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Thread: F508 & d110h

  1. #31
    Junior Member
    Join Date
    Nov 2018
    Posts
    5
    Thank you for your response. Our son has no symptoms. The salt test is 59 and 60, the pancreas functional. Unfortunately Kalydeco in Slovakia is not yet approved. Well, we hope. Kalydeco would be very helpful. In what condition is your daughter's breathing? I hope your daughter will do it. Could we stay in touch (viber, mail or Facebook)? Finally, we found someone with the mutation d110h, we are very excited. Well thank you.

  2. #32
    Junior Member
    Join Date
    Sep 2016
    Posts
    13
    She has never had an exacerbation. She has only be in antibiotic for ear infections. She plays and runs with the kids in her class without trouble breathing. I’m always interested to hear others stories especially people of the same mutations. We do her Vest twice a day and she does pulmozyme once a day. I’m available to chat on here or email whatever is easiest.

  3. #33
    Junior Member
    Join Date
    Nov 2018
    Posts
    5
    Has she mucus in the lungs? Or why she needs to use the vest? What is the prognosis of patients with the use of the medicinal product kalydeco? Thank you

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