thanks.

  7. #7
    Senior Member
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    Aug 2009
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    598

    Trying to rid PA!

    You *really* never get rid of PA. It kind of stays with you. I do not have CF, (see my signature) but I've cultured PA most of my life. Our lungs (CF or other lung disease) are a breeding ground for bacteria i.e. Psuedomonas...maintance medication was very important to me (still is)

    As far as GF & DF. My brother has my disease-the drs. think we have PCD another rare lung disease, and he also has Bronch. You CAN be healthy GF & DF but this isn't going to make the PA go away. It may relieve some of her congestion (it has helped my brother).


  8. #8
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    Trying to rid PA!

    AnnieT:

    Your brother does not have CF so digestive problems are not the same and he is NOT 6 years of age and is not depending on healthy bone growth (dairy).

    Bill

  9. #9
    Super Moderator
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    Trying to rid PA!

    I'd be concerned as well about the inhalation of collodial silver, especially on someone so young.

    As for the diet, my child is 9 and without dairy -- cheese, milk, cream, yogurt, his food options would be very limited as he derives most of his carlories from those sources.

  10. #10
    Senior Member
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    Trying to rid PA!

    At age 72 I am REQUIRED to increase dairy to MAINTAIN bone health.

    Here are two children, 6 & 8, both with CF.

    By definition, fighting off failer to thrive, fat absorption problems, colon build up problems and the parents, in their wisdom, are restricting their diet at the most in opportune time in their childrens lives.

    I can not beileve that any CF Doctor has approved this.

    Bill

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