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Thread: Child needs transplant but has mycobacterium absessus. MAC OR MAB transplants reply

  1. #1
    Junior Member
    Join Date
    Aug 2017
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    14

    Child needs transplant but has mycobacterium absessus. MAC OR MAB transplants reply

    Need help. A dear friend of mine has a 9 year old son who needs a liver transplant. He unfortunately has a very active mycobacterium absessus infection that they have been trying to eradicate for years. His Drs want to talk to other Drs who have done this. They will have a better chance of convincing UNOS to list him. If you have had a transplant while having MAB or MAC (lung or liver) please contact me at [email protected]

  2. #2
    Super Moderator
    Join Date
    Apr 2006
    Posts
    20,903
    I do know of a child in our area who had a lung transplant in Texas --- Houston?. Don't know details other than that was the only transplant hospital that would take him. His mom and brother had to relocate there from the Midwest while waiting.
    Parent to a child wcf double delta f508.

    Started Orkambi July 2015
    Began Symdeko August 2018

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