Search:

Type: Posts; User: franzie2984

Page 1 of 6 1 2 3 4

Search: Search took 0.01 seconds.

  1. Replies
    30
    Views
    6,443

    Katie low-if I had to pinpoint it I would say 26...

    Katie low-if I had to pinpoint it I would say 26 or so. I'll PM you.
  2. Replies
    30
    Views
    6,443

    I understand your feelings and thoughts...

    I understand your feelings and thoughts completely. I feel exactly the same way. I am wary of taking Orkambi because the results don't look terribly promising and I am already fairly healthy for...
  3. Replies
    29
    Views
    2,902

    I went to UM Ann Arbor for peds and adult until I...

    I went to UM Ann Arbor for peds and adult until I moved out of state. I received phenomenal care there. U of M in general has very high standards and an excellent medical program. Just wanted to...
  4. Replies
    20
    Views
    2,614

    Thank you all for the replies, they were...

    Thank you all for the replies, they were extremely useful, even though I was not very clear or detailed with my questions. Good news though. I went and he did not even suggest IVs. My lung...
  5. Replies
    20
    Views
    2,614

    Hi all, thank you to those who gave feedback....

    Hi all,

    thank you to those who gave feedback. Brief background:

    It has never been suggested that I do IV antibiotics before until a week ago-when my lung function had declined from my previous...
  6. Replies
    20
    Views
    2,614

    IV antibiotics: Need advice

    What are the benefits of oral versus IV antibiotics, for you? Or, what led you to do your first course of IV antibiotics?
  7. Thank you for taking the time to respond so...

    Thank you for taking the time to respond so thoroughly-I really appreciate it. Your feedback and suggestions are helpful too. I have changed clinics before; 2 great clinics, 1 not so great clinic,...
  8. new clinic-I do not like-anyone else go to UW Seattle?

    I recently began going to the UW Seattle clinic and I really dislike it. I could go on and on but besides the lack of infection control protocol they also get my cultures wrong (wrote pseudomonas in...
  9. I feel pretty similar to what you are describing....

    I feel pretty similar to what you are describing. It seems like this has been ever since I was treated for MAC as well. My numbers are good and doctors dismiss what I say. I do have CFRD though,...
  10. I am 30, female, with CF-mild to moderate. I work...

    I am 30, female, with CF-mild to moderate. I work full time in a professional setting and pretty much support both myself and my fiancÚ. He works part time right now and is finishing school so that...
  11. Replies
    5
    Views
    1,184

    I wrote a long reply to you and then I...

    I wrote a long reply to you and then I accidentally clicked the wrong button :-(

    Shorter: My fiance is in nursing school. You can do an RN with an associates (ASN) or a bachelor's (BSN) granted...
  12. Replies
    12
    Views
    3,752

    29 years old, with Df508del, U.S. morning:...

    29 years old, with Df508del, U.S.
    morning: Symbicort, 2 puffs, lantus insulin: 14 units
    evening: pulmozyme and albuterol
    varies: Extra vitamin A, D, E, K, and multivitamin, exercise, Ultresa 5...
  13. I dont post a lot, but I do read all the posts. ...

    I dont post a lot, but I do read all the posts. This example is maybe not gross, but I still get embarrassed when I cough all the time on the bus or train surrounded by people (I live in a...
  14. Try to not be discouraged preemptively, you never...

    Try to not be discouraged preemptively, you never know what is going to happen in the future! Just to add my two cents I am homozygous for df508 mutation and almost 30yrs of age with more pancreatic...
  15. Replies
    12
    Views
    1,964

    Depending on where you live you may be eligible...

    Depending on where you live you may be eligible for all sorts of government supported programs for health insurance. I myself received Medicaid for a couple years because I worked part time (you can...
  16. Replies
    65
    Views
    12,841

    Age 29, female, Double D508, mine is usually...

    Age 29, female, Double D508, mine is usually between 102-112%. These percentages vary depending on which measurement they use at your clinic, my clinic uses a lower threshold (meaning my percentages...
  17. Replies
    8
    Views
    2,642

    Thank you for your replies, I did not log in...

    Thank you for your replies, I did not log in again until now! My Vitamin D level was 16 and then I began taking the prescription supplements. 4 months later my Vitamin D level is 13 (this seems...
  18. Replies
    8
    Views
    2,642

    Vitamin D deficiency

    I am wondering whether anyone uses a UVB lamp (sun lamps, sometimes also used to treat seasonal affective disorder) to increase Vitamin D levels? If not, what did you do to successfully increase...
  19. PFT Goal's thread. Trying to achieve 60% FEV1.

    Looking good! Hey you said your bike was stolen. I, personally, am on my third bike in 3 years in Chicago (Oh I lock them properly, yes). sighs* However have you applied for the CF activity...
  20. Replies
    49
    Views
    3,214

    How awesome is your doctor?

    Fantastic!! I tested them after reading this thread by emailing a request. Response time for email: 6 minutes. Once I needed a lot of paperwork within a short time frame and they had filled it out...
  21. Replies
    49
    Views
    3,214

    How awesome is your doctor?

    Fantastic!! I tested them after reading this thread by emailing a request. Response time for email: 6 minutes. Once I needed a lot of paperwork within a short time frame and they had filled it out...
  22. Replies
    141
    Views
    20,887

    What song do you relate your CF fight to

    It's a country music song... arggghh but, Live Like you Were Dying by Tim McGraw is pretty fitting.
  23. Thread: Zenpep

    by franzie2984
    Replies
    11
    Views
    2,051

    Zenpep

    I too am waiting for Ultresa to be available.
    Zenpep is okay but I prefer Ultrase coupled with Prevacid, that seems like the best combo for me. Others I am sure are different. Creon was the worst...
  24. What's your lung function and what can you do with it?

    112% but who knows about those percentages... My volume in liters is predicted at 3.43 and in actuality is 3.83. My smallest airways are at 83%, all other numbers are between 100-144%
    Depends on how...
  25. What's your lung function and what can you do with it?

    112% but who knows about those percentages... My volume in liters is predicted at 3.43 and in actuality is 3.83. My smallest airways are at 83%, all other numbers are between 100-144%
    Depends on how...
Results 1 to 25 of 127
Page 1 of 6 1 2 3 4