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Thread: coming up on 5 years

  1. #1
    Senior Member
    Join Date
    Mar 2006
    Posts
    3,113

    coming up on 5 years

    Haven't posted in a while, but for those of you still waiting, keep hoping. I will be 5 years post this June and things have gone really well. I've been working fulltime, traveling and exploring new hobbies. I've also met my donor family on several occasions---which was amazing experience.

  2. #2
    Administrator
    Join Date
    Dec 2007
    Posts
    2,213
    This is so wonderful to hear! Thank you for sharing.
    40 year-old with non-CF bronchiectasis. Writer and editor, and mom of two tweens and a teen. Always grateful for the inspiration members of this site give me to exercise and more.

  3. #3
    Senior Member
    Join Date
    Sep 2013
    Posts
    116
    Thats awesome to hear hope u have many more

  4. #4
    This is fantastic news! Congrats! I'm just past 8 years post. I haven't heard from my donor family but I continue to write them as long as they accept my letters. My Lungs have been in stable condition for several years now. Still dealing with stomach issues and CFRD but those are small problems compared to post transplant living. I wish you the best! Live it up
    AMBER 26yrs CF (Double F508DEL) Married
    CFRD, Double Lung TX 3-13-07, Kidney TX 7-2-07
    G-Tube, insulin pump, & cochlear implants

    Amber's Blog- A Creative Newmie

    God is within her, she will not fall -Psalm 46:5

  5. #5
    Cale Gilley
    Guest
    Its so good to hear that your all doing so good so far out. Its scary thinking about it, but my doctors keep asking me if I have given any thought to a transplant my FEV1 is 19% up from 2 weeks ago and treatment from 17% last November I was 21%. So I've decided to get testing done for a transplant working that out with insurance right now. Just go good to hear people are doing good post transplant.

  6. #6
    Senior Member
    Join Date
    Mar 2006
    Posts
    3,113
    I celebrated 9 years this past June. Am doing well!

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