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moosemom
03-09-2008, 05:38 AM
Hi everyone,

I am wondering if anyone has ever tried alternative medicines. What did you try and were you successful???

I am desperate to feel better. The medication helps the lung issues but the rest of me is feeling awful. Friends have suggested acupuncture and or reflexology to help with the other symptoms like fatigue and GI issues. I would be grateful for any feedback.

Thanks and by the way, finding this site has been a life saver for me.

Marci

moosemom
03-09-2008, 05:38 AM
Hi everyone,

I am wondering if anyone has ever tried alternative medicines. What did you try and were you successful???

I am desperate to feel better. The medication helps the lung issues but the rest of me is feeling awful. Friends have suggested acupuncture and or reflexology to help with the other symptoms like fatigue and GI issues. I would be grateful for any feedback.

Thanks and by the way, finding this site has been a life saver for me.

Marci

moosemom
03-09-2008, 05:38 AM
Hi everyone,

I am wondering if anyone has ever tried alternative medicines. What did you try and were you successful???

I am desperate to feel better. The medication helps the lung issues but the rest of me is feeling awful. Friends have suggested acupuncture and or reflexology to help with the other symptoms like fatigue and GI issues. I would be grateful for any feedback.

Thanks and by the way, finding this site has been a life saver for me.

Marci

moosemom
03-09-2008, 05:38 AM
Hi everyone,

I am wondering if anyone has ever tried alternative medicines. What did you try and were you successful???

I am desperate to feel better. The medication helps the lung issues but the rest of me is feeling awful. Friends have suggested acupuncture and or reflexology to help with the other symptoms like fatigue and GI issues. I would be grateful for any feedback.

Thanks and by the way, finding this site has been a life saver for me.

Marci

moosemom
03-09-2008, 05:38 AM
Hi everyone,
<br />
<br />I am wondering if anyone has ever tried alternative medicines. What did you try and were you successful???
<br />
<br />I am desperate to feel better. The medication helps the lung issues but the rest of me is feeling awful. Friends have suggested acupuncture and or reflexology to help with the other symptoms like fatigue and GI issues. I would be grateful for any feedback.
<br />
<br />Thanks and by the way, finding this site has been a life saver for me.
<br />
<br />Marci

MargaritaChic
03-13-2008, 06:55 PM
I have had accupuncture for issues unrelated to CF. Mostly for neck pain associated with a car accident. I also had it again recently when I was in the hospital giving birth to Emma.

In my experience it is WONDERFUL when used to help relieve pain.

MargaritaChic
03-13-2008, 06:55 PM
I have had accupuncture for issues unrelated to CF. Mostly for neck pain associated with a car accident. I also had it again recently when I was in the hospital giving birth to Emma.

In my experience it is WONDERFUL when used to help relieve pain.

MargaritaChic
03-13-2008, 06:55 PM
I have had accupuncture for issues unrelated to CF. Mostly for neck pain associated with a car accident. I also had it again recently when I was in the hospital giving birth to Emma.

In my experience it is WONDERFUL when used to help relieve pain.

MargaritaChic
03-13-2008, 06:55 PM
I have had accupuncture for issues unrelated to CF. Mostly for neck pain associated with a car accident. I also had it again recently when I was in the hospital giving birth to Emma.

In my experience it is WONDERFUL when used to help relieve pain.

MargaritaChic
03-13-2008, 06:55 PM
I have had accupuncture for issues unrelated to CF. Mostly for neck pain associated with a car accident. I also had it again recently when I was in the hospital giving birth to Emma.
<br />
<br />In my experience it is WONDERFUL when used to help relieve pain.

rubyroselee
03-13-2008, 09:04 PM
I have done reflexology twice. I find it much more enjoyable than massage. I have never tried acupuncture. I didn't notice that the reflexology helped any of my CF symptoms, but it felt energizing and relaxing.

rubyroselee
03-13-2008, 09:04 PM
I have done reflexology twice. I find it much more enjoyable than massage. I have never tried acupuncture. I didn't notice that the reflexology helped any of my CF symptoms, but it felt energizing and relaxing.

rubyroselee
03-13-2008, 09:04 PM
I have done reflexology twice. I find it much more enjoyable than massage. I have never tried acupuncture. I didn't notice that the reflexology helped any of my CF symptoms, but it felt energizing and relaxing.

rubyroselee
03-13-2008, 09:04 PM
I have done reflexology twice. I find it much more enjoyable than massage. I have never tried acupuncture. I didn't notice that the reflexology helped any of my CF symptoms, but it felt energizing and relaxing.

rubyroselee
03-13-2008, 09:04 PM
I have done reflexology twice. I find it much more enjoyable than massage. I have never tried acupuncture. I didn't notice that the reflexology helped any of my CF symptoms, but it felt energizing and relaxing.

sheanna
03-26-2008, 02:28 AM
I'm a fan of homeopathy. I work at a bird refuge where we use it with amazing results. I have yet to go in for a total eval, but I am on arnica for bruising due to insulin injections, as well as 'rescue remedy' when I get into stress overload. I swear it is just amazing.

sheanna
03-26-2008, 02:28 AM
I'm a fan of homeopathy. I work at a bird refuge where we use it with amazing results. I have yet to go in for a total eval, but I am on arnica for bruising due to insulin injections, as well as 'rescue remedy' when I get into stress overload. I swear it is just amazing.

sheanna
03-26-2008, 02:28 AM
I'm a fan of homeopathy. I work at a bird refuge where we use it with amazing results. I have yet to go in for a total eval, but I am on arnica for bruising due to insulin injections, as well as 'rescue remedy' when I get into stress overload. I swear it is just amazing.

sheanna
03-26-2008, 02:28 AM
I'm a fan of homeopathy. I work at a bird refuge where we use it with amazing results. I have yet to go in for a total eval, but I am on arnica for bruising due to insulin injections, as well as 'rescue remedy' when I get into stress overload. I swear it is just amazing.

sheanna
03-26-2008, 02:28 AM
I'm a fan of homeopathy. I work at a bird refuge where we use it with amazing results. I have yet to go in for a total eval, but I am on arnica for bruising due to insulin injections, as well as 'rescue remedy' when I get into stress overload. I swear it is just amazing.

christyisnutz
03-26-2008, 02:57 AM
I love acupuncture. It does wonders for your body!

christyisnutz
03-26-2008, 02:57 AM
I love acupuncture. It does wonders for your body!

christyisnutz
03-26-2008, 02:57 AM
I love acupuncture. It does wonders for your body!

christyisnutz
03-26-2008, 02:57 AM
I love acupuncture. It does wonders for your body!

christyisnutz
03-26-2008, 02:57 AM
I love acupuncture. It does wonders for your body!

shea14
03-31-2008, 02:14 AM
I would call a homeopathic clinic. I wanted to have them do Ozone treatments or other IV oxegen therapies to my son but they said he is too small. I've heard great things!!

shea14
03-31-2008, 02:14 AM
I would call a homeopathic clinic. I wanted to have them do Ozone treatments or other IV oxegen therapies to my son but they said he is too small. I've heard great things!!

shea14
03-31-2008, 02:14 AM
I would call a homeopathic clinic. I wanted to have them do Ozone treatments or other IV oxegen therapies to my son but they said he is too small. I've heard great things!!

shea14
03-31-2008, 02:14 AM
I would call a homeopathic clinic. I wanted to have them do Ozone treatments or other IV oxegen therapies to my son but they said he is too small. I've heard great things!!

shea14
03-31-2008, 02:14 AM
I would call a homeopathic clinic. I wanted to have them do Ozone treatments or other IV oxegen therapies to my son but they said he is too small. I've heard great things!!

sahein79
04-03-2008, 02:19 PM
I have been using acupuncture bi-weekly for energy, opening the lungs, and uplifting the spirit, and I believe it is working wonders! I have also switched to a dairy-free, gluten-free diet, with an emphasis on fruits and vegetables, and have noticed a major reduction in the thickness of my mucus production. Taking an essential fatty acid supplement, such as fish oil or flax oil, helps as well!<img src="i/expressions/face-icon-small-cool.gif" border="0">

sahein79
04-03-2008, 02:19 PM
I have been using acupuncture bi-weekly for energy, opening the lungs, and uplifting the spirit, and I believe it is working wonders! I have also switched to a dairy-free, gluten-free diet, with an emphasis on fruits and vegetables, and have noticed a major reduction in the thickness of my mucus production. Taking an essential fatty acid supplement, such as fish oil or flax oil, helps as well!<img src="i/expressions/face-icon-small-cool.gif" border="0">

sahein79
04-03-2008, 02:19 PM
I have been using acupuncture bi-weekly for energy, opening the lungs, and uplifting the spirit, and I believe it is working wonders! I have also switched to a dairy-free, gluten-free diet, with an emphasis on fruits and vegetables, and have noticed a major reduction in the thickness of my mucus production. Taking an essential fatty acid supplement, such as fish oil or flax oil, helps as well!<img src="i/expressions/face-icon-small-cool.gif" border="0">

sahein79
04-03-2008, 02:19 PM
I have been using acupuncture bi-weekly for energy, opening the lungs, and uplifting the spirit, and I believe it is working wonders! I have also switched to a dairy-free, gluten-free diet, with an emphasis on fruits and vegetables, and have noticed a major reduction in the thickness of my mucus production. Taking an essential fatty acid supplement, such as fish oil or flax oil, helps as well!<img src="i/expressions/face-icon-small-cool.gif" border="0">

sahein79
04-03-2008, 02:19 PM
I have been using acupuncture bi-weekly for energy, opening the lungs, and uplifting the spirit, and I believe it is working wonders! I have also switched to a dairy-free, gluten-free diet, with an emphasis on fruits and vegetables, and have noticed a major reduction in the thickness of my mucus production. Taking an essential fatty acid supplement, such as fish oil or flax oil, helps as well!<img src="i/expressions/face-icon-small-cool.gif" border="0">

Momtana
04-29-2008, 12:55 AM
I have had acupuncture treatments monthly since 1995 - eight years before my diagnosis. I am devoted to it because I believe it helps keep me well. Cranial sacral therapy was very nice to have - light touch and focus on what is out of whack in the body. but, alas, I can't afford the cranial sacral these days. Who gets massage? Yoga?

Momtana
04-29-2008, 12:55 AM
I have had acupuncture treatments monthly since 1995 - eight years before my diagnosis. I am devoted to it because I believe it helps keep me well. Cranial sacral therapy was very nice to have - light touch and focus on what is out of whack in the body. but, alas, I can't afford the cranial sacral these days. Who gets massage? Yoga?

Momtana
04-29-2008, 12:55 AM
I have had acupuncture treatments monthly since 1995 - eight years before my diagnosis. I am devoted to it because I believe it helps keep me well. Cranial sacral therapy was very nice to have - light touch and focus on what is out of whack in the body. but, alas, I can't afford the cranial sacral these days. Who gets massage? Yoga?

Momtana
04-29-2008, 12:55 AM
I have had acupuncture treatments monthly since 1995 - eight years before my diagnosis. I am devoted to it because I believe it helps keep me well. Cranial sacral therapy was very nice to have - light touch and focus on what is out of whack in the body. but, alas, I can't afford the cranial sacral these days. Who gets massage? Yoga?

Momtana
04-29-2008, 12:55 AM
I have had acupuncture treatments monthly since 1995 - eight years before my diagnosis. I am devoted to it because I believe it helps keep me well. Cranial sacral therapy was very nice to have - light touch and focus on what is out of whack in the body. but, alas, I can't afford the cranial sacral these days. Who gets massage? Yoga?

Solo
06-04-2008, 01:23 AM
I own some plastic reflexology insoles that were advertised as "height-increasing" insoles, but that is a scam. The benefits of these $15 insoles are well worth it. Since I have strict digestive issues, the insoles really help. I'd recommend them to anyone.

Solo
06-04-2008, 01:23 AM
I own some plastic reflexology insoles that were advertised as "height-increasing" insoles, but that is a scam. The benefits of these $15 insoles are well worth it. Since I have strict digestive issues, the insoles really help. I'd recommend them to anyone.

Solo
06-04-2008, 01:23 AM
I own some plastic reflexology insoles that were advertised as "height-increasing" insoles, but that is a scam. The benefits of these $15 insoles are well worth it. Since I have strict digestive issues, the insoles really help. I'd recommend them to anyone.

Solo
06-04-2008, 01:23 AM
I own some plastic reflexology insoles that were advertised as "height-increasing" insoles, but that is a scam. The benefits of these $15 insoles are well worth it. Since I have strict digestive issues, the insoles really help. I'd recommend them to anyone.

Solo
06-04-2008, 01:23 AM
I own some plastic reflexology insoles that were advertised as "height-increasing" insoles, but that is a scam. The benefits of these $15 insoles are well worth it. Since I have strict digestive issues, the insoles really help. I'd recommend them to anyone.

Solo
06-04-2008, 01:25 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
Who gets massage?</end quote></div>

I got a few massages from some paid acquaintances.<img src="i/expressions/face-icon-small-happy.gif" border="0">

Solo
06-04-2008, 01:25 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
Who gets massage?</end quote></div>

I got a few massages from some paid acquaintances.<img src="i/expressions/face-icon-small-happy.gif" border="0">

Solo
06-04-2008, 01:25 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
Who gets massage?</end quote></div>

I got a few massages from some paid acquaintances.<img src="i/expressions/face-icon-small-happy.gif" border="0">

Solo
06-04-2008, 01:25 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
Who gets massage?</end quote>

I got a few massages from some paid acquaintances.<img src="i/expressions/face-icon-small-happy.gif" border="0">

Solo
06-04-2008, 01:25 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Momtana</b></i>
<br />Who gets massage?</end quote>
<br />
<br />I got a few massages from some paid acquaintances.<img src="i/expressions/face-icon-small-happy.gif" border="0">

ckcleeb2
06-18-2008, 05:08 PM
Hi My name is Carol. I study Massage Therapy Eastern and Western Techniques. I want to know how my profession can helf persons with CF. I also work in hospital human genetics program and have become interested in CF thought that experience. Would you like to talk with me??

ckcleeb2
06-18-2008, 05:08 PM
Hi My name is Carol. I study Massage Therapy Eastern and Western Techniques. I want to know how my profession can helf persons with CF. I also work in hospital human genetics program and have become interested in CF thought that experience. Would you like to talk with me??

ckcleeb2
06-18-2008, 05:08 PM
Hi My name is Carol. I study Massage Therapy Eastern and Western Techniques. I want to know how my profession can helf persons with CF. I also work in hospital human genetics program and have become interested in CF thought that experience. Would you like to talk with me??

ckcleeb2
06-18-2008, 05:08 PM
Hi My name is Carol. I study Massage Therapy Eastern and Western Techniques. I want to know how my profession can helf persons with CF. I also work in hospital human genetics program and have become interested in CF thought that experience. Would you like to talk with me??

ckcleeb2
06-18-2008, 05:08 PM
Hi My name is Carol. I study Massage Therapy Eastern and Western Techniques. I want to know how my profession can helf persons with CF. I also work in hospital human genetics program and have become interested in CF thought that experience. Would you like to talk with me??

JenWren
06-19-2008, 02:09 PM
Hi: I have recieved Reiki and massage , and self hypnosis for quite some time, I also spent a year studying Tai Chi for pain relief.

I must say for me the massage got expensive never enough . It helped over time though.

Tai Chi helped the most for constant pain relief. It is very important to move every day. Some sort of exercise or pain does get worse and worse. I suffer from chronic muscle, and joint pain, probably related to Osteoporosis, and other stuff like coughing and fatigue. So this is daily struggle for me.

I find that when I exercise on a regular basis even if it is just stretching on a mat, it really helps my pain. It is really hard to get going though when your in pain to begin with, I understand. But once you get started things fall into place unless there are unrelated issues. Also Vit levels are important to check out now and again cause of our malabsorption.

Meditation is also really helpful in pain relief. If you can't do it on your own, tapes are available to help you. Some of the tapes available are for target areas of our bodies. I bought a tape for the lungs and general pain from a Web site called Hemisync you can google it and Hemisync products. Then it will lead you to the Web site " Mind Sync" then clikck on Pain Control. I love my tape and do it regularly. You have to be really self disciplined but it beats drugs.

It's great if you can find a local Reiki Master in your area. I found one in my home town and she gave me a break on the fee and said she just wanted to be part of my health care team. There are a lot of caring people that want to help people in pain. Don't be afraid to call around and ask these Holistic people in your area to help. Sometimes if they are not in your area they will give you a contact of someone they know that may live right in your town that they know. Be resourceful.

I stay away from Holistic drugs, like echanacea because they just don't have enough information on how they react with other drugs that CF people are on or they interfere with Diabetes and blood sugars.

Best of Luck. Im willing to brainstorm if you want to PM me.

JenWren<img src="i/expressions/rose.gif" border="0">

JenWren
06-19-2008, 02:09 PM
Hi: I have recieved Reiki and massage , and self hypnosis for quite some time, I also spent a year studying Tai Chi for pain relief.

I must say for me the massage got expensive never enough . It helped over time though.

Tai Chi helped the most for constant pain relief. It is very important to move every day. Some sort of exercise or pain does get worse and worse. I suffer from chronic muscle, and joint pain, probably related to Osteoporosis, and other stuff like coughing and fatigue. So this is daily struggle for me.

I find that when I exercise on a regular basis even if it is just stretching on a mat, it really helps my pain. It is really hard to get going though when your in pain to begin with, I understand. But once you get started things fall into place unless there are unrelated issues. Also Vit levels are important to check out now and again cause of our malabsorption.

Meditation is also really helpful in pain relief. If you can't do it on your own, tapes are available to help you. Some of the tapes available are for target areas of our bodies. I bought a tape for the lungs and general pain from a Web site called Hemisync you can google it and Hemisync products. Then it will lead you to the Web site " Mind Sync" then clikck on Pain Control. I love my tape and do it regularly. You have to be really self disciplined but it beats drugs.

It's great if you can find a local Reiki Master in your area. I found one in my home town and she gave me a break on the fee and said she just wanted to be part of my health care team. There are a lot of caring people that want to help people in pain. Don't be afraid to call around and ask these Holistic people in your area to help. Sometimes if they are not in your area they will give you a contact of someone they know that may live right in your town that they know. Be resourceful.

I stay away from Holistic drugs, like echanacea because they just don't have enough information on how they react with other drugs that CF people are on or they interfere with Diabetes and blood sugars.

Best of Luck. Im willing to brainstorm if you want to PM me.

JenWren<img src="i/expressions/rose.gif" border="0">

JenWren
06-19-2008, 02:09 PM
Hi: I have recieved Reiki and massage , and self hypnosis for quite some time, I also spent a year studying Tai Chi for pain relief.

I must say for me the massage got expensive never enough . It helped over time though.

Tai Chi helped the most for constant pain relief. It is very important to move every day. Some sort of exercise or pain does get worse and worse. I suffer from chronic muscle, and joint pain, probably related to Osteoporosis, and other stuff like coughing and fatigue. So this is daily struggle for me.

I find that when I exercise on a regular basis even if it is just stretching on a mat, it really helps my pain. It is really hard to get going though when your in pain to begin with, I understand. But once you get started things fall into place unless there are unrelated issues. Also Vit levels are important to check out now and again cause of our malabsorption.

Meditation is also really helpful in pain relief. If you can't do it on your own, tapes are available to help you. Some of the tapes available are for target areas of our bodies. I bought a tape for the lungs and general pain from a Web site called Hemisync you can google it and Hemisync products. Then it will lead you to the Web site " Mind Sync" then clikck on Pain Control. I love my tape and do it regularly. You have to be really self disciplined but it beats drugs.

It's great if you can find a local Reiki Master in your area. I found one in my home town and she gave me a break on the fee and said she just wanted to be part of my health care team. There are a lot of caring people that want to help people in pain. Don't be afraid to call around and ask these Holistic people in your area to help. Sometimes if they are not in your area they will give you a contact of someone they know that may live right in your town that they know. Be resourceful.

I stay away from Holistic drugs, like echanacea because they just don't have enough information on how they react with other drugs that CF people are on or they interfere with Diabetes and blood sugars.

Best of Luck. Im willing to brainstorm if you want to PM me.

JenWren<img src="i/expressions/rose.gif" border="0">

JenWren
06-19-2008, 02:09 PM
Hi: I have recieved Reiki and massage , and self hypnosis for quite some time, I also spent a year studying Tai Chi for pain relief.

I must say for me the massage got expensive never enough . It helped over time though.

Tai Chi helped the most for constant pain relief. It is very important to move every day. Some sort of exercise or pain does get worse and worse. I suffer from chronic muscle, and joint pain, probably related to Osteoporosis, and other stuff like coughing and fatigue. So this is daily struggle for me.

I find that when I exercise on a regular basis even if it is just stretching on a mat, it really helps my pain. It is really hard to get going though when your in pain to begin with, I understand. But once you get started things fall into place unless there are unrelated issues. Also Vit levels are important to check out now and again cause of our malabsorption.

Meditation is also really helpful in pain relief. If you can't do it on your own, tapes are available to help you. Some of the tapes available are for target areas of our bodies. I bought a tape for the lungs and general pain from a Web site called Hemisync you can google it and Hemisync products. Then it will lead you to the Web site " Mind Sync" then clikck on Pain Control. I love my tape and do it regularly. You have to be really self disciplined but it beats drugs.

It's great if you can find a local Reiki Master in your area. I found one in my home town and she gave me a break on the fee and said she just wanted to be part of my health care team. There are a lot of caring people that want to help people in pain. Don't be afraid to call around and ask these Holistic people in your area to help. Sometimes if they are not in your area they will give you a contact of someone they know that may live right in your town that they know. Be resourceful.

I stay away from Holistic drugs, like echanacea because they just don't have enough information on how they react with other drugs that CF people are on or they interfere with Diabetes and blood sugars.

Best of Luck. Im willing to brainstorm if you want to PM me.

JenWren<img src="i/expressions/rose.gif" border="0">

JenWren
06-19-2008, 02:09 PM
Hi: I have recieved Reiki and massage , and self hypnosis for quite some time, I also spent a year studying Tai Chi for pain relief.
<br />
<br />I must say for me the massage got expensive never enough . It helped over time though.
<br />
<br />Tai Chi helped the most for constant pain relief. It is very important to move every day. Some sort of exercise or pain does get worse and worse. I suffer from chronic muscle, and joint pain, probably related to Osteoporosis, and other stuff like coughing and fatigue. So this is daily struggle for me.
<br />
<br />I find that when I exercise on a regular basis even if it is just stretching on a mat, it really helps my pain. It is really hard to get going though when your in pain to begin with, I understand. But once you get started things fall into place unless there are unrelated issues. Also Vit levels are important to check out now and again cause of our malabsorption.
<br />
<br />Meditation is also really helpful in pain relief. If you can't do it on your own, tapes are available to help you. Some of the tapes available are for target areas of our bodies. I bought a tape for the lungs and general pain from a Web site called Hemisync you can google it and Hemisync products. Then it will lead you to the Web site " Mind Sync" then clikck on Pain Control. I love my tape and do it regularly. You have to be really self disciplined but it beats drugs.
<br />
<br />It's great if you can find a local Reiki Master in your area. I found one in my home town and she gave me a break on the fee and said she just wanted to be part of my health care team. There are a lot of caring people that want to help people in pain. Don't be afraid to call around and ask these Holistic people in your area to help. Sometimes if they are not in your area they will give you a contact of someone they know that may live right in your town that they know. Be resourceful.
<br />
<br />I stay away from Holistic drugs, like echanacea because they just don't have enough information on how they react with other drugs that CF people are on or they interfere with Diabetes and blood sugars.
<br />
<br />Best of Luck. Im willing to brainstorm if you want to PM me.
<br />
<br />JenWren<img src="i/expressions/rose.gif" border="0">

MamatoAlexa
06-25-2008, 09:24 AM
My sister is in her last year of grad school for acupuncture and traditional Chinese medicine. For many months I went to the clinic at her school and received acupuncture treatments. I really feel the treatments were helpful. During that time my PFT's were the highest they have been in the 7 years attending my current CF clinic. I also got pregnant with my second daughter during that time frame. We decided since my lung function was looking so good and we knew we wanted to try for a second it was a good time to go for it.

MamatoAlexa
06-25-2008, 09:24 AM
My sister is in her last year of grad school for acupuncture and traditional Chinese medicine. For many months I went to the clinic at her school and received acupuncture treatments. I really feel the treatments were helpful. During that time my PFT's were the highest they have been in the 7 years attending my current CF clinic. I also got pregnant with my second daughter during that time frame. We decided since my lung function was looking so good and we knew we wanted to try for a second it was a good time to go for it.

MamatoAlexa
06-25-2008, 09:24 AM
My sister is in her last year of grad school for acupuncture and traditional Chinese medicine. For many months I went to the clinic at her school and received acupuncture treatments. I really feel the treatments were helpful. During that time my PFT's were the highest they have been in the 7 years attending my current CF clinic. I also got pregnant with my second daughter during that time frame. We decided since my lung function was looking so good and we knew we wanted to try for a second it was a good time to go for it.

MamatoAlexa
06-25-2008, 09:24 AM
My sister is in her last year of grad school for acupuncture and traditional Chinese medicine. For many months I went to the clinic at her school and received acupuncture treatments. I really feel the treatments were helpful. During that time my PFT's were the highest they have been in the 7 years attending my current CF clinic. I also got pregnant with my second daughter during that time frame. We decided since my lung function was looking so good and we knew we wanted to try for a second it was a good time to go for it.

MamatoAlexa
06-25-2008, 09:24 AM
My sister is in her last year of grad school for acupuncture and traditional Chinese medicine. For many months I went to the clinic at her school and received acupuncture treatments. I really feel the treatments were helpful. During that time my PFT's were the highest they have been in the 7 years attending my current CF clinic. I also got pregnant with my second daughter during that time frame. We decided since my lung function was looking so good and we knew we wanted to try for a second it was a good time to go for it.

tinydancer0417
06-29-2008, 12:00 AM
where did you get the insoles??

tinydancer0417
06-29-2008, 12:00 AM
where did you get the insoles??

tinydancer0417
06-29-2008, 12:00 AM
where did you get the insoles??

tinydancer0417
06-29-2008, 12:00 AM
where did you get the insoles??

tinydancer0417
06-29-2008, 12:00 AM
where did you get the insoles??

Solo
07-01-2008, 01:12 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tinydancer0417</b></i>

where did you get the insoles??</end quote></div>

I assume you are directing that inquiry my way since I brought up the insoles. I got them off the internet, they're called kimi insoles. You only wear them 15 minutes in the morning and the night. They claim to increase height, but that's a total rip-off, but it does stimualate ideal digestion. I remember I was extremely skeptical when I first opened the package, with these 2 plastic insoles that looked like some kid in Pakistan glued them together for 23 cents. But even though I didn't gain a centimeter of height, my digestion is almost perfect to this day, and I owe it all to the insoles.

Solo
07-01-2008, 01:12 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tinydancer0417</b></i>

where did you get the insoles??</end quote></div>

I assume you are directing that inquiry my way since I brought up the insoles. I got them off the internet, they're called kimi insoles. You only wear them 15 minutes in the morning and the night. They claim to increase height, but that's a total rip-off, but it does stimualate ideal digestion. I remember I was extremely skeptical when I first opened the package, with these 2 plastic insoles that looked like some kid in Pakistan glued them together for 23 cents. But even though I didn't gain a centimeter of height, my digestion is almost perfect to this day, and I owe it all to the insoles.

Solo
07-01-2008, 01:12 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tinydancer0417</b></i>

where did you get the insoles??</end quote></div>

I assume you are directing that inquiry my way since I brought up the insoles. I got them off the internet, they're called kimi insoles. You only wear them 15 minutes in the morning and the night. They claim to increase height, but that's a total rip-off, but it does stimualate ideal digestion. I remember I was extremely skeptical when I first opened the package, with these 2 plastic insoles that looked like some kid in Pakistan glued them together for 23 cents. But even though I didn't gain a centimeter of height, my digestion is almost perfect to this day, and I owe it all to the insoles.

Solo
07-01-2008, 01:12 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tinydancer0417</b></i>

where did you get the insoles??</end quote>

I assume you are directing that inquiry my way since I brought up the insoles. I got them off the internet, they're called kimi insoles. You only wear them 15 minutes in the morning and the night. They claim to increase height, but that's a total rip-off, but it does stimualate ideal digestion. I remember I was extremely skeptical when I first opened the package, with these 2 plastic insoles that looked like some kid in Pakistan glued them together for 23 cents. But even though I didn't gain a centimeter of height, my digestion is almost perfect to this day, and I owe it all to the insoles.

Solo
07-01-2008, 01:12 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tinydancer0417</b></i>
<br />
<br />where did you get the insoles??</end quote>
<br />
<br />I assume you are directing that inquiry my way since I brought up the insoles. I got them off the internet, they're called kimi insoles. You only wear them 15 minutes in the morning and the night. They claim to increase height, but that's a total rip-off, but it does stimualate ideal digestion. I remember I was extremely skeptical when I first opened the package, with these 2 plastic insoles that looked like some kid in Pakistan glued them together for 23 cents. But even though I didn't gain a centimeter of height, my digestion is almost perfect to this day, and I owe it all to the insoles.

kendra03
07-03-2008, 08:08 PM
Hi, i'm kendra. i just joined this sight and have found it very helpful. In regards to alternative medicine, i really like chiropractic. it helps with my lungs and i really notice that my sinus are much more clear, also i really do not have stomach intestine problems like i did before going to a chiropactor. i also take a lot of supplements for loosening mucus and i changed my diet to gluten and diary free which really helps with the congestion. the only problem i ve encountered that i find hard to deal with outside of chiropractic, just part of CF , is managing hemoptotsis. in fact i was wondering if any one could possibly give me there thoughts on the subjuct, like what do you do when it happens (ER, rest for a few days, no big deal, etc,)How do you handle it mentally and what is the typical reponse -IV, meds etc Also could flying bring on an episode. i have flown twice since this happened and have been fine, but i am pregnant and going to mexico in 24 hours and am starting to worry, any one have some calming advice? .... i have never couphed up more than a 1/2 cup.
thanks so much for any imput ~kendra

kendra03
07-03-2008, 08:08 PM
Hi, i'm kendra. i just joined this sight and have found it very helpful. In regards to alternative medicine, i really like chiropractic. it helps with my lungs and i really notice that my sinus are much more clear, also i really do not have stomach intestine problems like i did before going to a chiropactor. i also take a lot of supplements for loosening mucus and i changed my diet to gluten and diary free which really helps with the congestion. the only problem i ve encountered that i find hard to deal with outside of chiropractic, just part of CF , is managing hemoptotsis. in fact i was wondering if any one could possibly give me there thoughts on the subjuct, like what do you do when it happens (ER, rest for a few days, no big deal, etc,)How do you handle it mentally and what is the typical reponse -IV, meds etc Also could flying bring on an episode. i have flown twice since this happened and have been fine, but i am pregnant and going to mexico in 24 hours and am starting to worry, any one have some calming advice? .... i have never couphed up more than a 1/2 cup.
thanks so much for any imput ~kendra

kendra03
07-03-2008, 08:08 PM
Hi, i'm kendra. i just joined this sight and have found it very helpful. In regards to alternative medicine, i really like chiropractic. it helps with my lungs and i really notice that my sinus are much more clear, also i really do not have stomach intestine problems like i did before going to a chiropactor. i also take a lot of supplements for loosening mucus and i changed my diet to gluten and diary free which really helps with the congestion. the only problem i ve encountered that i find hard to deal with outside of chiropractic, just part of CF , is managing hemoptotsis. in fact i was wondering if any one could possibly give me there thoughts on the subjuct, like what do you do when it happens (ER, rest for a few days, no big deal, etc,)How do you handle it mentally and what is the typical reponse -IV, meds etc Also could flying bring on an episode. i have flown twice since this happened and have been fine, but i am pregnant and going to mexico in 24 hours and am starting to worry, any one have some calming advice? .... i have never couphed up more than a 1/2 cup.
thanks so much for any imput ~kendra

kendra03
07-03-2008, 08:08 PM
Hi, i'm kendra. i just joined this sight and have found it very helpful. In regards to alternative medicine, i really like chiropractic. it helps with my lungs and i really notice that my sinus are much more clear, also i really do not have stomach intestine problems like i did before going to a chiropactor. i also take a lot of supplements for loosening mucus and i changed my diet to gluten and diary free which really helps with the congestion. the only problem i ve encountered that i find hard to deal with outside of chiropractic, just part of CF , is managing hemoptotsis. in fact i was wondering if any one could possibly give me there thoughts on the subjuct, like what do you do when it happens (ER, rest for a few days, no big deal, etc,)How do you handle it mentally and what is the typical reponse -IV, meds etc Also could flying bring on an episode. i have flown twice since this happened and have been fine, but i am pregnant and going to mexico in 24 hours and am starting to worry, any one have some calming advice? .... i have never couphed up more than a 1/2 cup.
thanks so much for any imput ~kendra

kendra03
07-03-2008, 08:08 PM
Hi, i'm kendra. i just joined this sight and have found it very helpful. In regards to alternative medicine, i really like chiropractic. it helps with my lungs and i really notice that my sinus are much more clear, also i really do not have stomach intestine problems like i did before going to a chiropactor. i also take a lot of supplements for loosening mucus and i changed my diet to gluten and diary free which really helps with the congestion. the only problem i ve encountered that i find hard to deal with outside of chiropractic, just part of CF , is managing hemoptotsis. in fact i was wondering if any one could possibly give me there thoughts on the subjuct, like what do you do when it happens (ER, rest for a few days, no big deal, etc,)How do you handle it mentally and what is the typical reponse -IV, meds etc Also could flying bring on an episode. i have flown twice since this happened and have been fine, but i am pregnant and going to mexico in 24 hours and am starting to worry, any one have some calming advice? .... i have never couphed up more than a 1/2 cup.
<br />thanks so much for any imput ~kendra

mysterygrl19
07-05-2008, 02:46 PM
I tried accupuncture and herbal supplements and teas(given to me by the accupuncturist) when I was 17. I only went to therapy for about three months (it got to be pretty expensive) and I never really noticed any direct effect on any of my CF related symptoms. However, by the last few sessions, the relaxing effect was so nice I fell asleep!
--Heather19 w/cf; CFRD

mysterygrl19
07-05-2008, 02:46 PM
I tried accupuncture and herbal supplements and teas(given to me by the accupuncturist) when I was 17. I only went to therapy for about three months (it got to be pretty expensive) and I never really noticed any direct effect on any of my CF related symptoms. However, by the last few sessions, the relaxing effect was so nice I fell asleep!
--Heather19 w/cf; CFRD

mysterygrl19
07-05-2008, 02:46 PM
I tried accupuncture and herbal supplements and teas(given to me by the accupuncturist) when I was 17. I only went to therapy for about three months (it got to be pretty expensive) and I never really noticed any direct effect on any of my CF related symptoms. However, by the last few sessions, the relaxing effect was so nice I fell asleep!
--Heather19 w/cf; CFRD

mysterygrl19
07-05-2008, 02:46 PM
I tried accupuncture and herbal supplements and teas(given to me by the accupuncturist) when I was 17. I only went to therapy for about three months (it got to be pretty expensive) and I never really noticed any direct effect on any of my CF related symptoms. However, by the last few sessions, the relaxing effect was so nice I fell asleep!
--Heather19 w/cf; CFRD

mysterygrl19
07-05-2008, 02:46 PM
I tried accupuncture and herbal supplements and teas(given to me by the accupuncturist) when I was 17. I only went to therapy for about three months (it got to be pretty expensive) and I never really noticed any direct effect on any of my CF related symptoms. However, by the last few sessions, the relaxing effect was so nice I fell asleep!
<br />--Heather19 w/cf; CFRD

Sweetness81
07-25-2008, 04:06 AM
I have discovered that melatonin along with regular sleep meds have helped me fall asleep more deeply, and the sleep meds help me stay asleep. and for anyone who has the kidney problem with cf. I have found that taking cranberry capsules can help with urinary tract issues. I have to take more than normal dosage of course, but talk to the doctor for specifics.

Sweetness

Sweetness81
07-25-2008, 04:06 AM
I have discovered that melatonin along with regular sleep meds have helped me fall asleep more deeply, and the sleep meds help me stay asleep. and for anyone who has the kidney problem with cf. I have found that taking cranberry capsules can help with urinary tract issues. I have to take more than normal dosage of course, but talk to the doctor for specifics.

Sweetness

Sweetness81
07-25-2008, 04:06 AM
I have discovered that melatonin along with regular sleep meds have helped me fall asleep more deeply, and the sleep meds help me stay asleep. and for anyone who has the kidney problem with cf. I have found that taking cranberry capsules can help with urinary tract issues. I have to take more than normal dosage of course, but talk to the doctor for specifics.

Sweetness

Sweetness81
07-25-2008, 04:06 AM
I have discovered that melatonin along with regular sleep meds have helped me fall asleep more deeply, and the sleep meds help me stay asleep. and for anyone who has the kidney problem with cf. I have found that taking cranberry capsules can help with urinary tract issues. I have to take more than normal dosage of course, but talk to the doctor for specifics.

Sweetness

Sweetness81
07-25-2008, 04:06 AM
I have discovered that melatonin along with regular sleep meds have helped me fall asleep more deeply, and the sleep meds help me stay asleep. and for anyone who has the kidney problem with cf. I have found that taking cranberry capsules can help with urinary tract issues. I have to take more than normal dosage of course, but talk to the doctor for specifics.
<br />
<br />Sweetness

MicheleGazelle
07-27-2008, 04:32 PM
I've taken a lot of herbs and supplements and made lifestyle changes. It has helped me get off the prescription drugs I used to be on and generally feel better.

MicheleGazelle
07-27-2008, 04:32 PM
I've taken a lot of herbs and supplements and made lifestyle changes. It has helped me get off the prescription drugs I used to be on and generally feel better.

MicheleGazelle
07-27-2008, 04:32 PM
I've taken a lot of herbs and supplements and made lifestyle changes. It has helped me get off the prescription drugs I used to be on and generally feel better.

MicheleGazelle
07-27-2008, 04:32 PM
I've taken a lot of herbs and supplements and made lifestyle changes. It has helped me get off the prescription drugs I used to be on and generally feel better.

MicheleGazelle
07-27-2008, 04:32 PM
I've taken a lot of herbs and supplements and made lifestyle changes. It has helped me get off the prescription drugs I used to be on and generally feel better.

Meleah
07-30-2008, 02:40 AM
I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.

Meleah
07-30-2008, 02:40 AM
I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.

Meleah
07-30-2008, 02:40 AM
I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.

Meleah
07-30-2008, 02:40 AM
I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.

Meleah
07-30-2008, 02:40 AM
I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.

MicheleGazelle
07-30-2008, 04:37 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Meleah</b></i>

I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.</end quote></div>

Something I have read about kidney stones:

<div class="FTQUOTE"><begin quote>Instead of a diet (low oxalate) that restricts lots of nutritious fruits and vegetables, just increase the B6, preferably as P5P. Oxalic acid remains high as long as B6 is deficient.

B6 should always be given with magnesium, as increasing B6 increases the need for magnesium and sometimes bedwetting will result unless the magnesium is high enough.
</end quote></div>
This makes perfect sense to me since I have to take a lot of B-vitamins to stay well with CF and because so many of the drugs pwcf take depletes (or competes with) magnesium. Fevers, heat treatments, sweating at high rates -- all these things deplete B-vitamins.

<b>Supporting articles:</b>

<a target=_blank class=ftalternatingbarlinklarge href="http://findarticles.com/p/articles/mi_m0ISW/is_267/ai_n15677755">Magnesium and vitamin B6 for kidney stone prevention</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drhoffman.com/page.cfm/552">Kidney stones: treatment and prevention</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.revolutionhealth.com/conditions/kidney-bladder/kidney-stones/diet?section=section_05">Kidney Stones: Vitamins that may be helpful</a>

I'm not a medical professional, but it seems to me that if you take the right vitamins to prevent kidney stones, you ought to be able to safely return to the healthy diet that worked so well for you before.

I don't eat a gluten-free, dairy-free diet so I can't help you with that question. I do eat less meat than the average american. Some of the stuff I eat is listed on my website.

Good luck with this.

MicheleGazelle
07-30-2008, 04:37 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Meleah</b></i>

I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.</end quote></div>

Something I have read about kidney stones:

<div class="FTQUOTE"><begin quote>Instead of a diet (low oxalate) that restricts lots of nutritious fruits and vegetables, just increase the B6, preferably as P5P. Oxalic acid remains high as long as B6 is deficient.

B6 should always be given with magnesium, as increasing B6 increases the need for magnesium and sometimes bedwetting will result unless the magnesium is high enough.
</end quote></div>
This makes perfect sense to me since I have to take a lot of B-vitamins to stay well with CF and because so many of the drugs pwcf take depletes (or competes with) magnesium. Fevers, heat treatments, sweating at high rates -- all these things deplete B-vitamins.

<b>Supporting articles:</b>

<a target=_blank class=ftalternatingbarlinklarge href="http://findarticles.com/p/articles/mi_m0ISW/is_267/ai_n15677755">Magnesium and vitamin B6 for kidney stone prevention</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drhoffman.com/page.cfm/552">Kidney stones: treatment and prevention</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.revolutionhealth.com/conditions/kidney-bladder/kidney-stones/diet?section=section_05">Kidney Stones: Vitamins that may be helpful</a>

I'm not a medical professional, but it seems to me that if you take the right vitamins to prevent kidney stones, you ought to be able to safely return to the healthy diet that worked so well for you before.

I don't eat a gluten-free, dairy-free diet so I can't help you with that question. I do eat less meat than the average american. Some of the stuff I eat is listed on my website.

Good luck with this.

MicheleGazelle
07-30-2008, 04:37 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Meleah</b></i>

I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.</end quote></div>

Something I have read about kidney stones:

<div class="FTQUOTE"><begin quote>Instead of a diet (low oxalate) that restricts lots of nutritious fruits and vegetables, just increase the B6, preferably as P5P. Oxalic acid remains high as long as B6 is deficient.

B6 should always be given with magnesium, as increasing B6 increases the need for magnesium and sometimes bedwetting will result unless the magnesium is high enough.
</end quote></div>
This makes perfect sense to me since I have to take a lot of B-vitamins to stay well with CF and because so many of the drugs pwcf take depletes (or competes with) magnesium. Fevers, heat treatments, sweating at high rates -- all these things deplete B-vitamins.

<b>Supporting articles:</b>

<a target=_blank class=ftalternatingbarlinklarge href="http://findarticles.com/p/articles/mi_m0ISW/is_267/ai_n15677755">Magnesium and vitamin B6 for kidney stone prevention</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drhoffman.com/page.cfm/552">Kidney stones: treatment and prevention</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.revolutionhealth.com/conditions/kidney-bladder/kidney-stones/diet?section=section_05">Kidney Stones: Vitamins that may be helpful</a>

I'm not a medical professional, but it seems to me that if you take the right vitamins to prevent kidney stones, you ought to be able to safely return to the healthy diet that worked so well for you before.

I don't eat a gluten-free, dairy-free diet so I can't help you with that question. I do eat less meat than the average american. Some of the stuff I eat is listed on my website.

Good luck with this.

MicheleGazelle
07-30-2008, 04:37 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Meleah</b></i>

I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.</end quote>

Something I have read about kidney stones:

<div class="FTQUOTE"><begin quote>Instead of a diet (low oxalate) that restricts lots of nutritious fruits and vegetables, just increase the B6, preferably as P5P. Oxalic acid remains high as long as B6 is deficient.

B6 should always be given with magnesium, as increasing B6 increases the need for magnesium and sometimes bedwetting will result unless the magnesium is high enough.
</end quote>
This makes perfect sense to me since I have to take a lot of B-vitamins to stay well with CF and because so many of the drugs pwcf take depletes (or competes with) magnesium. Fevers, heat treatments, sweating at high rates -- all these things deplete B-vitamins.

<b>Supporting articles:</b>

<a target=_blank class=ftalternatingbarlinklarge href="http://findarticles.com/p/articles/mi_m0ISW/is_267/ai_n15677755">Magnesium and vitamin B6 for kidney stone prevention</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.drhoffman.com/page.cfm/552">Kidney stones: treatment and prevention</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.revolutionhealth.com/conditions/kidney-bladder/kidney-stones/diet?section=section_05">Kidney Stones: Vitamins that may be helpful</a>

I'm not a medical professional, but it seems to me that if you take the right vitamins to prevent kidney stones, you ought to be able to safely return to the healthy diet that worked so well for you before.

I don't eat a gluten-free, dairy-free diet so I can't help you with that question. I do eat less meat than the average american. Some of the stuff I eat is listed on my website.

Good luck with this.

MicheleGazelle
07-30-2008, 04:37 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Meleah</b></i>
<br />
<br />I am 21 with CF. I am 5" 6' and weigh 115 lbs. Although my weight is OK at the moment I am on a horribly fatty diet and my nutritionist has me drinking skandishakes. This high fat diet makes me feel disgusting and my intestines are always a mess. I was a vegetarian for 4 or 5 years before this and felt great. I had to stop when I started getting kidney stones because my dr. told me to stay away from oxolates which means I must exclude nuts,beans, soy, and leafy greens from my diet. I tried to stay vegetarian but I lost too much wieght. I don't know what to do! How do those of you on the gluten free dairy free diets keep your weight up? Does anyone else have problems with oxolates? I would love to become vegetarian or even vegan again.</end quote>
<br />
<br />Something I have read about kidney stones:
<br />
<br /><div class="FTQUOTE"><begin quote>Instead of a diet (low oxalate) that restricts lots of nutritious fruits and vegetables, just increase the B6, preferably as P5P. Oxalic acid remains high as long as B6 is deficient.
<br />
<br />B6 should always be given with magnesium, as increasing B6 increases the need for magnesium and sometimes bedwetting will result unless the magnesium is high enough.
<br /></end quote>
<br />This makes perfect sense to me since I have to take a lot of B-vitamins to stay well with CF and because so many of the drugs pwcf take depletes (or competes with) magnesium. Fevers, heat treatments, sweating at high rates -- all these things deplete B-vitamins.
<br />
<br /><b>Supporting articles:</b>
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://findarticles.com/p/articles/mi_m0ISW/is_267/ai_n15677755">Magnesium and vitamin B6 for kidney stone prevention</a>
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.drhoffman.com/page.cfm/552">Kidney stones: treatment and prevention</a>
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.revolutionhealth.com/conditions/kidney-bladder/kidney-stones/diet?section=section_05">Kidney Stones: Vitamins that may be helpful</a>
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<br />I'm not a medical professional, but it seems to me that if you take the right vitamins to prevent kidney stones, you ought to be able to safely return to the healthy diet that worked so well for you before.
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<br />I don't eat a gluten-free, dairy-free diet so I can't help you with that question. I do eat less meat than the average american. Some of the stuff I eat is listed on my website.
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<br />Good luck with this.

PeacefulWarrior
07-31-2008, 06:44 PM
Hey this is to Meleah I'm not sure how this works exactly but I am 5'6 21 and flux between 150-160 (male) anyways i alot less before i started weight training. I'm still searchin for an answer on improving lung capacity but as far as improving weight i've found scandishakes are ok i guess but what gave me weight was muscle training. Then stick to protein i do alot of whey and keep up the fatty acids (i do tablets of omega) .. then i eat meat when i want to or feel like it same with the scandi shakes but i have 110+ grams of protein a day with greens and i can monitar my weight by my amount of physical activity/protein and meat intake. I know your not lookin to bulk up but you wont unless ur takin anabolics and the heavy breathing while working out naturally somewhat improves lung functions. Anyways hope that somewhat helps .. just what i do talk to ur doc first but whenever im not feelin well its cus ive started to slack in physical excercise and then i have to start takin supplements ... if you wanna chat about excercises or whatever let me know (ps most say half your weight should be around the amount of protein you take in so in your case close to 60 but with cf its 3/4 so like maybe 90 and if your workn out maybe 95 ... monitar how you feel and go on that and check with ur doc all that blah blah <img src="i/expressions/face-icon-small-tongue.gif" border="0">)
PS anyone whos reading this and knows anything further on the Accupuncture, Reflexology, Qigong, Tai Chi or Foreign Countries CF healthcare please hit me back

PeacefulWarrior
07-31-2008, 06:44 PM
Hey this is to Meleah I'm not sure how this works exactly but I am 5'6 21 and flux between 150-160 (male) anyways i alot less before i started weight training. I'm still searchin for an answer on improving lung capacity but as far as improving weight i've found scandishakes are ok i guess but what gave me weight was muscle training. Then stick to protein i do alot of whey and keep up the fatty acids (i do tablets of omega) .. then i eat meat when i want to or feel like it same with the scandi shakes but i have 110+ grams of protein a day with greens and i can monitar my weight by my amount of physical activity/protein and meat intake. I know your not lookin to bulk up but you wont unless ur takin anabolics and the heavy breathing while working out naturally somewhat improves lung functions. Anyways hope that somewhat helps .. just what i do talk to ur doc first but whenever im not feelin well its cus ive started to slack in physical excercise and then i have to start takin supplements ... if you wanna chat about excercises or whatever let me know (ps most say half your weight should be around the amount of protein you take in so in your case close to 60 but with cf its 3/4 so like maybe 90 and if your workn out maybe 95 ... monitar how you feel and go on that and check with ur doc all that blah blah <img src="i/expressions/face-icon-small-tongue.gif" border="0">)
PS anyone whos reading this and knows anything further on the Accupuncture, Reflexology, Qigong, Tai Chi or Foreign Countries CF healthcare please hit me back

PeacefulWarrior
07-31-2008, 06:44 PM
Hey this is to Meleah I'm not sure how this works exactly but I am 5'6 21 and flux between 150-160 (male) anyways i alot less before i started weight training. I'm still searchin for an answer on improving lung capacity but as far as improving weight i've found scandishakes are ok i guess but what gave me weight was muscle training. Then stick to protein i do alot of whey and keep up the fatty acids (i do tablets of omega) .. then i eat meat when i want to or feel like it same with the scandi shakes but i have 110+ grams of protein a day with greens and i can monitar my weight by my amount of physical activity/protein and meat intake. I know your not lookin to bulk up but you wont unless ur takin anabolics and the heavy breathing while working out naturally somewhat improves lung functions. Anyways hope that somewhat helps .. just what i do talk to ur doc first but whenever im not feelin well its cus ive started to slack in physical excercise and then i have to start takin supplements ... if you wanna chat about excercises or whatever let me know (ps most say half your weight should be around the amount of protein you take in so in your case close to 60 but with cf its 3/4 so like maybe 90 and if your workn out maybe 95 ... monitar how you feel and go on that and check with ur doc all that blah blah <img src="i/expressions/face-icon-small-tongue.gif" border="0">)
PS anyone whos reading this and knows anything further on the Accupuncture, Reflexology, Qigong, Tai Chi or Foreign Countries CF healthcare please hit me back

PeacefulWarrior
07-31-2008, 06:44 PM
Hey this is to Meleah I'm not sure how this works exactly but I am 5'6 21 and flux between 150-160 (male) anyways i alot less before i started weight training. I'm still searchin for an answer on improving lung capacity but as far as improving weight i've found scandishakes are ok i guess but what gave me weight was muscle training. Then stick to protein i do alot of whey and keep up the fatty acids (i do tablets of omega) .. then i eat meat when i want to or feel like it same with the scandi shakes but i have 110+ grams of protein a day with greens and i can monitar my weight by my amount of physical activity/protein and meat intake. I know your not lookin to bulk up but you wont unless ur takin anabolics and the heavy breathing while working out naturally somewhat improves lung functions. Anyways hope that somewhat helps .. just what i do talk to ur doc first but whenever im not feelin well its cus ive started to slack in physical excercise and then i have to start takin supplements ... if you wanna chat about excercises or whatever let me know (ps most say half your weight should be around the amount of protein you take in so in your case close to 60 but with cf its 3/4 so like maybe 90 and if your workn out maybe 95 ... monitar how you feel and go on that and check with ur doc all that blah blah <img src="i/expressions/face-icon-small-tongue.gif" border="0">)
PS anyone whos reading this and knows anything further on the Accupuncture, Reflexology, Qigong, Tai Chi or Foreign Countries CF healthcare please hit me back

PeacefulWarrior
07-31-2008, 06:44 PM
Hey this is to Meleah I'm not sure how this works exactly but I am 5'6 21 and flux between 150-160 (male) anyways i alot less before i started weight training. I'm still searchin for an answer on improving lung capacity but as far as improving weight i've found scandishakes are ok i guess but what gave me weight was muscle training. Then stick to protein i do alot of whey and keep up the fatty acids (i do tablets of omega) .. then i eat meat when i want to or feel like it same with the scandi shakes but i have 110+ grams of protein a day with greens and i can monitar my weight by my amount of physical activity/protein and meat intake. I know your not lookin to bulk up but you wont unless ur takin anabolics and the heavy breathing while working out naturally somewhat improves lung functions. Anyways hope that somewhat helps .. just what i do talk to ur doc first but whenever im not feelin well its cus ive started to slack in physical excercise and then i have to start takin supplements ... if you wanna chat about excercises or whatever let me know (ps most say half your weight should be around the amount of protein you take in so in your case close to 60 but with cf its 3/4 so like maybe 90 and if your workn out maybe 95 ... monitar how you feel and go on that and check with ur doc all that blah blah <img src="i/expressions/face-icon-small-tongue.gif" border="0">)
<br />PS anyone whos reading this and knows anything further on the Accupuncture, Reflexology, Qigong, Tai Chi or Foreign Countries CF healthcare please hit me back