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Thread: Elevated liver enzymes/Vertex meds

  1. #1

    Elevated liver enzymes/Vertex meds

    Hello Friends!
    I have a few questions for those of you who have taken the Vertex modulators and experienced elevated liver enzymes. How elevated did your numbers become? Did your doctor take you off the medications right away? Did you ever go back after a break? Did liver enzymes ever resolve if so? I would appreciate any information from those of you who can shed some light on this.
    Thanks so much,
    Michelle

  2. #2
    Junior Member
    Join Date
    Aug 2017
    Posts
    19
    I typed this long reply but I don't think it went through. I still have elevated enzyme levels and unfortunately liver damage. May be from cf in general. I take ursodial (actigal) 3x daily for treatment. I see a GI that specializes in cf liver disease in Denver at National Jewish.
    Amanda♡36 years old with cf♡df508 and e60x♡cfrd♡liver disease♡mom to a non cf child

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