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Type: Posts; User: chevbacher

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  1. Replies
    10
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    2,133

    Thank you Kenna2 i would love to get a head...

    Thank you Kenna2
    i would love to get a head start with enrolling my daughter in a clinic that when it is available she will have access. Any idea how I go about enrolling? Do I just walk in to a...
  2. Replies
    10
    Views
    2,133

    Hi there. I live in South Africa, my daughter is...

    Hi there. I live in South Africa, my daughter is 11 with CF. We are USA citizens. Does anyone have any idea how I can register to get the 3 in one drug that’s out now? Any info would help! Thank you....
  3. Replies
    9
    Views
    3,152

    Also to hold breath for a bit when huffing could...

    Also to hold breath for a bit when huffing could be helpful. Iíll let you know how it goes. Itís amazing to have a community from all over the world!
  4. Replies
    9
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    3,152

    These are all such helpful ideas, thank you for...

    These are all such helpful ideas, thank you for your help, really makes me feel that we are not alone. I will speak to our Dr about the IPV and bicarbonate
  5. Replies
    9
    Views
    3,152

    Thank you Ratatosk, I appreciate your advice. I...

    Thank you Ratatosk, I appreciate your advice. I will increase the nebs and physio and drinking more is a good idea thank you!
  6. Replies
    9
    Views
    3,152

    Mass of mucus in chest

    Dear fellow participants, my daughter with CF who is 11 years old is struggling to fall asleep these days. She is huffing and coughing so hard trying to clear her chest but canít get it up. We try...
  7. Replies
    34
    Views
    2,589

    could tobi cause pinkeye?

    i was interested to see that you brought this up.we use Gentamycin nebs. and my 2 year olds eyes get very red every few weeks. they get bad and than get better after a few days. i recently took her...
  8. Replies
    34
    Views
    2,589

    could tobi cause pinkeye?

    i was interested to see that you brought this up.we use Gentamycin nebs. and my 2 year olds eyes get very red every few weeks. they get bad and than get better after a few days. i recently took her...
  9. Replies
    34
    Views
    2,589

    could tobi cause pinkeye?

    i was interested to see that you brought this up.we use Gentamycin nebs. and my 2 year olds eyes get very red every few weeks. they get bad and than get better after a few days. i recently took her...
  10. Replies
    34
    Views
    2,589

    could tobi cause pinkeye?

    i was interested to see that you brought this up.we use Gentamycin nebs. and my 2 year olds eyes get very red every few weeks. they get bad and than get better after a few days. i recently took her...
  11. Replies
    34
    Views
    2,589

    could tobi cause pinkeye?

    i was interested to see that you brought this up.we use Gentamycin nebs. and my 2 year olds eyes get very red every few weeks. they get bad and than get better after a few days. i recently took her...
  12. Replies
    33
    Views
    3,031

    Does it ever end?

    i can really understand what you are going through..it definitely feels like that on some days..i think one of the toughest aspects of dealing with my baby having CF is that it is an ongoing lifelong...
  13. Replies
    33
    Views
    3,031

    Does it ever end?

    i can really understand what you are going through..it definitely feels like that on some days..i think one of the toughest aspects of dealing with my baby having CF is that it is an ongoing lifelong...
  14. Replies
    33
    Views
    3,031

    Does it ever end?

    i can really understand what you are going through..it definitely feels like that on some days..i think one of the toughest aspects of dealing with my baby having CF is that it is an ongoing lifelong...
  15. Replies
    33
    Views
    3,031

    Does it ever end?

    i can really understand what you are going through..it definitely feels like that on some days..i think one of the toughest aspects of dealing with my baby having CF is that it is an ongoing lifelong...
  16. Replies
    33
    Views
    3,031

    Does it ever end?

    i can really understand what you are going through..it definitely feels like that on some days..i think one of the toughest aspects of dealing with my baby having CF is that it is an ongoing lifelong...
  17. my two year old doesn't want to nebulize and very very hoarse voice

    ok..here are 2 questions for this wonderful team who i dont know at all but feel a part of...firstly, my 2 year old, Tehilla with CF has a very very hoarse deep throaty voice. it's been this way...
  18. my two year old doesn't want to nebulize and very very hoarse voice

    ok..here are 2 questions for this wonderful team who i dont know at all but feel a part of...firstly, my 2 year old, Tehilla with CF has a very very hoarse deep throaty voice. it's been this way...
  19. my two year old doesn't want to nebulize and very very hoarse voice

    ok..here are 2 questions for this wonderful team who i dont know at all but feel a part of...firstly, my 2 year old, Tehilla with CF has a very very hoarse deep throaty voice. it's been this way...
  20. my two year old doesn't want to nebulize and very very hoarse voice

    ok..here are 2 questions for this wonderful team who i dont know at all but feel a part of...firstly, my 2 year old, Tehilla with CF has a very very hoarse deep throaty voice. it's been this way...
  21. my two year old doesn't want to nebulize and very very hoarse voice

    ok..here are 2 questions for this wonderful team who i dont know at all but feel a part of...firstly, my 2 year old, Tehilla with CF has a very very hoarse deep throaty voice. it's been this way...
  22. What do docs consider when admitting for iv antibiotics?

    hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here...
  23. What do docs consider when admitting for iv antibiotics?

    hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here...
  24. What do docs consider when admitting for iv antibiotics?

    hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here...
  25. What do docs consider when admitting for iv antibiotics?

    hi. i'm jumping in here. i was quire surprised when the nurse who helps with my tehilla's port (age 2 with CF) told me to get her hearing tested. the Dr. never mentioned it to us! anyway, over here...
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