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  1. I sent an email to a friend, an RN who has been in the CF clinic since prior to 2001, and asked her for her input. When I left MGH for BCH, I felt line a baseball player being promoted from the minors to the big leagues. I hope that MGH is better now. I wish that more people who had experience with both clinics would have posted.
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    Thank you Bill.
  3. Good luck in whatever you decide.
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    Hi Bill, I had a great relationship with Craig also and I think that is why he was so offended. I did not realize he was going to take the transfer so hard. I felt our doctor patient relationship would never be repairable. I really appreciate your advice and guidance. I noticed your are an inspiration. Stay well!
  5. I see Uluer when I'm in the hospital. He was also in charge of a video shoot and asked me to join in. This led to my speaking to a group of lung specialists at BWH. He is a great CF Doctor and a great person. I have seen Manuela at BWH for the most part but I have seen her when I needed a non scheduled appointment.
  6. I see Craig Gerard and I have a great relationship with him. I stopped going to MGH because I had "communication" issues with Dr Sicillian. Dr Dorkin and I became friendly when he was at MGH. I would suggest that you chat with Hank Dorkin and see if he will help you. Personally, I doubt that MGH is your answer.
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    Sorry...just saw you mention Craig. Do you also see Uluer sometimes? I saw you mention him in a previous post. How often have you seen Manuela?
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    Who do you see Bill? I like Dr. Cernadas too but I do not think she has the depth of knowledge like Uluer. She also does not use email regularly and does not get back to you a lot which is frustrating (I do not reach out that often). I really like her as a person and at times she steps to the plate. I will feel terrible leaving her. A couple years ago I started developing low grade fevers and she kept saying I don't think it's related to your cf. I was miserable. I saw other specialists to see why it was happening. I finally reached out to my old doctor (Dorkin) who said, it's your cf. He was right. I appreciate the offer to talk to Gerard but I really don't think it will help.
  9. Actually, I like her, if Craig were to retire, I would really consider seeing Manuela. I'm not crazy about Donahue. I doubt that you would be happy at MGH. I will speak to Craig Gerard, for you, if you like.
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    Hi Printer, Sorry for the delay. I am currently seeing Dr. Manuela Cernadas. She was the only doctor he would allow me to see. I like her but do not think she has the experience I need. The last couple years my health has become a bit more unstable....I am turning 42 in a month. Do you have experience with Dr. Cernadas? My email is [email protected] if that is easier. Also my phone number is 617-869-3504. I am curious to hear your thoughts.
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Male 79 CF undetected until age 47. (First symptoms at age 3) Delta F508 & V562I with one copy of Variant 5Tand 12T. 100% PI. MAC, CFRD.


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06-02-2017 03:20 PM
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