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  1. Thread: Atypical CF

    by Gibson75
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    2,331

    Thank you for your reply Ratatosk. Yes I have...

    Thank you for your reply Ratatosk. Yes I have heard of some CF's that have a positive sweat test and have very little symptoms when they are young. It does seem the opposite for my boy. He is quite...
  2. Thread: Atypical CF

    by Gibson75
    Replies
    2
    Views
    2,331

    Atypical CF

    Looking for a bit of information and advise.

    My son, just turned 6 has had symptoms since birth.
    He takes Creon for PI
    Suffers constipation
    Chronic sinus infections
    many URI
    Cough - he has...
  3. I know how you feel. My boy (just turned 5) got...

    I know how you feel. My boy (just turned 5) got pseudo when he was 4 and was put on Tobi. He also has not received a diagnosis but has had symptoms his entire life;
    Daily cough
    On and off creon -...
  4. Thread: Advice needed

    by Gibson75
    Replies
    8
    Views
    3,581

    Thanks all for your advice. I'm in Australia and...

    Thanks all for your advice. I'm in Australia and my son has been tested for PCD and everything else - all negative. He has also undergone every allergy test with a negative result. I will speak to...
  5. Thread: Advice needed

    by Gibson75
    Replies
    8
    Views
    3,581

    Advice needed

    I have posted on here previously as my now 4 old son has continued to have cf symptoms even after repeated negative sweats. He was dna tested
    The result reads he is heterozygous...
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