View Poll Results: Is getting tested a waste of time?

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Thread: Can an adult have cystic fibrosis without knowing it already?

  1. #11
    Senior Member
    Join Date
    Sep 2009
    Posts
    2,756
    I am 79 years old with CF. I was dx at age 47. I won't waste your time, I believe that you could have CF. You need to be seen at an APPROVED CYSTIC FIBROSIS CLINIC by a CF SPECIALIST. If you live in the US, go to the following link for a clinic in your area. cff.org.
    Male 79 CF undetected until age 47. (First symptoms at age 3) Delta F508 & V562I with one copy of Variant 5Tand 12T. 100% PI. MAC, CFRD.

  2. #12
    Junior Member
    Join Date
    Jun 2019
    Posts
    2
    Appreciated your reply so much, Printer. Maybe as soon as I have time and energy for appointments and more tests, etc., I'll email the director at UNC's Adult CF center. (That's where I was seen and tested – sweat, respiratory, genetics, sputum cultures, etc. – and is on the cff.org list so thanks for referring me to that.) A little more internet research to send UNC a list perhaps related symptoms experienced over the years will probably expedite a diagnosis. When I had the 2016 bout of hemoptysis and was tested subsequently at this center, I hadn't had time or knowledge enough to piece together several childhood and decade-long adult issues that might be symptomatic of CF.

  3. #13
    Just an FYI, there is something called non-CF bronchiecetaisis (sp).You could have many symptoms similar to CF and not have CF. Regarding those who think their father had similar symptoms....98% of males with cystic fibrosis are infertile.

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