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annieop86
10-13-2007, 05:59 AM
My name is Annie I am a 21 year old college student and have lived with cystic fibrosis all of my life. I was also diagnosed with diabetes (caused by the cystic fibrosis) when I was 13. Growing up I was a fairly healthy child (comparatively speaking) however over the past 4 years my health has slowly deteriorated. I just got out of the hospital a little over a week ago and after a more then trying hospital stay in which I seemed to battle medical bureaucracy more so then my actual disease and lung infection I have decided enough is enough. I want to take my own medical care into my hands. I am tired of being so damn depressed about being sick and I just want to get better, at least as healthy as I can considering my afflictions.

The reason I am posting this message is for two fold:
1) I am looking for anyone who can give me some advice on alternative medicines and therapies they have tried. Herbs, therapies , foods anything you can think of.
2) I am looking for overall support. I don't know too many people with CF nor do I know many people who have dealt with what I am dealing with. I know I need a better support group when it comes to this and I have come to realize no own is going to help me but me.

I really appreciate you taking the time out and reading my concerns and I hope whomever reads this is doing well them selves.

The easiest way to get a hold of me is via e-mail. Thanks so much for all your help, sending all my love and best wishes out to the online universe.
Hope to speak to you soon,
-Annie
[email protected]<img src="i/expressions/nosepick.gif" border="0">

annieop86
10-13-2007, 05:59 AM
My name is Annie I am a 21 year old college student and have lived with cystic fibrosis all of my life. I was also diagnosed with diabetes (caused by the cystic fibrosis) when I was 13. Growing up I was a fairly healthy child (comparatively speaking) however over the past 4 years my health has slowly deteriorated. I just got out of the hospital a little over a week ago and after a more then trying hospital stay in which I seemed to battle medical bureaucracy more so then my actual disease and lung infection I have decided enough is enough. I want to take my own medical care into my hands. I am tired of being so damn depressed about being sick and I just want to get better, at least as healthy as I can considering my afflictions.

The reason I am posting this message is for two fold:
1) I am looking for anyone who can give me some advice on alternative medicines and therapies they have tried. Herbs, therapies , foods anything you can think of.
2) I am looking for overall support. I don't know too many people with CF nor do I know many people who have dealt with what I am dealing with. I know I need a better support group when it comes to this and I have come to realize no own is going to help me but me.

I really appreciate you taking the time out and reading my concerns and I hope whomever reads this is doing well them selves.

The easiest way to get a hold of me is via e-mail. Thanks so much for all your help, sending all my love and best wishes out to the online universe.
Hope to speak to you soon,
-Annie
[email protected]<img src="i/expressions/nosepick.gif" border="0">

annieop86
10-13-2007, 05:59 AM
My name is Annie I am a 21 year old college student and have lived with cystic fibrosis all of my life. I was also diagnosed with diabetes (caused by the cystic fibrosis) when I was 13. Growing up I was a fairly healthy child (comparatively speaking) however over the past 4 years my health has slowly deteriorated. I just got out of the hospital a little over a week ago and after a more then trying hospital stay in which I seemed to battle medical bureaucracy more so then my actual disease and lung infection I have decided enough is enough. I want to take my own medical care into my hands. I am tired of being so damn depressed about being sick and I just want to get better, at least as healthy as I can considering my afflictions.

The reason I am posting this message is for two fold:
1) I am looking for anyone who can give me some advice on alternative medicines and therapies they have tried. Herbs, therapies , foods anything you can think of.
2) I am looking for overall support. I don't know too many people with CF nor do I know many people who have dealt with what I am dealing with. I know I need a better support group when it comes to this and I have come to realize no own is going to help me but me.

I really appreciate you taking the time out and reading my concerns and I hope whomever reads this is doing well them selves.

The easiest way to get a hold of me is via e-mail. Thanks so much for all your help, sending all my love and best wishes out to the online universe.
Hope to speak to you soon,
-Annie
[email protected]<img src="i/expressions/nosepick.gif" border="0">

annieop86
10-13-2007, 05:59 AM
My name is Annie I am a 21 year old college student and have lived with cystic fibrosis all of my life. I was also diagnosed with diabetes (caused by the cystic fibrosis) when I was 13. Growing up I was a fairly healthy child (comparatively speaking) however over the past 4 years my health has slowly deteriorated. I just got out of the hospital a little over a week ago and after a more then trying hospital stay in which I seemed to battle medical bureaucracy more so then my actual disease and lung infection I have decided enough is enough. I want to take my own medical care into my hands. I am tired of being so damn depressed about being sick and I just want to get better, at least as healthy as I can considering my afflictions.

The reason I am posting this message is for two fold:
1) I am looking for anyone who can give me some advice on alternative medicines and therapies they have tried. Herbs, therapies , foods anything you can think of.
2) I am looking for overall support. I don't know too many people with CF nor do I know many people who have dealt with what I am dealing with. I know I need a better support group when it comes to this and I have come to realize no own is going to help me but me.

I really appreciate you taking the time out and reading my concerns and I hope whomever reads this is doing well them selves.

The easiest way to get a hold of me is via e-mail. Thanks so much for all your help, sending all my love and best wishes out to the online universe.
Hope to speak to you soon,
-Annie
[email protected]<img src="i/expressions/nosepick.gif" border="0">

annieop86
10-13-2007, 05:59 AM
My name is Annie I am a 21 year old college student and have lived with cystic fibrosis all of my life. I was also diagnosed with diabetes (caused by the cystic fibrosis) when I was 13. Growing up I was a fairly healthy child (comparatively speaking) however over the past 4 years my health has slowly deteriorated. I just got out of the hospital a little over a week ago and after a more then trying hospital stay in which I seemed to battle medical bureaucracy more so then my actual disease and lung infection I have decided enough is enough. I want to take my own medical care into my hands. I am tired of being so damn depressed about being sick and I just want to get better, at least as healthy as I can considering my afflictions.

The reason I am posting this message is for two fold:
1) I am looking for anyone who can give me some advice on alternative medicines and therapies they have tried. Herbs, therapies , foods anything you can think of.
2) I am looking for overall support. I don't know too many people with CF nor do I know many people who have dealt with what I am dealing with. I know I need a better support group when it comes to this and I have come to realize no own is going to help me but me.

I really appreciate you taking the time out and reading my concerns and I hope whomever reads this is doing well them selves.

The easiest way to get a hold of me is via e-mail. Thanks so much for all your help, sending all my love and best wishes out to the online universe.
Hope to speak to you soon,
-Annie
[email protected]<img src="i/expressions/nosepick.gif" border="0">

thefrogprincess
10-13-2007, 03:49 PM
HI Annie, and welcome. I hope that you find the support you are looking for here. There are quite a few people on here who use a variety of herbs and suppliments for their CF. Personally I already take so many vitamins that my stomach has a hard time keeping them in there without getting sick.

I have tried accupuncture though. I started going for a nagging pain in my back, but the Dr. treated me for my lung problems, headaches, and depression as well. I loved it. I felt so good after each session. I was coughing up more stuff, my energy was better, it was great.

thefrogprincess
10-13-2007, 03:49 PM
HI Annie, and welcome. I hope that you find the support you are looking for here. There are quite a few people on here who use a variety of herbs and suppliments for their CF. Personally I already take so many vitamins that my stomach has a hard time keeping them in there without getting sick.

I have tried accupuncture though. I started going for a nagging pain in my back, but the Dr. treated me for my lung problems, headaches, and depression as well. I loved it. I felt so good after each session. I was coughing up more stuff, my energy was better, it was great.

thefrogprincess
10-13-2007, 03:49 PM
HI Annie, and welcome. I hope that you find the support you are looking for here. There are quite a few people on here who use a variety of herbs and suppliments for their CF. Personally I already take so many vitamins that my stomach has a hard time keeping them in there without getting sick.

I have tried accupuncture though. I started going for a nagging pain in my back, but the Dr. treated me for my lung problems, headaches, and depression as well. I loved it. I felt so good after each session. I was coughing up more stuff, my energy was better, it was great.

thefrogprincess
10-13-2007, 03:49 PM
HI Annie, and welcome. I hope that you find the support you are looking for here. There are quite a few people on here who use a variety of herbs and suppliments for their CF. Personally I already take so many vitamins that my stomach has a hard time keeping them in there without getting sick.

I have tried accupuncture though. I started going for a nagging pain in my back, but the Dr. treated me for my lung problems, headaches, and depression as well. I loved it. I felt so good after each session. I was coughing up more stuff, my energy was better, it was great.

thefrogprincess
10-13-2007, 03:49 PM
HI Annie, and welcome. I hope that you find the support you are looking for here. There are quite a few people on here who use a variety of herbs and suppliments for their CF. Personally I already take so many vitamins that my stomach has a hard time keeping them in there without getting sick.

I have tried accupuncture though. I started going for a nagging pain in my back, but the Dr. treated me for my lung problems, headaches, and depression as well. I loved it. I felt so good after each session. I was coughing up more stuff, my energy was better, it was great.

rotandroll
10-14-2007, 12:30 AM
Annie, I am sending you an email right now. Welcome to the forums.

rotandroll
10-14-2007, 12:30 AM
Annie, I am sending you an email right now. Welcome to the forums.

rotandroll
10-14-2007, 12:30 AM
Annie, I am sending you an email right now. Welcome to the forums.

rotandroll
10-14-2007, 12:30 AM
Annie, I am sending you an email right now. Welcome to the forums.

rotandroll
10-14-2007, 12:30 AM
Annie, I am sending you an email right now. Welcome to the forums.

hopesiris
10-15-2007, 12:08 PM
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hopesiris
10-15-2007, 12:08 PM
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hopesiris
10-15-2007, 12:08 PM
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hopesiris
10-15-2007, 12:08 PM
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hopesiris
10-15-2007, 12:08 PM
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JORDYSMOM
10-15-2007, 01:09 PM
Hi Anne & welcome to the site. There is much support and information to be found here.

I think that diet and exercise are the two things that have helped my son the most. He is "a-typical" and "mild". He has developed more lung involvement over the past couple of years, but I guess progression is to be expected. Overall, I think he is the healthiest he's ever been. He drinks a cup of coffee each morning. (he is 17yo) It really helps him open up in the mornings. He works out atleast 5 days a week. He takes a weight training class at school, but he also works out at home. He has been able to gain muscle and the exercise has made a big difference in his energy level.

Of course we have an awesome pulmo, but the increased BMI really lets the maintenance drugs do their job.

Stacey

JORDYSMOM
10-15-2007, 01:09 PM
Hi Anne & welcome to the site. There is much support and information to be found here.

I think that diet and exercise are the two things that have helped my son the most. He is "a-typical" and "mild". He has developed more lung involvement over the past couple of years, but I guess progression is to be expected. Overall, I think he is the healthiest he's ever been. He drinks a cup of coffee each morning. (he is 17yo) It really helps him open up in the mornings. He works out atleast 5 days a week. He takes a weight training class at school, but he also works out at home. He has been able to gain muscle and the exercise has made a big difference in his energy level.

Of course we have an awesome pulmo, but the increased BMI really lets the maintenance drugs do their job.

Stacey

JORDYSMOM
10-15-2007, 01:09 PM
Hi Anne & welcome to the site. There is much support and information to be found here.

I think that diet and exercise are the two things that have helped my son the most. He is "a-typical" and "mild". He has developed more lung involvement over the past couple of years, but I guess progression is to be expected. Overall, I think he is the healthiest he's ever been. He drinks a cup of coffee each morning. (he is 17yo) It really helps him open up in the mornings. He works out atleast 5 days a week. He takes a weight training class at school, but he also works out at home. He has been able to gain muscle and the exercise has made a big difference in his energy level.

Of course we have an awesome pulmo, but the increased BMI really lets the maintenance drugs do their job.

Stacey

JORDYSMOM
10-15-2007, 01:09 PM
Hi Anne & welcome to the site. There is much support and information to be found here.

I think that diet and exercise are the two things that have helped my son the most. He is "a-typical" and "mild". He has developed more lung involvement over the past couple of years, but I guess progression is to be expected. Overall, I think he is the healthiest he's ever been. He drinks a cup of coffee each morning. (he is 17yo) It really helps him open up in the mornings. He works out atleast 5 days a week. He takes a weight training class at school, but he also works out at home. He has been able to gain muscle and the exercise has made a big difference in his energy level.

Of course we have an awesome pulmo, but the increased BMI really lets the maintenance drugs do their job.

Stacey

JORDYSMOM
10-15-2007, 01:09 PM
Hi Anne & welcome to the site. There is much support and information to be found here.

I think that diet and exercise are the two things that have helped my son the most. He is "a-typical" and "mild". He has developed more lung involvement over the past couple of years, but I guess progression is to be expected. Overall, I think he is the healthiest he's ever been. He drinks a cup of coffee each morning. (he is 17yo) It really helps him open up in the mornings. He works out atleast 5 days a week. He takes a weight training class at school, but he also works out at home. He has been able to gain muscle and the exercise has made a big difference in his energy level.

Of course we have an awesome pulmo, but the increased BMI really lets the maintenance drugs do their job.

Stacey

EnergyGal
10-16-2007, 01:07 PM
I forgot to tell you about this website
<a target=_blank class=ftalternatingbarlinklarge href="http://cfnutrition4life.com
">http://cfnutrition4life.com
</a>
Check it out. Great recipes too.

<a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.com/personal_stories_full.cfm?article_id=100033
">http://cysticfibrosis.com/pers...cfm?article_id=100033
</a>
I think the most important thing that anyone can do for their cf is getting all the mucus out daily. That would be my main focus, then eating healthy and getting exericse. If you can focus on all of these daily, then you are doing a great job.

Energy medicine is helpful in between everything else. You can practice EM techniques during cf therapy.

We are a very complex system!

Focus on the positive when you can!

EnergyGal
10-16-2007, 01:07 PM
I forgot to tell you about this website
<a target=_blank class=ftalternatingbarlinklarge href="http://cfnutrition4life.com
">http://cfnutrition4life.com
</a>
Check it out. Great recipes too.

<a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.com/personal_stories_full.cfm?article_id=100033
">http://cysticfibrosis.com/pers...cfm?article_id=100033
</a>
I think the most important thing that anyone can do for their cf is getting all the mucus out daily. That would be my main focus, then eating healthy and getting exericse. If you can focus on all of these daily, then you are doing a great job.

Energy medicine is helpful in between everything else. You can practice EM techniques during cf therapy.

We are a very complex system!

Focus on the positive when you can!

EnergyGal
10-16-2007, 01:07 PM
I forgot to tell you about this website
<a target=_blank class=ftalternatingbarlinklarge href="http://cfnutrition4life.com
">http://cfnutrition4life.com
</a>
Check it out. Great recipes too.

<a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.com/personal_stories_full.cfm?article_id=100033
">http://cysticfibrosis.com/pers...cfm?article_id=100033
</a>
I think the most important thing that anyone can do for their cf is getting all the mucus out daily. That would be my main focus, then eating healthy and getting exericse. If you can focus on all of these daily, then you are doing a great job.

Energy medicine is helpful in between everything else. You can practice EM techniques during cf therapy.

We are a very complex system!

Focus on the positive when you can!

EnergyGal
10-16-2007, 01:07 PM
I forgot to tell you about this website
<a target=_blank class=ftalternatingbarlinklarge href="http://cfnutrition4life.com
">http://cfnutrition4life.com
</a>
Check it out. Great recipes too.

<a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.com/personal_stories_full.cfm?article_id=100033
">http://cysticfibrosis.com/pers...cfm?article_id=100033
</a>
I think the most important thing that anyone can do for their cf is getting all the mucus out daily. That would be my main focus, then eating healthy and getting exericse. If you can focus on all of these daily, then you are doing a great job.

Energy medicine is helpful in between everything else. You can practice EM techniques during cf therapy.

We are a very complex system!

Focus on the positive when you can!

EnergyGal
10-16-2007, 01:07 PM
I forgot to tell you about this website
<a target=_blank class=ftalternatingbarlinklarge href="http://cfnutrition4life.com
">http://cfnutrition4life.com
</a>
Check it out. Great recipes too.

<a target=_blank class=ftalternatingbarlinklarge href="http://cysticfibrosis.com/personal_stories_full.cfm?article_id=100033
">http://cysticfibrosis.com/pers...cfm?article_id=100033
</a>
I think the most important thing that anyone can do for their cf is getting all the mucus out daily. That would be my main focus, then eating healthy and getting exericse. If you can focus on all of these daily, then you are doing a great job.

Energy medicine is helpful in between everything else. You can practice EM techniques during cf therapy.

We are a very complex system!

Focus on the positive when you can!