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Thread: Looking for doc in OK

  1. #1
    Junior Member
    Join Date
    Sep 2014

    Looking for doc in OK

    Hey everyone,

    It's been a long long time since I've posted in here and I was hoping to get some direction. I have a deltaF508 and R117H with a 7T/9T mutation. I was 25 when I found out and have been asymptomatic most of my life. In the past year I have developed asthma and now have great difficulty doing physical activity without the aid of an inhaler.

    Up until the last 7 months I had been receiving my healthcare from Mayo Clinic. However, I'm no longer in MN and am concerned that my lung function is starting to change as I get older (I'm almost 30 now).

    Does anyone know of a good place to start in the Oklahoma City metro? I understand that OU has a CF clinic at the children's hospital but I am unaware of they take adults. I don't currently have a family doctor and my insurance is also about to change, so I'm starting from scratch.

    Any thoughts?

    Thank you!

  2. #2
    Senior Member
    Join Date
    Sep 2009
    Follow this link for APPROVED CF CLINICS. Good luck
    Male 77 CF undetected until age 47. (First symptoms at age 3) Delta F508 & V562I with one copy of Variant 5T. 100% PI. MAC, CFRD.

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