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Type: Posts; User: ToriMom

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    Billy, Thank you so much for your...

    Billy,
    Thank you so much for your encouraging reply. It feels like every day since her diagnosis I've lived in fear of losing her, and now...some days...I can have some hope for more time. ...
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    Thank you ...I’m so glad you responded! It gives...

    Thank you ...I’m so glad you responded! It gives me some hope that you are doing well. I really need to believe there is hope for my daughter and her future.
    Thanks again!
    Michelle
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    I was desperate to get my daughter onto one of...

    I was desperate to get my daughter onto one of those clinical trials. I was not successful.
    I’d love to know how you are doing. Are you a heterozygous DF508? You can private message me if you...
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