My daughter is between sizes as well and her torso is long. Respirtech sent me a sizing sheet. I measured her and they were able to create a custom vest to fit her measurements.
Type: Posts; User: MargaritaChic
My daughter is between sizes as well and her torso is long. Respirtech sent me a sizing sheet. I measured her and they were able to create a custom vest to fit her measurements.
I just bought a copy and can't wait to read it. :0)
Our clinic has always told us to sterilize/boil the fishy masks.
Great idea. Anything I have tried to make ahead of time breaks down in the refidgerator (ie. separates).
I think your doctor is leaving the decision up to you because you need to weigh the cost/benefit for your child since the current data did not support putting a child under 6 on the drug.
My...
I am surprised that your doctor did not inform you of this side effect before putting your child on the drug. Especially knowing her history.
Our daughter is 4 and the doctor told us of this...
Our clinic (the University of Minnesota) prescribes proactive treatments. Our daughter started on CPT at 8 days old and nebs at 1 month old. She got a Vest at 1 year old. Her baseline is no cough and...
I agree. Post in the family section and you will get a lot of info from the moms/dads there.
Interesting! I am also interested in the cost.
The site states they are creating children's models, which makes me wonder about how they handle the child's growth. Would a person need to purchase...
I disagree. There are several CF drugs available that slow progression. I really doubt they all decrease sweat chloride. I don't think sweat chloride is the only predictor of whether the drug...
I believe the .09% was the control group. The participants that actually got HTSrecieved 7%.
My daughter participated in the study. She does not have significant lung involvement yet. She had her...
Does anyone havea link to the study results?
My daughter is 4and is currently on a 3 week round of HTS due to having been hospitalized for pnemonia and influenza. At this point, we do not plan to...
semperfiohana, the list you posted are the most common mutations. <strong>Not</strong> the most common <strong>gating</strong> mutations.
Does anyone have a list of what mutations are gating...
semperfiohana, the list you posted are the most common mutations. <strong>Not</strong> the most common <strong>gating</strong> mutations.
Does anyone have a list of what mutations are gating...
<P>Our daughter goes to theUniversity of Minnesota. It is one of the clinics featured in the previously mentioned article. Dr. Warren Warrick was a Pioneer in CF and invented the Vest. He has now...
<P>Our daughter goes to the University of Minnesota. It is one of the clinics featured in the previously mentioned article. Dr. Warren Warrick was a Pioneer in CF and invented the...
<P><BR>Our daughter goes to theUniversity of Minnesota. It is one of the clinics featured in the previously mentioned article. Dr. Warren Warrick was a Pioneer in CF and invented the Vest. He has now...
Test results can vary greatly by day and by tester.
Test results can vary greatly by day and by tester.
Test results can vary greatly by day and by tester.
<P>I know many people will disagree with this, BUT Our CF clinic told us that statistically children with CF who do NOT attend daycare until after the age of 3 do better with their...
<P>I know many people will disagree with this, BUT Our CF clinic told us thatstatistically children with CF who do NOT attend daycare until after the age of 3 do betterwith their health.</P>...
<P><BR>I know many people will disagree with this, BUT Our CF clinic told us thatstatistically children with CF who do NOT attend daycare until after the age of 3 do betterwith their health.</P>...
We are in Minnesota. LOTS and LOTs of snow.
We are in Minnesota. LOTS and LOTs of snow.