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  1. Replies
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    I have the Precision Medical Easy Aire which is a...

    I have the Precision Medical Easy Aire which is a 50 psi and itís a workhorse. Iíve had it for several years now without any problem. Iíve never owned a Mobilaire so I canít compare but it seems...
  2. Thread: Hello

    by Gammaw
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    893

    Hi Ryarnell. Welcome. We’re glad you found us....

    Hi Ryarnell. Welcome. We’re glad you found us. You will find a wealth of information on our site and a large group of helpful people. Feel free to search the forums with questions you may have or...
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    She may well have nasal polyps and a sinus...

    She may well have nasal polyps and a sinus infection which tends to occur when polyps are an issue. Have you seen and ENT (Ear Nose and Throat) doc? She may need surgery to remove the polyps or...
  4. Thread: Class trip

    by Gammaw
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    1,761

    We all constantly try to balance safety with fun...

    We all constantly try to balance safety with fun - whether you have CF or not. Some things are just outside our risk tolerance - CF or not. Itís just that more things are risky for a CFer. Caves...
  5. AWOL here too!

    I've watched but haven't chimed in much as I navigate the co-morbidity of dyslexia and ADHD with my CFer. Interesting connections arising . . . . But we have a Precision Medical Easy Air that has...
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    If the appearance of the standard surgical masks...

    If the appearance of the standard surgical masks bother you or your child, the best solution I know is to wear a decorative mask over it - such as the Vog mask. I have also brought colored sharpies...
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    Lots of questions raised for me Veggie. How did...

    Lots of questions raised for me Veggie. How did they get from POTS to CF? How does the exercise intolerance and inability to regulate body temp manifest? I don't know much about POTS but I...
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    Welcome Tamika! It's so good to have you! By...

    Welcome Tamika! It's so good to have you! By clicking on your link, I've already found information I never had before today - the HealthWell Foundation that provides grants up to $15,000 for...
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    Wonderful!

    Wonderful!
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    Hi Jake S. Thanks for your input - I find it...

    Hi Jake S. Thanks for your input - I find it interesting that you suggest Gatorade is not good for hydration issues. Can you point us to any research? There are an lot of people in our community...
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    The link did work for me. This is what I...

    The link did work for me. This is what I received:

    The page you requested cannot be displayed right now. It may be temporarily unavailable, the link you clicked on may be broken or expired, or...
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    Thanks Ratatosk. I was just being curious. I...

    Thanks Ratatosk. I was just being curious. I get the impression that Hill Rom's are the most common vest. We have the Respirtech InCourage models but we've only had two during the 10 years we've...
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    That intense tiredness really does sound like...

    That intense tiredness really does sound like dehydration. We use Gatorade, Gatorade, Gatorade! Like 6 or 8 bottles a day. I always make him prepare too by drinking a couple before he even goes...
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    So glad you received your replacement Ratatosk! ...

    So glad you received your replacement Ratatosk! Which vest do you use? It just seems like it didn't last very lone and I'm wondering how long our old workhorse will last!
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    You can take any equipment you need on a plane. ...

    You can take any equipment you need on a plane. We usually pack all the meds and the machines - Nebulizers compressor and vest - in bags separate from the rest of our luggage. When you check in,...
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    Hi susied! Your results are not considered...

    Hi susied! Your results are not considered "negative" unfortunately. They are considered "borderline/indeterminate". She may have CF and she may not. 60 is positive. Under 40 is negative. ...
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    Yes - good luck! And do keep us posted. You're...

    Yes - good luck! And do keep us posted. You're headed to a good facility and I'm sure lots of our members - myself included - would love to hear how they address the polyp issue!
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    Nasal polyps are very common in kids with CF and...

    Nasal polyps are very common in kids with CF and can be even more troublesome than respiratory infections in those kids affected. My son started having polyps and removal surgeries at 6. He's 12 now...
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    My guy has had every kind of cough at one time or...

    My guy has had every kind of cough at one time or another. It may be mild, infrequent and dry or horrid, wet, and frequent and everything in between. This last cough (sinus infection) was so deep...
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    That's a hard one AboveAll. It depends a lot on...

    That's a hard one AboveAll. It depends a lot on the kiddo and a host of factors. My rule of thumb requires no cough for 5 to 7 days while ON antibiotics before I stop calling the doc. So if he's...
  21. Thread: Increased cough

    by Gammaw
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    4,766

    Aha. Sinus infection. The bug causing the sinus...

    Aha. Sinus infection. The bug causing the sinus infection and the resulting drainage typically drains into the lungs and causes coughing. It can cause an upper respiratory infection as well. I...
  22. Thread: Increased cough

    by Gammaw
    Replies
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    4,766

    Great thought, Kenna. This is what I love about...

    Great thought, Kenna. This is what I love about cysticfibrosis.com. So many experienced and helpful souls.
  23. Thread: Increased cough

    by Gammaw
    Replies
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    4,766

    Fantastic idea LL. I love this new perspective of...

    Fantastic idea LL. I love this new perspective of an uncle to autistics. So if I have this right your suggestion is that his sensory system has been in effect overloaded by his CF issues - perhaps...
  24. Thread: Increased cough

    by Gammaw
    Replies
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    4,766

    Well you do have a challenge, don't you Jshett. ...

    Well you do have a challenge, don't you Jshett. I can empathize. My guy is dyslexic and has ADHD, but wasn't diagnosed with those conditions until fairly recently. Which dx is the most challenging...
  25. Thread: Increased cough

    by Gammaw
    Replies
    31
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    4,766

    That is a lot of antibiotics - which of course is...

    That is a lot of antibiotics - which of course is most certain to be causing the diarrhea! The best approach for the diarrhea we have found is keeping him on a probiotic especially during antibiotic...
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