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  1. Replies
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    Lol! That's funny cuz I see you posted this at...

    Lol! That's funny cuz I see you posted this at 2:30 pm and I'm just seeing it now!! I guess we know now it's a phone thing. Thank you for caring about my friend. You would love him, he's an...
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    Oh wow, thanks Stephen!!

    Oh wow, thanks Stephen!!
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    Kenna2 I am positive that your message on...

    Kenna2 I am positive that your message on September 22 did not show up until today or I wouldn't have posted that nobody responded but Ratatosk!! I don't understand why it didn't show up?? I...
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    Thank you Kenna2 and MissAlexs! I just saw your...

    Thank you Kenna2 and MissAlexs! I just saw your posts, idk why they didn't show up before now?? I was on this site yesterday and they were not on here??? But I did get your pm MissAlexs. I...
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    Burkholderia cepacia help, PLEASE

    My friend has been in the hospital for the last month and they have tried synergistic medicines through iv first and then the last couple weeks they tried fosfomycin through iv.

    I edited this post...
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    I am sorry you are having such severe pains. I...

    I am sorry you are having such severe pains. I have a friend who has been vomitting every day for the last couple weeks and losing weight and I didn't know what to tell my friend other than to see...
  7. Just so you all know that I know I am not liked...

    Just so you all know that I know I am not liked much by most of you but I have never been into trying to be popular and frankly I wish I could tell how much I care about that but I will hold back. I...
  8. Twistofchaos - idk if you are out there and can...

    Twistofchaos - idk if you are out there and can read this but I'm going to take a chance that you are. I hope you come back on this forum because you are greatly missed. I appreciate your pm to me...
  9. Hi Littlelab - my purpose for coming back on this...

    Hi Littlelab - my purpose for coming back on this forum is the same as I want this forum to be there for people with cf and their families who may have nobody outside of their doctors to talk with...
  10. Thank you Melissa. My sons are doing well, we...

    Thank you Melissa. My sons are doing well, we take it a day at a time. I hope we hear from some of those who haven't been on for awhile, I miss hearing from them. I appreciate your welcome back...
  11. I miss reading your posts, hope you are fine.

    Hi you all... I was allowed to return to this forum and since I can now respond and not just read everyone's posts like I have for the last year and a half, I want to say that I have missed many of...
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    Wcherri: No Problem!!! I am not that stupid that...

    Wcherri: No Problem!!! I am not that stupid that I would throw away neb after neb and know that there would be no repercussions! Did you notice that you were not the target of that reply? I was. ...
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    Brad - I know you are probably in pain and not...

    Brad - I know you are probably in pain and not want to talk but I just wanted you to know that I have been praying for you that your surgery went fine yesterday and that you are doing well and did...
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    Static: I'm with you on the "hating" them for...

    Static: I'm with you on the "hating" them for smoking thing. I try not to hate anyone. My younger son smoked until just recently, of course outside and ALWAYS away from his brother but he still...
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    Very cool story! I loved how she made a device...

    Very cool story! I loved how she made a device to dry her nebs and I also like the pill light. Thank you for sharing that!
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    Oh! I understood in your first post AboveAll...

    Oh! I understood in your first post AboveAll that your hospital uses once and done? Not what you "want"? Besides that what you are saying is that NO bacteria can stay in a neb within 24 hours and...
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    Dear Brad - Sorry I was private messaging a...

    Dear Brad - Sorry I was private messaging a friend and did not see your message till I logged off. I WILL pray for you. I have been praying for you along with 4 other people on here every day. You...
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    I agree with Lori. You can find out everything...

    I agree with Lori. You can find out everything you want to know about the disease and talk to all her doctors and find out what to expect but if your heart loves her and you decide against being...
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    Dear FallingForHer - that name says it all. I...

    Dear FallingForHer - that name says it all. I loved reading your story and I can tell you are falling in love and that is so sweet! You have to understand that your family is not in love with her...
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    I forgot to mention that I really love the...

    I forgot to mention that I really love the suggestion from wcherri to toss the nebs "accidentally" after each use! That seems like the only way around this. I know the hospital would not do anything...
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    Yes, I do. The CFF guidelines need to be...

    Yes, I do. The CFF guidelines need to be changed. The reason the hospitals are doing it this way is because they ARE following the CFF guidelines. The trouble is the Cystic Fibrosis Foundation...
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    I also want to say to GoriLori that I admire your...

    I also want to say to GoriLori that I admire your strength and courage. You have faced many difficult obstacles in your life that you did not deserve. I admire that you see the blessings in your...
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    I'm glad you are feeling better Static! I'm happy...

    I'm glad you are feeling better Static! I'm happy you realized not to sweat the small stuff and to take it a moment at a time. Like I told you, this has really helped me when I worry about the...
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    Kmhbeauty - These are excellent suggestions, I...

    Kmhbeauty - These are excellent suggestions, I was only telling you about assistance through the government because you have stated before you did not want to take out any more loans which I agree...
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    Oh goodness Brad! It sounds painful! My son...

    Oh goodness Brad! It sounds painful! My son came back here at the end of January and had a horrible headache and I got an emergency appointment with his ENT and he suggested the surgery you are...
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