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  1. my boyfriend and i live together as well and when...

    my boyfriend and i live together as well and when he gets sick i usually sleep on an air mattress in the living room (he offers to sleep elsewhere but it gives me a chance to cuddle w/ my kitties as...
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    i had my first, and only so far, embolization in...

    i had my first, and only so far, embolization in July 2007! it was same experience as erock77 mentioned ... they did conscious sedation ("twilight"), went up thru the femoral artery and found a...
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    will be sharing the Amazon link to your book on...

    will be sharing the Amazon link to your book on my Facebook timeline as i hope people will read and share as well :D
  4. Thread: I'm 34!

    by lilmac1177
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    (^) HAPPY BIRTHDAY! (^) my 36th was November 14!

    (^) HAPPY BIRTHDAY! (^) my 36th was November 14!
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    the bronch should be able to tell if there's...

    the bronch should be able to tell if there's something else down there, i would think about suggesting one be done in case they're missing something ... also, not everyone who has CF cultures Pseudo...
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    do you get sputum cultures regularly to see what...

    do you get sputum cultures regularly to see what you're culturing and what antibiotics are sensitive/resistant? have you ever had a bronch done to maybe see if there's something being missed thru...
  7. i was diagnosed just after birth and i'm now 35...

    i was diagnosed just after birth and i'm now 35 (will be 36 in Nov) ... my FEV1 is mid-40's when i'm at baseline ;)
  8. admission day is by far the worst! you already...

    admission day is by far the worst! you already feel like total crap but can't rest because of the intake: med hx, med orders, more questions, IV insertion, etc, then almost always i have to go what...
  9. my mom never kept me from anything as a child w/...

    my mom never kept me from anything as a child w/ CF; i had bronchitis once and admitted only one time in 11 years for pneumonia! i strongly believe that by not being germaphobic, i developed an...
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    i'm an Emergency Telecommunicator for Fire, EMS...

    i'm an Emergency Telecommunicator for Fire, EMS and Police! been at it for ten years and love it!!!
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    i'm sorry to hear when any one of us lose the...

    i'm sorry to hear when any one of us lose the battle! many prayers for comfort in the memories and peace that he is resting well now...
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    i must have a more horrible sense of smell than i...

    i must have a more horrible sense of smell than i thought because i just opened my first bottle of AquADEKs (softgels) and don't notice a bad smell!
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    may i ask ... what is hypotonia?

    may i ask ... what is hypotonia?
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    i am allergic to Ceftaz - it gave me hives!

    i am allergic to Ceftaz - it gave me hives!
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    i've had one embolization thus far (two years...

    i've had one embolization thus far (two years ago) and no fever that i remember, but i recall them telling me it wasn't abnormal to run a fever. also, i had very little pain afterward. i had worse...
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    what about kidney? have you ever had kidney...

    what about kidney? have you ever had kidney stones??? i had one in each kidney at the same time a several years ago and O.M.G. ... first time i'd ever had them, and i first thought it was an...
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    i, too, have had experience w/ severe joint pain...

    i, too, have had experience w/ severe joint pain in all my major joints and it can be pretty debilitating at its worst! ibuprofen helped at first, but after a few bouts of it, ibuprofen nor Naproxen...
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    wow! i must be in the minority here LOL ... with...

    wow! i must be in the minority here LOL ... with each job i've had (only four in 16 years), i've always been up front w/ my employers about having CF and have (apparently) been lucky they've not once...
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    i also watch "Bates Motel" ... i was hoping she...

    i also watch "Bates Motel" ... i was hoping she wasn't going to be in just the premier episode, but so far she seems to be a supporting character!
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    i have a road map on my stomach from multiple...

    i have a road map on my stomach from multiple surgeries at birth for meconium ilieus! they'll never go away, so battle scars ain't a big thing for me ... and my boyfriend loves them! he likes to...
  21. i, too, have always been what i call a "homebody"...

    i, too, have always been what i call a "homebody" ... i truly enjoy being home w/ my boyfriend (he's also a homebody) and furbabies (they're also homebodies LOL)! i don't necessarily attribute it to...
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    i'm having a hard time wrapping my head around...

    i'm having a hard time wrapping my head around any nurse having a say in whether you get a port or not AND that she would discourage it even if she did. beyond that, isn't standard treatment for MAC...
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    so this is a great thread to read right now as I...

    so this is a great thread to read right now as I am flying American Airlines from Maryland to Texas next weekend, but i'm still confused...

    here's what i need to take:
    thAIRapy vest (this is the...
  24. i've had issues w/ one of my two cats puncturing...

    i've had issues w/ one of my two cats puncturing my neb tubing! he will go thru spells where he doesn't touch it for long periods of time then he will chew on it again; however, i finally wised up...
  25. Thread: New Lungs

    by lilmac1177
    Replies
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    3,357

    congratulations, moonlutz11! take care of you :D

    congratulations, moonlutz11! take care of you :D
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