Results 1 to 7 of 7

Thread: Mass of mucus in chest

  1. #1

    Mass of mucus in chest

    Dear fellow participants, my daughter with CF who is 11 years old is struggling to fall asleep these days. She is huffing and coughing so hard trying to clear her chest but canít get it up. We try percussions and breathing techniques and only small bits come up. Any ideas?

  2. #2
    Super Moderator
    Join Date
    Apr 2006
    Posts
    20,910
    When DS seems to have issues, we increase chest physiotherapy (cpt). We normally do 3 breathing and vest/cpt treatments a day, but will increase to 4-5 if need be. We also will focus manual cpt/percussions on the areas that area affected. His breathing treatments also include dnase/pulmozyme once a day to break down mucus and he recently started nebulizing hypertonic saline. If he feels as if he has a plug or something stuck, we have him huff cough and increase his fluid intake -- drink more water. He also tends to have more sinus issues, so if he gets a head cold and mucus runs down his throat all the time, we have him do sinus rinses.
    Parent to a child wcf double delta f508.

    Started Orkambi July 2015
    Began Symdeko August 2018

  3. #3
    Thank you Ratatosk, I appreciate your advice. I will increase the nebs and physio and drinking more is a good idea thank you!

  4. #4
    Senior Member
    Join Date
    Jun 2007
    Posts
    504
    Seems like she's doing the right things. When she huffs: take a deep breath and hold several seconds if possible. She may already know this. Obviously bronchodilators can help.
    Another note, I've recently been put on nebulized sodium bicarbonate, apparently changing the pH environment helps thin mucus and slow bacterial proliferation. It's a newer treatment and I had trouble even getting CF pharmacies to stock it.
    Eric 36 with CF

  5. #5
    Senior Member
    Join Date
    Sep 2016
    Posts
    180
    That's really interesting. What's it called and have you noticed a difference since you've been on it?

  6. #6
    Junior Member
    Join Date
    Aug 2017
    Posts
    19
    I do something called an IPV. Or intrapulmonary percussive ventilation. It is an old school treatment. I had 3 different vests, they never made me cough anything up. I cough up so much now. I have been doing it for 7 years. I had a 15% lung function increase 3 months after starting. It is a little tricky to do and she may be too young but I thought I would mention it. The Dr. who invented the machine created it for his wife who had cf, many years ago. It shoots air and regular saline and or albuterol into your lungs and percusses from the inside out. You breathe against the pressure.

  7. #7
    Senior Member
    Join Date
    Jun 2007
    Posts
    504
    Kenna: It's just called Sodium Bicarbonate. It comes in 5ml vials and you need syringes to extract. Hasn't gone the route where there are mass produced ampules yet. Yes I have noticed a difference, probably a few % FEV1 gain but I feel like my coughing symptoms have reduced.

    Regarding IPV, I tried it a couple times over the years. I recall it getting a little messy with solution leaking and a little exhausting using it. Maybe that's a good thing. I like the concept but it seems odd nobody's upgraded the design in 30 years.
    Eric 36 with CF

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •