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Thread: Cord Blood

  1. #1
    Junior Member
    Join Date
    Sep 2017
    Posts
    1

    Cord Blood

    Hello!

    My daughter carries the DeltaF508 and 5T, (a variant) she is not diagnosed with the disease but with her combo, its a variant of the disease and can show signs of mostly the respiratory parts of it. (Which so far, she hasn't but you never know what the future will bring)

    I collected cord blood from my older son, no CF genes and from my daughter. My question is, would her cord blood be of any use in the future? As I understand, it's obviously her genes and carries the same combo so IF she needed any type of cord blood assistance, it would be from my son's collection. Do I keep her cord blood? I've been researching and put a call in to our CF specialist but was wondering if anyone had input, thank you!

    Liz

  2. #2
    Senior Member
    Join Date
    Sep 2016
    Posts
    102
    I have honestly never heard of anything like this, nor do I know anything about cord blood. I'd say it's highly unlikely that it could be used for her benefit.

  3. #3
    Junior Member
    Join Date
    Sep 2016
    Posts
    27
    Hello,

    When we shared your post on social media @emudge3, some of our members replied "My daughter had the cord blood saved for her daughter who was diagnosed with CF while she was still pregnant. I know that it's an expensive procedure but my daughter & her husband felt that it was an important thing to do. I am pretty much uneducated about cord blood but I would save it if I were you. My daughter & son-in-law are very smart and investigate everything so I'm just using them as an example." as well as "Not sure about her cord blood but I think your sons cord blood would be benificial to her..."
    28 w/ CF* B. Cepacia* Port* 621+1G>T and Y1092X mutations*
    "We all make choices, but in the end, our choices make us."

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