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Thread: Looking for doc in OK

  1. #1
    Junior Member
    Join Date
    Sep 2014
    Posts
    2

    Looking for doc in OK

    Hey everyone,

    It's been a long long time since I've posted in here and I was hoping to get some direction. I have a deltaF508 and R117H with a 7T/9T mutation. I was 25 when I found out and have been asymptomatic most of my life. In the past year I have developed asthma and now have great difficulty doing physical activity without the aid of an inhaler.

    Up until the last 7 months I had been receiving my healthcare from Mayo Clinic. However, I'm no longer in MN and am concerned that my lung function is starting to change as I get older (I'm almost 30 now).

    Does anyone know of a good place to start in the Oklahoma City metro? I understand that OU has a CF clinic at the children's hospital but I am unaware of they take adults. I don't currently have a family doctor and my insurance is also about to change, so I'm starting from scratch.

    Any thoughts?

    Thank you!

  2. #2
    Senior Member
    Join Date
    Sep 2009
    Posts
    2,745
    Follow this link for APPROVED CF CLINICS. www.cff.org Good luck
    Male 77 CF undetected until age 47. (First symptoms at age 3) Delta F508 & V562I with one copy of Variant 5T. 100% PI. MAC, CFRD.

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