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Type: Posts; User: hmw

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  1. Replies
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    It's always wise to exercise common sense and...

    It's always wise to exercise common sense and maintain a certain level of preparedness for emergency. It's kind of like keeping jumper cables and basic tools in your car- you hope you don't need...
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    It is very scary the first time this happens! I'm...

    It is very scary the first time this happens! I'm glad you heard back and have a plan. I hope it doesn't happen again.

    Emily has been coughing up small amounts of blood streaked sputum for a while...
  3. Oh goodness...!!!! 1/ As posted... she should be...

    Oh goodness...!!!!
    1/ As posted... she should be getting labs yearly. This has truly been NEGLECT not to do so for so long (edited to add: on the doctor's part, not yours of course!!) I agree that...
  4. Thread: Nothing But Hope

    by hmw
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    1,504

    I looked around for a post asking this question...

    I looked around for a post asking this question and couldn't find one that had upsetting replies- granted, it may have been obvious but for whatever reason I didn't see it.

    But at any rate-...
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    Rude Hospital Nurses

    Of course we all choose for ourselves what to read here and who we will choose to support.

    And yes, my reference was to refraining from personal attacks. Your first post expressed an opinion in...
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    Rude Hospital Nurses

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>beautifulsoul</b></i>

    The original poster has asked for SUPPORT....This is not a pick sides topic. Please stay on topic and post...
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    Follow up with Dr Harry

    I was wondering along the same lines as Teri- upon seeing g551d in your sig I wanted to ask if you were on Kalydeco and how you were doing, and then saw that you have been dx'ed with entirely...
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    Charging for DAFCF...

    That is more than reasonable! Non-profits still have to cover their operating expenses and this is not a burdensome fee at all for the service you provide- especially since you would only charge...
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    Rude Hospital Nurses

    It had occurred to me when your son was asked about breakfast he'd either 1/ not seen the menu for the next day to know what he wanted to order and hadn't yet thought about it or 2/ given part of why...
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    Rude Hospital Nurses

    Oh goodness. I'm all for cutting a bit of slack (as in not reading into every little thing said and done) as no one is perfect- but this is way over the top and goes far beyond that. "maybe this is...
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    Hypertonic Saline tolerance test?

    All kids try hypersal in clinic for the first time at our center since it can cause bronchospasm, especially for people that have issues with a lot of inflammation/asthma. Emily did pft's, albuterol,...
  12. Thread: Nothing But Hope

    by hmw
    Replies
    9
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    1,504

    Nothing But Hope

    I don't quite understand... this forum is filled with the people you are looking for, but that doesn't quite seem to be what you are asking for- you are referring to what you've been reading here....
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    What to do when G-tube doesn't help

    Since he was doing better with his tube feeds before he stopped tolerating larger amounts at night, can a small amount be considered during the day- for example, AFTER he has eaten his fill, a small...
  14. Thread: Praying for Micah

    by hmw
    Replies
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    4,661

    Praying for Micah

    Thinking of Tom, Micah and the entire family... Peace, strength and comfort to all.
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    1,704

    Can somebody tell me...

    Some CF Centers pass out into (especially right at the time of dx) in huge amounts and never pause long enough to answer questions or even see if we HAVE questions. It doesn't necessarily mean they...
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    1,704

    Can somebody tell me...

    Some CF Centers pass out into (especially right at the time of dx) in huge amounts and never pause long enough to answer questions or even see if we HAVE questions. It doesn't necessarily mean they...
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    Hill Rom 105 vest machine

    If you don't finish your programmed session, the light stays on foreverrrrr. If it goes all the way through to 'session complete' the light shuts off within a few minutes. Home screen it goes off as...
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    1,850

    Hill Rom 105 vest machine

    If you don't finish your programmed session, the light stays on foreverrrrr. If it goes all the way through to 'session complete' the light shuts off within a few minutes. Home screen it goes off as...
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    Pulmozyme with Pari LC?

    Sidestream is fast, but this is due to how much med is wasted (unless you get their newer breath enhanced version- I'm curious to know if that one takes longer, more like a Pari.) The benefit of the...
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    Pulmozyme with Pari LC?

    Sidestream is fast, but this is due to how much med is wasted (unless you get their newer breath enhanced version- I'm curious to know if that one takes longer, more like a Pari.) The benefit of the...
  21. Worrisome topic - Large Corporations are self insuring

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>DrRoe</strong></em> Unfortunately LouLou you aren't missing anything.. (I teach courses in health admin and this is one topic we...
  22. Worrisome topic - Large Corporations are self insuring

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>DrRoe</strong></em> Unfortunately LouLou you aren't missing anything.. (I teach courses in health admin and this is one topic we...
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    Vest machine and neb air compressor, broken?

    Yeah I wasn't sure how well he'd been fitted for the vest~ figured it was worth a try.

    Wow, 10yrs. I bet he'll have the benefit of having neb treatments go faster now! I love that part when we...
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    Vest machine and neb air compressor, broken?

    Yeah I wasn't sure how well he'd been fitted for the vest~ figured it was worth a try.

    Wow, 10yrs. I bet he'll have the benefit of having neb treatments go faster now! I love that part when we...
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    1,722

    Vest machine and neb air compressor, broken?

    When the vest is too tight it doesn't inflate right, or when air is leaking- and the leak can come from either the hoses being cracked, the connection between hose and vest being worn out, or the...
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