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Thread: Who are you in a nut shell

  1. #761
    Junior Member
    Join Date
    Jul 2017
    Posts
    1
    Hi everyone,

    My name is Lisa. I'm 45 years old now; I was diagnosed at age 24. Fortunately, I don't have any pancreas problems or diabetes. For me, it's mostly my sinuses (9 sinus surgeries) and lungs (about three years ago, I traded pseudomonas for mycobacterium abscessus). I also cough up a lot of blood (had one bronchial artery embolization).

    I'm a college professor, and I really love my job. Increasingly, I've been dealing with a lot of pain (hands, neck, etc.). Rheumatologist has ruled out arthritis; she said it sounds more like fibromyalgia. But, lately, the pain has been bothering more than anything else. Worried that I won't be able to teach much longer, which is heartbreaking.

    Happily married for ten years. Enjoy reading, traveling, and scrabble.

    I've been reading posts for the past several years but never chimed in. I live in northern California and attend the Adult CF Center at UC Davis.

    Thanks for letting me lurk in the past. I'll try to offer insight and/or support when I can. I guess it's just nice to know that we're not alone, right? :-)

  2. #762
    Junior Member
    Join Date
    Sep 2018
    Posts
    1
    Hey. Iím Tom. 26 years old. Diagnosed at about 2 due to prolonged health issues.
    Currently around 65% FEV and feel very lucky at the moment considering what others go through. I feel a little odd writing this as Iím typically not very vocal about my CF - not out of embarrassment I just donít appreciate pity, as Iím sure most of you donít either, so this is very uncharacteristic.
    I live in Cleveland Ohio and work as a business intelligence analyst for a software company (hate the corporate BS but health insurance is good lol)
    I enjoy reading - mostly non-fiction or novels based in philosophy, especially existentialism - math & science texts and a lot of Camus, Dostoyevsky, and Kafka.
    I love motorcycles (I have two), old cars, going to concerts at least once per week, and enjoying time with genuine people.
    I paint terribly and really enjoy a nice whiskey from time to time.
    Iím sure no one actually reads these things as I see this post was started about a decade ago, but it feels kind of good to reach out.

    Amor Fati.

  3. #763
    My name is Sara
    I'm a woman
    I live in italian
    I am a teacher
    I have a girl child
    I love my daughter
    I love road trips.
    i love myself
    I am atheist

  4. #764
    My name is mina.
    I am a female.
    I am 29 years of age.
    I live in Southern CA and I LOVE LOVE LOVE it.
    I was dx at three weeks due to failure to thrive.
    My FEV1 hovers right around 58% or so.
    My goal is to at least get it back to 70%
    I have had two surgeries for scoliosis and now have metal rods in my back.
    I love cooking and reading.
    I am happily married to a Marine that everyone calls Larry.
    We have one cat named Jade, and are looking to adopt a black female pug puppy here soon.
    I love love life and am so thankful for everyday!
    In a two year relationship with my girlfriend
    Hospitalized twice in the past 6 years (Just got out)
    I am very diligent about my treatments (Was not until about age 20)
    All in all I feel pretty good despite my neglect at times.

  5. #765
    Junior Member
    Join Date
    Feb 2019
    Posts
    4
    My name is Meggy
    I am a female
    I am 29 years of age
    I am married to a Airforce Airman
    We live in Northern California
    I love hanging out with animals and reading
    I am recently diagnosed (Late in life I know)
    I am christian
    Last edited by Meggy!; 02-14-2019 at 01:38 AM.

  6. #766
    Junior Member
    Join Date
    Apr 2019
    Posts
    2
    My name is Rob
    I have a rottweiler and a cat
    I work in a restaurant
    Looking for help for my uncle (67)
    Speak 2 languages
    Loves the beach
    Wants to travel

  7. #767
    Junior Member
    Join Date
    Jan 2019
    Posts
    2
    Buna.
    Mesajul asta e cam vechi. Dar dacă mai esti pe aici da mi un semn. Si noi suntem din București si una dintre mutatii e w1282x

  8. #768
    Super Moderator
    Join Date
    Apr 2006
    Posts
    20,930
    Quote Originally Posted by Rahela12 View Post
    Buna.
    Mesajul asta e cam vechi. Dar dacă mai esti pe aici da mi un semn. Si noi suntem din București si una dintre mutatii e w1282x

    Using Google Translate: This message is a little old. But if you're still here, give me a sign. And we are from Bucharest and one of the mutations is W1282X
    Parent to a child wcf double delta f508.

    Started Orkambi July 2015
    Began Symdeko August 2018

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