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Thread: Newly Cultured NTM/MAC

  1. #1
    Junior Member
    Join Date
    Apr 2017
    Posts
    3

    Question Newly Cultured NTM/MAC

    I got a call from my CF doctor yesterday. She asked how ive been feeling as ive had a drop in my 02 saturation over the past week or two (from 99% to 92% on 2 Liters of 02). I told her I havent had any fevers and my sputem hasnt been dark green or taste like it does when im having my usual flare up of Psuedomonas or Staph. However im having a hard time breathing and my heart rate has been in the 130s when talking a short walk. she then informed me that my recent sputem culture that was taken a few weeks ago came back and it tested positive for NTM or MAC? She said this could be causing my problems with breathing and mentioned a 12 month treatment of IVs.. Ive never grown this in my sputem, ever.
    If anyone has any info for me about NTM please tell me what this means??
    im so confused??

  2. #2
    Junior Member
    Join Date
    Oct 2016
    Posts
    27
    Hi friend,
    NTM Is Non-Tuberculosis Mycobacterium. My daughter has this in her cultures too, and it's hard to treat. There are wonderful threads on this forum about it....including one I recently started. Here is one I find very informative:
    http://forums.cysticfibrosis.com/sho...light=Absessus

    In the search engine look for:
    Mycobacterium, or MAC or NTM and many great threads will pop up for you. It has made my daughter extremely tired. She is like a different person since this all started. I wish I had a better outlook, but that's our experience.
    Michelle

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