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Thread: Trikafta with no purge???

  1. #1

    Trikafta with no purge???

    So far, I have taken 3 doses of Trikafta and am not experiencing any mucus purge. Has anyone else experienced no purge? I have been drinking water, eating fat with pills, and I am a ddf508.

  2. #2
    Senior Member
    Join Date
    Sep 2016
    Posts
    220
    Not everyone's purge begins right away. When I took Symdeko and Orkambi, it was a couple of weeks before my purge period started.

  3. #3
    Super Moderator
    Join Date
    Apr 2006
    Posts
    20,957
    When ds started orkambi he had a stuffy nose, cold like symptoms and digestive issues. Very loose stools, liquid for several days. Being his main cf symptoms were digestive and sinus and he never really had a cough unless sick, figured that was his purge. When he switched to symdeko he had a drier cough, which he said was mainly that it felt different to breathe and he was seeing if he could cough anything up. And a few days of tiredness and headaches
    Parent to a child wcf double delta f508.

    Started Orkambi July 2015
    Began Symdeko August 2018

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