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Thread: Newly Diagnosed

  1. #1
    Junior Member
    Join Date
    Feb 2019
    Posts
    4

    Newly Diagnosed

    Hi, I'm newly diagnosed with CF and I am 28 years old. I know that might seem really old to be being first diagnosed but that's what happened to me. I am looking for a doctor in northern california to make an appointment with and am hoping that my primary doctor will have sme suggestions. I'm just so sick of being sick all of the time and am very nervous.

  2. #2
    Super Moderator
    Join Date
    Aug 2016
    Posts
    46
    I'll beat Printer and tell you to find a Cystic Fibrosis Foundation accredited CF Care Center! Follow the link below and enter your location. There are a number of accredited centers in northern California.

    https://www.cff.org/ccd/

    Regardless of your symptoms, an accredited CF Care Center is the only place to do a real assessment of your condition, and perscribe the best course of treatment.

    Wishing you all the best..
    Last edited by stephen; 02-14-2019 at 10:05 AM.
    77 Y/O with CF (D1152H and G542X) and Broncheiectesis.
    FEV1 Low 40s%.
    Started Kalydeco March 2014, Switched to Symdeko March 2018. Doing very well!

  3. #3
    Junior Member
    Join Date
    Feb 2019
    Posts
    4
    Yeah I made an appointment for Monday with the doctor that my regular doctor suggested.

  4. #4
    Super Moderator
    Join Date
    Aug 2016
    Posts
    46
    Meggy,

    Is it at an accredited CF Center? That should be easy enough to check by going to the Cycsic Fibrosis Foundation website or to the link provided above.

    If it's not, you're doing your self a big disservice. Just about everyone in this forum is being seen at an accredited center.
    77 Y/O with CF (D1152H and G542X) and Broncheiectesis.
    FEV1 Low 40s%.
    Started Kalydeco March 2014, Switched to Symdeko March 2018. Doing very well!

  5. #5
    Junior Member
    Join Date
    Feb 2019
    Posts
    4
    Yes it is, it's one of the ones listed on the website that you gave me when I input my information.

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