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Thread: Excellent Presentation on Muscle Loss & CF - I think a must read

  1. #1
    Senior Member
    Join Date
    Sep 2011
    Posts
    684

    Excellent Presentation on Muscle Loss & CF - I think a must read

    Hey guys a little while ago we were blessed enough to be invited to a fantastic CF meeting with 2 very incredible Dr's. I wish I had the audio to go with this...but I did get this slide and if you have a minute I highly recommend you take a look at it. It suggest that Creon does not dissolve protein like it does fat within 30 to 45 minutes... but actually looks like it doesn't start breaking down protein until 2 to 3 hours after taken in which time the protein would no longer be in the stomach to absorb properly. This just makes so much sense to me and has really opened my eyes. Take a look and let me know what you think.

    I have never uploaded anything on here before ... it says I was successful but let me know if you don't see the attachment please.
    --Jenny
    Mom to Clayton 12 no CF
    and Abby 9 diagnosed at age 2, mutations are DF508 & 2585delT
    multiple sinus surgeries and currently on Kalydeco since June 2012

  2. #2
    Senior Member
    Join Date
    Sep 2011
    Posts
    684
    I don't think this is showing up...so if anyone is interested I will be glad to email it.
    --Jenny
    Mom to Clayton 12 no CF
    and Abby 9 diagnosed at age 2, mutations are DF508 & 2585delT
    multiple sinus surgeries and currently on Kalydeco since June 2012

  3. #3
    I'm fascinated--can you message me? Thanks!
    41 w/CF

  4. #4
    Mark_s83
    Guest
    JennyC. Please send me the link. Email address: [email protected]. Thank you!!

  5. #5
    Junior Member
    Join Date
    Sep 2013
    Posts
    24
    Can you also please send it to [email protected]. sounds interesting
    Mother of 4 yrs old with double delta F508 from India.

  6. #6
    Junior Member
    Join Date
    May 2011
    Posts
    20
    Could you please email it to me as well. My email is [email protected]. I have a 3 year old son with double delta F508.

  7. #7
    Junior Member
    Join Date
    Nov 2014
    Posts
    12
    Hey, Im researching life with CF and need all the quality info I cant get [email protected] Thanks a mil.

  8. #8
    delsonno9
    Guest
    Hi There,
    Was hoping you could email the info. to me.
    [email protected]

  9. #9
    Senior Member
    Join Date
    Sep 2011
    Posts
    684
    I think I have sent it out to everyone. Let me know if you didn't get it.
    --Jenny
    Mom to Clayton 12 no CF
    and Abby 9 diagnosed at age 2, mutations are DF508 & 2585delT
    multiple sinus surgeries and currently on Kalydeco since June 2012

  10. #10
    Hey im interested
    Could you send me the link too??
    [email protected]

    Thanks!

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