Search:

Type: Posts; User: beautifulsoul

Page 1 of 20 1 2 3 4

Search: Search took 0.02 seconds.

  1. Replies
    1
    Views
    909

    Happy Birthday Amber

    Last Friday was my 27th birthday. I wake up everyday and still can't believe I'm alive. I didn't think I would live past my 15th birthday and here I am, 11 years later, surviving with a double-lung...
  2. Hi Jshet- I just transferred to UMPC about a...

    Hi Jshet-

    I just transferred to UMPC about a year ago. I'm not sure where they got that information from. I have had my dad go back with me during my appointment. The only place they will not...
  3. Replies
    1
    Views
    672

    Battling Anxiety and Depression

    I've been dealing with anxiety and depression for several years now and during this latest bout I decided to try something new- "depression art" I've attached my work.

    I also wrote a blog about...
  4. Replies
    4
    Views
    2,227

    I never did want one, however, it wasn't my...

    I never did want one, however, it wasn't my choice to decide that. I was a minor at the time. My parents decided for me. Although, I'm really blessed I did not have that choice. I have been alive for...
  5. Replies
    6
    Views
    3,160

    Congratulations! I wish you good health and...

    Congratulations! I wish you good health and happiness from here on out. Transplantation is truly a gift. God is good!

    Love and Hugs,
  6. Replies
    4
    Views
    2,166

    ugh, I hate this question too! It always reminds...

    ugh, I hate this question too! It always reminds me of this terrible disease that robs us of so much! Do you have any hobbies? I try to make it sound like my hobbies are my job, or at least make it...
  7. Celebrating 11 years breathing with double-lung transplant

    Hello friends!

    Another anniversary in the books today! I am officially in my second year of the double digits! I typed up a timeline of my journey on my blog.

    SMALL EXCERPT:

    2004
    I am...
  8. From Fear to Fearless- Are you struggling with fear?

    I know a lot of us struggle with feelings of fear- especially those with CF. Fear of death, fear of the future, fear of failure. I wrote all about the topic of fear on my blog.

    SMALL EXCERPT:
    ...
  9. She's in her early 50's. She does take the...

    She's in her early 50's. She does take the enzymes because of her GI symptoms. Her lungs are completely normal. She has unrelated heart issues. I guess I just can't fathom her being diagnosed at her...
  10. I have CF and my mom who has been showing...

    I have CF and my mom who has been showing symptoms only the past couple of years was just diagnosed not too long ago through two sweat tests. She has one copy of DELF508 and the other is unknown....
  11. I had my transplants when I was 15 years old....

    I had my transplants when I was 15 years old. I'll be 11 years post next week! I am blessed beyond measure! <3
  12. Replies
    7
    Views
    2,824

    I'm not in the same position, but no, you're not...

    I'm not in the same position, but no, you're not wasting time. Continue to go for what you want in life. You can't predict the future too far ahead. We wouldn't get anywhere if we kept saying, "what...
  13. My Lungs Are Made For Breathing (poem)

    I wrote this poem, which represents the different stages of my life. Over the past several years, I’ve struggled to accept the circumstances after my transplants. I went from living a semi-normal...
  14. Yes, I wonder the same thing. I found what...

    Yes, I wonder the same thing.

    I found what Ratatosk was referring to:

    In response to questions about the use of Vogmasks by people with CF in clinical settings, please note that these masks are...
  15. Replies
    3
    Views
    1,546

    Hearing Loss Awareness

    Hello Readers,

    I lost my hearing 15 years ago from an ototoxic medication, Amikacin. I wrote all about my journey on my blog. Feel free to read and share.

    The Gift of Sound Part 1

    The Gift...
  16. Replies
    6
    Views
    3,074

    I apologize for the significant time gap. I...

    I apologize for the significant time gap.

    I honestly don't do much exercise. I never run. Although, I can shop for a few hours without my legs tiring, or getting out of breath. I can bring several...
  17. Thank you so much Suzyqz ;)

    Thank you so much Suzyqz ;)
  18. Sleep in separate rooms while he's sick, no...

    Sleep in separate rooms while he's sick, no kissing, or intimacy! We use Lysol wipes in bathroom, counters, doorknobs. If he actually gets the FLU, GET OUT! Stay with family or friends until he's...
  19. Replies
    7
    Views
    2,757

    Congrats! What an exciting time in your journey!...

    Congrats! What an exciting time in your journey! Keep us dated with your progress.

    hugs,
  20. Replies
    0
    Views
    923

    A Conversation with Gunnar Esiason

    Hi everyone,

    I have a new post up on my blog, an interview with Gunnar Esiason. https://acreativenewmie.com/2017/09/06/a-conversation-with-gunnar-esiason/#more-3366

    For those who don't know who...
  21. Thank you so much littlelab and rubyrose! Don't...

    Thank you so much littlelab and rubyrose! Don't forget you can vote once every 10 days.

    <3

    Hugs,
  22. Replies
    10
    Views
    5,115

    Thank you for sharing! This is so wonderful! ...

    Thank you for sharing! This is so wonderful!

    Much love and blessings,
  23. This is a true story on why you should not meet...

    This is a true story on why you should not meet others with CF. This couple died because of each other. ...
  24. Replies
    6
    Views
    3,074

    Thank you! My nurse coordinator has always...

    Thank you!

    My nurse coordinator has always told me prograf and cellcept need to be taken on time each day, but if you happen to forget for some reason or another, you can take it no earlier or...
  25. Replies
    5
    Views
    1,892

    Duke is a great center. I'm sure you'll be in the...

    Duke is a great center. I'm sure you'll be in the care of excellent doctors. We were overwhelmed with the wealth of information the first time I visited. Try not to stress too much about all the...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4