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Thread: Adult clinic in LA

  1. #1

    Adult clinic in LA

    Hey gang,
    My daughter will be spending a semester out in LA this fall. Does anyone have advice for us about what clinic to contact while she is out there? We are from the east so have no clue.
    Thanks!!!
    Shay

  2. #2
    Super Moderator
    Join Date
    Dec 2011
    Posts
    767
    The fastest way I know to locate the CFF Accredited Adult CF Clinics is by contacting the regional or state CFF by email or phone. I hope my information isn't dated it's been a year or so since I talked with my CFF representative for Colorado. I'm a late diagnosed CFer and it was bizarre that I had driven past National Jewish Hospital (Health these days) hundreds if not thousands of times over the 27 years I lived in Denver, before my diagnosis. At most it takes me 30 minutes from my house to NJH.

    Hopefully you will find a Clinic nearby. Hopefully some of the CFers will have personal contact with the Adult CF Clinics in the region. Many people who attend the Clinic here in Denver come from as far as Dallas, so do check regionally.

    Best of luck,

    LL
    67yr. old man, DX CF 2002 by sweat test. Heterozygous S1235R revealed by genetic testing in 2003 & 2012 accepted secondary mutation. 7T, 7T polymorphism established to be virulent. Classification review in 2017 remains CF diagnosis.

    Complete pancreatic atrophy, Bronchiectasis, MRSA, osteoporosis, small duct disease, charming personality.

  3. #3
    Thanks for replying LL and we are in the process of researching the CF centers on our own but would really like to hear from our LA CF friends about personal experience with clinics and specific doctors there. My daughter will be living in Marina del Rey. Looks like these are our choices:
    1. Kaiser Permanente Southern California CF Center - Adult
    Within 14 miles
    Los Angeles, CA 90027
    Phone: 323-783-3378
    Type: Adult
    Director: Tina Chou, M.D.
    2. USC Keck School of Medicine
    Within 16 miles
    Los Angeles, CA 90033
    Phone: (323) 442-8522
    Type: Adult
    Director: Adudpa Pursh Rao, M.D.
    3. Long Beach Memorial
    Within 21 miles
    Long Beach, CA 90806
    Phone: (562) 933-1820
    Type: Adult
    Director: Thomas Jiang, M.D.

    Any opinions??
    Thanks!
    Shay



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