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Thread: My Church

  1. #1
    Administrator
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    My Church

    This community is my church, but on Sundays and sometimes during the week, I attend CHURCH services at Marble Collegiate Church in NYC. Peter is a deacon there and I belong to small groups and I've grown close to the ladies in the group and they teach me how to pray. One, even donated an iPad to our non profit.
    They pray for us.

    Today, it seems here at cysticfibrosis.com and in the US we have a lot to wonder and pray about.
    My Church has live streaming....10 Am ET Sr Carol Perry a Roman Catholic nun, will continue us on the Advent journey, 11:00 we have a beautiful service. This is the church of Positive Thinking, Norman Vincent Peale in the mid century) Michael Brown is the minister now. He hails from N Carolina. I think his sermons always "hit home"...and there is a "talk back" afterwards. I always love to stay for it and ask questions.
    My daughter Sarah is attending today...she is the PTA president at her children's school...and she said " I need Michael Brown's sermon today".

    However, wherever you pray, let us know.
    Our link is www.marblechurch.org
    If your church/temple/mosque is on line....Tell us.
    Salt and Light,
    Jeanne

  2. #2
    Senior Member
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    I've never been into 'Organized Religion' but I am most assuredly a Believer. I don't know how anyone who has a life threatening/altering disease like CF can be 'without' God.
    Personally, I couldn't do it. I recognize that all good things in my life are a direct result of His intervention. I don't claim to have answers to anything. I do know that God makes the unbearable, bearable.
    He makes my burdens less heavy & He has given me a great Woman to share my life & burdens with.
    I could not have survived as long as I have without my God, and my Wife.
    End of my little diatribe.
    Pat, 50 year old male with CF, DF508 & CFTR2. DX at birth. Double-lung trans on 6/16/05 asthma, diabetes, arthritis, chronic pain.
    Medically retired truck driver, married to my personal Angel for 23 years.

  3. #3
    Quote Originally Posted by azdesertrat View Post
    I don't know how anyone who has a life threatening/altering disease like CF can be 'without' God.
    Yeah well there's that little catch.
    If God was real CF would be a direct result of that "God" because he's omnipotent and all.
    It's much more unbearable to see the state of the world and thinking there is some skydaddy on a cloud doing Nothing. Making him extremely, extremely evil.
    Oh yeah, today about 25.000 people (mostly children) will die of hunger.
    34 CF The Netherlands

  4. #4
    Discussions about god never get to an end. Faith is a matter of believing without proofs. I would love to believe that there is something or someone allmighty taking care of me, but i cant, it just doesnt make sense. And since the people who have faith dont need any proof there is no way to convince them.

    In my opinion gods live where tooth fairy does. At least I had proofs of the tooth fairy existence, I still keep one of the coins she left me!!

  5. #5
    Besides, the idea of a God being able to cure CF and not doing it leads to guilt. I am from Spain a country where religion used to be very important, but it isnt anymore. Well, it is amazing how differently older parents look at CF from younger parents do. Most of the old fashioned used to hide it to everyone, friends, family, school... They thought that it was something to be ashamed of, they must had done something terrible to deserve that from God. And the worst is that people around used to think the same.

  6. #6
    VAmom
    Guest
    God gives us free will. Free will to do good or evil. We all sin and it’s our sin that hurts others -- not God.

    The absence of light is dark. The absence of heat is cold. The absence of God is evil.

    God uses all things to work for His glory. We may not see the glory, but we don’t see the wind either.

    What men intended for evil -- the suffering and death of Jesus Christ – God allowed for His glory. Jesus, without sin, was sacrificed for us so that we could be reconciled with God.

    If God didn’t spare his own son from suffering and pain, why should we expect him to shield us from suffering and pain?

    In the book of Genesis, it says that God saw everything that he had made, and behold, it was very good. With sin came disease and suffering. God didn’t create or cause cystic fibrosis.

    God wants relationship. He’s all about relationship: God the Father/God the Son/God the Holy Spirit. He wants relationship with us too. I encourage you to build a relationship with him.

    He promises that there is no sin, no tears, no suffering (no cystic fibrosis) in heaven. I don’t want to lose out on that and I pray that you don’t either.

    We all suffer is this life. Don’t risk an eternity of suffering too.

  7. #7
    So first God is everywhere and hears everything, but then he's absent.
    God creates everything and does everything for a purpose, but then he's absent and did not create CF?
    CF has been around long before the mayor monothe´stic religions came to be. Who created it back then? Was it these people's fault as God had not reveiled himself yet/was not thought up yet?

    But what I would really want to know. What kind of a God is He who demands such constant attention and ego boosting as to punish those who do NOT constantly worship him with Cystic Fibrosis? With starvation? With abuse, war and torture?
    That's a kind and loving God to you? To me that's someone who kills billions for not liking his updates on Facebook. Worse, after killing them in horrible ways he promises to eternally punish those by burning them forever, every second of their future infinite existence, for not liking him up on facebook. .. nice.
    34 CF The Netherlands

  8. #8
    [QUOTE=VAmom;919381]God gives us free will. Free will to do good or evil. We all sin and it’s our sin that hurts others -- not God.

    The absence of light is dark. The absence of heat is cold. The absence of God is evil.

    The absence of dogs is cats? The absence of apples is oranges? With all due respect, this does not hold water. Perhaps without GOOD there can be evil, but even then, there can still be apathy.

    I beg of you, very kindly, to open your mind; we have BEAUTIFUL people in our life that are kind, good, giving, selfless, etc., that are not believers in gods. There can't be anything in the world more loving than to respect and accept those who believe differently than you do. Kindness and acceptance of your neighbors.....

    Mother to son Logan dx at 12 years, now 16. [IMG], mother to daughter Lindsey, 11, no CF.http://i888.photobucket.com/albums/a...ganArchery.jpg[/IMG]

  9. #9
    DmT145
    Guest

    A moral god?

    If God didn’t spare his own son from suffering and pain, why should we expect him to shield us from suffering and pain?

    We all suffer is this life. Don’t risk an eternity of suffering too.
    Since you are a mom, may I ask you a question? Is there anything your child could do, including not loving you, that would compel you to lock him/her/them in the basement and torture them forever? What does this say about the morality of the god you worship?

  10. #10
    Wow you guys all got really nasty and unjustifiably so. What I saw at the beginning of this thread was a person trying to use a personal experience to uplift others. The response was nasty claws that came out and tore it down. I don't know about you but I believe that speaks volumes.
    I call myself Christian and was raised going to church every sunday which I try to do with my children despite lifes business sometimes getting in the way.
    Thats not to say its easy. Life has thrown me some curveballs. When my daughter was diagnosed on top of it all, I cursed God, I was so angry and frustrated with life. But my faith did get me through, I saw there was a reason that I was going through trials. I used my experiences to help others and I became a paramedic.
    I still struggle with my faith and have a hard time connecting with others in my Christian community. I've seen some of the most horrible situations a person can see. Believe me, you think you've been cursed with cf? I can always point to someone that has it worse.
    The thing is guys, faith is being surrounded by darkness, including the darkness within you, and choosing to grasp onto the light. To use thatmlight to bring light to others. I never preach, I don't tell my patients about my faith. I just want to be the hand holding theirs when their in their time of darkness. That's my hope for all of you that you use your experience to lift others up, not tear them down. I think that's what I just witnessed.

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