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    The air compressor was about $150, so not so bad....

    The air compressor was about $150, so not so bad. The issue is that it can be rather loud and it is large. How loud is the electro flo 500?
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    Just to update anyone who might be interested in...

    Just to update anyone who might be interested in this: I did find a work around. I purchased a Fluid Flo from med systems. It is basically the same device, but about 1/5 the price. The catch is...
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    seeking Electro-flo 5000 precussor

    If anyone has a used Electro-flo, as the title says I am looking for one. It is not covered by my insurance.

    Thanks much!
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    anyone culturing enterobacter cloacae in lungs?

    I am a symptomatic CF carrier, not a full blown person with CF (both my children have it.) Anyway, last Nov. I cultured atypical pneumonia after feeling short of breath and malaise for several...
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    My older son is a data scientist (got an MS...

    My older son is a data scientist (got an MS degree in Bioinformatics) If he has an exacerbation he can work from home. Younger son desires a less cf-friendly job. We'll have to see how that pans...
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    Helenlight I hear you. My son is back on the...

    Helenlight I hear you. My son is back on the sinus budesenide. Otherwise he would need to be on antibiotics and oral steroids all the time. Can't win.
  7. Thread: Weight Gain

    by fel
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    Are any of you on this thread pancreatic...

    Are any of you on this thread pancreatic sufficient? My son is PS, but he is still struggling with low weight. Unfortunately (or fortunately?) he doesn't really care for junk food/fast food.
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    Update: We figured out the cause of the adrenal...

    Update: We figured out the cause of the adrenal insufficiency/low cortisol. It was the budesenide (steroid) in his sinus rinses, used to treat sinus inflammation. Once he stopped putting...
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    StellaTx -- my two sons (my only children) were...

    StellaTx -- my two sons (my only children) were diagnosed at just about the same age as yours, both at once, just like you. You are lucky they can take Kalydeco -- mine are not approved. I think the...
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    Both my sons have CF, not diagnosed until they...

    Both my sons have CF, not diagnosed until they were 13 and 17. The 17 year old's only symptom was a cough that would not go away.
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    My sons take NAC. Their CF doctors know about it...

    My sons take NAC. Their CF doctors know about it and approve. It is hard to tell if it is effective, since they do so many treatments...
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    Just want to say thank you to all of those who...

    Just want to say thank you to all of those who have written. I will discuss with my son revisiting the issue of vitamins! In fact, Megan, I may start taking vitamin D again myself as I have joint...
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    Thanks bobanny -- when you say high quality...

    Thanks bobanny -- when you say high quality vitamins -- what does that mean? Is it a particular mixture? He already takes vitamins and a food supplement to keep on weight.
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    Thanks MissAlexsBP-- we are actually now fairly...

    Thanks MissAlexsBP-- we are actually now fairly certain it is the levaquin that caused the wrist pain, since the pain began within 2 days of the levaquin. Unfortunately that was two months ago and...
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    I should mention he was also taking Levaquin when...

    I should mention he was also taking Levaquin when this started. He has been off it for well over a month. Could that be the cause? I developed peripheral neuropathy from Levaquin but it went away...
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    Suzanne12-- please let me know if you learn...

    Suzanne12-- please let me know if you learn anything as well. We are doing bloodwork also, probably next week.
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    One of my sons had it -- he found it about the...

    One of my sons had it -- he found it about the same as the camera probe from an ENT (which I can say from experience is pretty uncomfortable if you have a lot of inflammation like I do). But the...
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    Medical mystery: Collection of weird symptoms

    I am hoping some of the smart people on this forum can help us figure out what is going on. DS is 18, dx CF by sweat chloride, genetics are unclear.

    He has had 3 sinus surgeries and has...
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    My 18yo son (w/cf, obviously) was dxed with lyme...

    My 18yo son (w/cf, obviously) was dxed with lyme disease in April, with symptoms of dizziness, muscle/joint pain, and shortness of breath. Took doxy for 5 weeks, and some but not all symptoms...
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    Treasuregoddess -- was your son born with AI or...

    Treasuregoddess -- was your son born with AI or did it develop from therapies with steroids? We are having some difficulty determining when he needs a supplement and when he is OK -- especially...
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    Symptoms: sudden weight loss, fainting, tingly...

    Symptoms: sudden weight loss, fainting, tingly feeling in limbs, brown spots on skin. They are not yet treating it effectively. It was diagnosed based on low cortisol levels.
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    Adrenal insufficiency

    Have any of you CFers developed Adrenal Insufficiency? My DS appears to have, probably from too many steroid medications. I would love to hear about the CF experience with this, including if it...
  23. Thread: unknown genotype

    by fel
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    Hi Luna, My sons both have one unknown...

    Hi Luna,

    My sons both have one unknown mutation -- So it does happen sometimes. They were both diagnosed on sweat tests +symptoms. Good luck in your search.
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    Thanks Jricci -- very helpful.

    Thanks Jricci -- very helpful.
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    Thanks!!! Does anyone know -- if a student...

    Thanks!!!

    Does anyone know -- if a student receives one CF scholarship (for, let's say, $1000), is it considered inappropriate to try to double up and apply for another?
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