Results 1 to 4 of 4

Thread: Carriers with symptoms or CF dx?

  1. #1
    Junior Member
    Join Date
    Sep 2018

    Carriers with symptoms or CF dx?

    Hi, I have many CF symptoms and just found out I am a carrier, does anyone here have CF symptoms as a carrier? Would my dr be willing to order a sweat test based on symptoms and the fact I am a carrier? I am finding limited info online about carriers having symptoms. Would appreciate any info. Thankyou

  2. #2
    Senior Member
    Join Date
    Sep 2016
    I know carriers can have symptoms of CF, but then again anyone can have CF symptoms. What are your symptoms that you're experiencing? I only ask because when people get the news that they're a carrier, sometimes their mind takes that diagnosis to the extreme.
    Last edited by kenna2; 09-28-2018 at 12:04 PM.

  3. #3
    Super Moderator
    Join Date
    Apr 2006
    Both my FIL and BIL have severe sinus disease -- multiple surgeries, chronic infections, so I assumed they were probably both carriers; however, my BIL is not a carrier. And my husband who is a carrier, has never had sinus issues. Nor do I.
    Parent to a child wcf double delta f508.

    Started Orkambi July 2015
    Began Symdeko August 2018

  4. #4
    Senior Member
    Join Date
    Apr 2007
    I am very interested in this topic, as I have heard of plenty of people who are carriers with CF-related symptoms. I have heard of many individuals who have either had digestive, lung, or sinus issues as a carrier, but unfortunately there is no solid evidence or studies. I really wish the medical community would do further research on carriers.
    37 w/CF
    Mom to 2 boys

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts