Hi everyone!

So, lately I've been dealing with a few troubling symptoms. Extreme shortness of breath, particularly when I exercise. My whole life I've felt this, but it's gotten extremely bad in the last 5 or so months, to the point where I haven't been able to go to the gym at all. I used to run every day, but I feel like I am going to throw up or pass out after very little time and can't catch my breath. About 3 months ago, I started having severe abdominal pain that is generally constant, though there are periods of time where it's much worse, to the point where I have to just lie down and wait for it to stop. I've also had both extreme diarrhea and extreme constipation with no explanation for either in my diet or lifestyle. I've been to the doctor many times, had a few scans, and I've seen a GI. No clue what could be causing any of this stuff, and no one seems to think the breathing and abdominal pain could be related. The scans showed two small fatty lumps in my liver and a slightly distended gallbladder, but I was told there was nothing of concern. I also had a brain scan after I passed out, and nothing was seen in my brain, but a sinus infection or buildup was noted. No one said anything, I actually only found out from looking at the notes in the online portal.

The reason I ended up thinking about cystic fibrosis is because I passed an oily stool earlier, which was new for me. I saw cystic fibrosis, and it makes a lot of sense to me. I've struggled a lot with sinus issues, especially lately. My left ear has felt clogged, and the sinuses on that side of my face have been painful for several weeks now. And I've gotten sinus headaches every couple of months for...I can't even remember when those started. The breathing thing is the most troubling to me. It feels like I just can't catch a full breath, no matter what I do sometimes. Sometimes it's fine, but there will be periods of time where it feels like normal breathing is leaving me lightheaded and my lungs unfilled. When this happens, I compulsively take extremely deep and forceful breaths, but it only satisfies me in the moment that the air is pushed into my lungs. As soon as I'm exhaling, my lungs feel uncomfortable again.

I have also lost a great deal of weight. It was partially intentional, but I was losing weight a lot faster than I think I really should have been able to, given the diet and exercise plan I was doing.

I'm 24 years old, born in 1994. But I was born in Okinawa, Japan on a military base. Is there a possibility I was not screened for cystic fibrosis as an infant? My mom gets pneumonia all the time and deals with asthma, but I'm wondering if maybe she actually has cystic fibrosis and was never checked because the inhaler takes care of her breathing. She can't remember if I was screened or not. I was also born premature, so maybe that kept them from screening me? Is there any point in getting checked? I don't want to waste a doctor's time if it's impossible, but I am having a lot of trouble finding details about a scenario similar to mine. I know children in the US started getting screened in 1982, but I didn't know if being overseas would maybe have kept that from happening...

I guess my main question is: Is there no way I would have cystic fibrosis without knowing already at this point in my life? Should I get a test done for it, or is it a huge waste of time and money?