I am looking for answers...story of my life! My daughter (age 4) has a pseudomonas aeruginosa infection in her lungs and is taking inhaled antibiotics morning and night (Tobi). Before this lung infection, we have seen several doctors looking for answers for other issues. It all started because she fell off the growth chart (a little more than a year ago). We have been seen by genetics, Endo, GI, Ent, etc. One test showed she had a malabsorption to dairy, but she totally had no symptoms. Dairy didn't bother her at all; however, we switched to Lactaid stuff. None of her other tests (she's had a lot) ever really showed anything. I convinced myself she was just "small" and really stopped worrying. Then she got sick. She has always battled pneumonia prior to this (she'd get it a few times a year). All of a sudden she developed mucus that wouldn't go away. My peds dr. put her on antibiotics and it didn't touch her mucus, so she sent us to a pulmonologist. (At this point this has been ongoing for 3+ months). Now we see a pulmonologist at an accredited CF center. Her chest x-rays showed fluid in her bronchial tubes. They thought it was chronic bronchitis. They treated the chronic bronchitis (with 28 days of oral antibiotics) and it didn't go away, so they did a respiratory CF culture of her mucus. Her culture came back with pseudomonas aeruginosa. They also did a sweat test and it came back intermittent. Then they did the genetic test. The genetic testing found nothing. They said they are ruling out CF; however, they don't think this "nothing" because pseudomonas aeruginosa doesn't infect people who are not suffering from an underlying condition. They want her to finish her Tobi, and they are going to run more blood tests and we will go from there. I guess I am looking to see if anyone has any insight for me.