Hi, Our grandson has same combo. He is 11 now and has also shown no symptoms. Had a CT scan beginning of year which showed absolutely normal lungs. No damage. Has never used pulmozyne but does...
Type: Posts; User: Chubb
Hi, Our grandson has same combo. He is 11 now and has also shown no symptoms. Had a CT scan beginning of year which showed absolutely normal lungs. No damage. Has never used pulmozyne but does...
Hi there,
My grandson has the same mutation combination as your little girl and 7 years ago we were in the same situation you are in now. I am usually a passive member of this form, however I...