Page 1 of 3 123 LastLast
Results 1 to 10 of 21

Thread: Adults with CF what are your jobs?

Hybrid View

  1. #1
    Junior Member
    Join Date
    Jan 2019

    Adults with CF what are your jobs?

    I have a son with cf. Thinking ahead... just wondering what skills would be useful for him to learn now that might be helpful for a career that you can work from home. I want him to be as self sufficient as possible. He's taking a 3D modeling class but I know that's not super useful outside of very specific fields. Any ideas or suggestions would be appreciated!

  2. #2
    Senior Member
    Join Date
    Sep 2016
    Anything in IT/ computer related...I didn't listen when my dad told me this was the route to go...wish I would have.

  3. #3
    Senior Member
    Join Date
    Jun 2007
    I'm a solar engineer, degree in Mechanical Engineering.
    I thought similarly when I was in high school, thinking I shouldn't pursue anything physically demanding. Working from home didn't really exist at the time and I wouldn't necessarily pursue a career with that in mind. I've made some great friends having a work-place to go to.
    I don't know how old your son is, but I believe the treatments available and upcoming will be a gamechanger for the generation growing up now. I had doubts I'd live through college and now I'm 41, so I'm not as delicate as I thought. I recommend kids pursue whatever they're interested in, especially when young. Learning 3D printing teaches many great skills, computer modeling, spatial visualization, etc. I was learning drums, which I turned into a nice hobby and had fun playing some live shows, never expecting it to be my career. Marketable skills are great, but having varied interests makes for a more interesting human.

  4. #4
    I'm a software manager with a technology company.

    If he's interested in it, a degree in computer science and a job as a software engineer is a great route to go. While there are certainly companies that are stressful and require long hours, software engineers are in such demand that you can kind of choose what environment you want to work in. Also, software engineers at technology companies typically have pretty flexible schedules, working from home may be an option if it's ever needed, and the pay and benefits are usually good as well. While my health is decent (and like Eric, I'm also 41), I do take my share of sick days, and also have had to go on disability a few different times. And I certainly use my health insurance all the time, so it's important to have good insurance!

  5. #5
    I'm a PhD student in biochemistry with the aim of working in an industry job after. My main concerns when picking a career path were that it wasn't physically demanding and that it will have steady health insurance. An industry job won't exactly be low-stress, but I've greatly benefitted from Orkambi and Symdeko and anticipate the triples helping further and so I don't worry about being able to manage a fairly demanding job. Right now I work 40-50 hours/week; I'm not sure what my personal upper limit would be health wise.

  6. #6
    Junior Member
    Join Date
    Nov 2011
    I got my degree in secondary education. Working in high school is nice because there are many breaks built into the school year that allow me to schedule doctor's appointments, or should the need arise, a hospital stay. The insurance is also good, and every community needs teachers. The down side is that students spread sickness. I like teaching because it keeps you plugged into the community in a way you might not get when working from home.

  7. #7
    Senior Member
    Join Date
    Apr 2007
    I went to nursing school, but after I got licensed I didn't want to expose myself to all the germs. So I got my MBA and weaseled my way into healthcare IT. I think IT is a great career for CF. I am able to work from home (or the hospital) if I need to, and it's not physically demanding. Some days I wish I had a more active job, but at the same time I'm thankful because there are times when I wouldn't be able to do it. But quite honestly, I think someone with CF should not feel like they should be held back in any way - there are adults with CF with a wide variety of jobs, health statuses, etc. The sky is the limit.
    37 w/CF
    Mom to 2 boys

  8. #8
    Junior Member
    Join Date
    Feb 2018
    Hey Rubyrose, I posted a very similar scenario. I worked as an RN in surgery for many years then went back to grad school and landed a clinical analyst job in our Analytics Division. Curious what type of work do you do within IT?

  9. #9
    Senior Member
    Join Date
    Jun 2006
    I worked in Nuclear Medicine for 35 yrs.
    Went to Duke.

  10. #10
    Junior Member
    Join Date
    Oct 2016
    I'm a Death Investigator. I go to death scenes and take jurisdiction of the body. I earned a BS in Biology & Physiology, then a RN, then a Masters in Forensic Science. Now, everyone is dying to meet me!

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts