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Thread: What to expect with Kalydeco

  1. #11
    What happens if I miss a dose (Kalydeco)?

  2. #12
    Super Moderator
    Join Date
    Aug 2016
    For me, nothing. I've intentionally tried skipping doses a number of times. It takes missing three doses before I begin to notice changes. Then, a productive cough starts to reappear, producing thick sticky mucus. Once the drug is resumed, it's only hours before the mucus thins and the cough begins to disappear.

    I suspect that everyone taking Kalydeco/Symdeko has in reality "skipped" doses. Information I gotten from multiple sources, and my actual experiences, indicate that unless fat is consumed within a short time of taking the pill, the pill is USELESS - at least for me.
    77 Y/O with CF (D1152H and G542X) and Broncheiectesis.
    FEV1 Low 40s%.
    Started Kalydeco March 2014, Switched to Symdeko March 2018. Doing very well!

  3. #13

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