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Thread: Scared about the future?

  1. #1
    Junior Member
    Join Date
    Jan 2018

    Scared about the future?

    Iím a CFer and college senior. Iím in the process of applying to graduate school, but Iím scared that I might be wasting my time getting an upper-level degree, because I wonít be able to work enough during my life to pay off school debt. I am relatively healthy, with an FEV of 89%, but I always feel like Iím getting sick. I donít know if Iím being realistic or not, but itís just a nagging fear I have. Have any of you dealt with something similar? How did you deal with it?

  2. #2
    Senior Member
    Join Date
    Sep 2016
    Absolutely continue to get your degree. With the new meds that are coming out and our lifespan expectations rising, you very well could continue to work a long time. I say while you're focused and young and still have the ability and no real responsibilities (house payment and what not) go for it. You'll be happy you did. Also there are a lot of high paying jobs out there that will allow you to work from home, which is great for us because of our amazing multitasking abilities.

  3. #3
    Senior Member
    Join Date
    Jan 2006
    I am a college professor and was diagnosed early in my career. I think a graduate degree is worth it for the experience in itself. If you really love your subject/field the ability to focus on it can be so rewarding. Graduate work is so different than undergraduate. I would tell your major professor after you are accepted if you are comfortable doing so. I have had students of my own with different issues and I am glad they shared so I understood how to best help them. Will you be on assistantship and does the University cover health insurance to some degree? Does your field require research outdoors?

  4. #4
    Senior Member
    Join Date
    Sep 2009

    Next week I will be 78. I have 2 college degrees and I have been married for 55 years. Yesterday I chatted with a guy 57 who was dx at age 41. His mother tested positive at that thim also, today she is 94.

    Contact CFF to discuss the scholarships available for CF Patients.
    Male 77 CF undetected until age 47. (First symptoms at age 3) Delta F508 & V562I with one copy of Variant 5T. 100% PI. MAC, CFRD.

  5. #5
    I'm not in the same position, but no, you're not wasting time. Continue to go for what you want in life. You can't predict the future too far ahead. We wouldn't get anywhere if we kept saying, "what if"

    AMBER 26yrs CF (Double F508DEL) Married
    CFRD, Double Lung TX 3-13-07, Kidney TX 7-2-07
    G-Tube, insulin pump, & cochlear implants

    Amber's Blog- A Creative Newmie

    God is within her, she will not fall -Psalm 46:5

  6. #6
    Senior Member
    Join Date
    Jun 2006
    Go for your grad school if so desire. I will be 70 next month. After workeing in Nuclear Medicine at the same Mdical ctr. for 35 yrs. I retired to take better care of my CF on encouraging words from my wife and pulmonologist. My job was 50+ hrs. A wk. with night call and wkend call so it was not a regular 40hrs. a wk. I did my Nuc. Med. education at Duke U. moved back to Ms. to be close to my brother who had CF also. This was 1970-71 time frame. God has more than blessed me.
    I am 69yrs. old delta F508, one of four siblings, diagnosed at age 12, three of us had CF. Bother passed away with CF when he was 24, some 30 yrs. ago. I worked 35 yrs. in Nuclear Medicine, retired in 2004 at age 57 to to take better care of my CF. Have been married to my bride 49 yrs.. Great woman to have put up with me this long. We adopted two children, 3 days old when adopted, now 40yrs. old with total of 5 grandchildren. My lung function is FEV1 of 25% FVC 90%.

  7. #7
    I think you should go for it.

    Even if you never pay off the debt, you should still do what you love.
    Male (but gender fluid).

    My mother was F508del/F508del and I'm pretty sure my father was a carrier of d1152h (although he might have been homozygous d1152h).

    So I'm F508del/d1152h diagnosed at age 49 several years after my mother died. First symptoms at 26, chronic pancreatitis at age 27. At age 29 a persistent cough and "over active mucous membranes" was what the doctors said.

  8. #8
    Junior Member
    Join Date
    Sep 2012

    what if tomorrow comes?

    What if tomorrow comes?

    All your life you're told, that you will never grow too old.
    Your life defined by a DNA strand, mutated uncontrolled.

    "Don't expect to be able to do, like others without this disease."
    "You can't", "You shouldn't", "You must not", of these we must appease.

    But really, what if tomorrow comes? What did I do with today?
    Did I use it to prepare my life, or just sustain it in some way?

    Was today a day for living, or just for surviving another hour?
    Did I lose it to the fear of expecting to die, or did I find an inner power?

    A power from within that says, no matter what, I won't believe...
    I'll find hope, choose to cope, this is the 'truth' I will perceive.

    "Living to die" or "Dieing to live", what a choice we have to face.
    I won't allow this circumstance to define what I embrace.

    Pills, and puffs, IV's, and such, it may be worse for you than me.
    Is it because of how we've lived, or just some luck genetically?

    I don't know! Live today preparing for a tomorrow.

    dx at age 14 - that was 1971. i got my masters at age 52...
    Last edited by dbtoo2; 05-26-2018 at 10:08 AM. Reason: add detail

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