Search:

Type: Posts; User: scarecrow

Page 1 of 5 1 2 3 4

Search: Search took 0.00 seconds.

  1. Replies
    4
    Views
    3,735

    I've been pretty close and all I can say is that...

    I've been pretty close and all I can say is that as your O2 level drops your brain starts to shut down, but it is pretty close to drowning. I've heard that a way to get an idea what it's like to have...
  2. Replies
    10
    Views
    2,094

    I've thought about the same thing. My problem is...

    I've thought about the same thing. My problem is when I start coughing sometimes I have to stop everything and get "restarted". I would have to be able to get back upright in a HURRY for me to be...
  3. Replies
    13
    Views
    2,111

    I work very hard to keep my immune system strong....

    I work very hard to keep my immune system strong. Other than that I just try to stay away from people who are obviously sick. I hate taking change from someone who has a runny nose and coughing...
  4. Thread: Breo

    by scarecrow
    Replies
    2
    Views
    1,355

    Breo

    Those of you who have a lot of lung damage might want to look into Breo. I have started going to a pulmunologist and he has put me on Breo. It has really helped, at least for now. I've only been...
  5. Stem Cell Therapy- Has anybody done it or know anyone who has?

    I have been doing research on this for several years but have not talked to anyone who has done it.

    It sounds like it might work but it might also be a scam.
  6. Replies
    2
    Views
    11,340

    I'm not a doctor but if they aren't telling you...

    I'm not a doctor but if they aren't telling you to have him do some kind of exercise while he is on oxygen I think I would be looking for a new doctor. Lungs are resilient but only up to a point. I...
  7. Replies
    15
    Views
    2,853

    Well said!! Sometimes we get so wrapped up in...

    Well said!! Sometimes we get so wrapped up in trying to be "normal" that we forget what is important, that we are able to be part of the world in which we live and to contribute something, whatever...
  8. Replies
    15
    Views
    2,853

    I have been dealing w/ it for about a year now....

    I have been dealing w/ it for about a year now. Seems like O2 levels dropping makes it much worse. I was just reading that D3 levels being low may be connected to incontinence. Could sure use any...
  9. I never took enzymes until much later but I used...

    I never took enzymes until much later but I used to hate having to sleep w/ the foot of my bed raised up and no pillows. I do remember some enzymes that were granules w/ a little spoon like a coke...
  10. I have had problems w/ appetite since about the...

    I have had problems w/ appetite since about the age of 30. I used to eat like food was going out of style but it seems like as my lung function went down so did my appetite. I tried the...
  11. Thread: Apology.

    by scarecrow
    Replies
    8
    Views
    1,836

    I think people are devi ded into fighters and...

    I think people are devi

    ded into fighters and quitters. Quitters w/ CF don't last very long. I don't know what happened but it's good that you're a fighter.
  12. Could somebody who has more time than me do some...

    Could somebody who has more time than me do some research into Lactoferrin and Xylitrol to see if anyone has used them to treat lung infections. If you read the link above, that is what that Dr. is...
  13. Thread: Juicing

    by scarecrow
    Replies
    4
    Views
    1,997

    Why would it be bad to do something that is good...

    Why would it be bad to do something that is good for you. Obviously it depends on what you are juicing and what else you are eating but I can't think of anything w/ CF that would make it dangerous to...
  14. Thread: I'm 34!

    by scarecrow
    Replies
    12
    Views
    1,461

    Congratulations!!!! Living beyond your "allotted...

    Congratulations!!!! Living beyond your "allotted time" does give you a strange sense of power doesn't it? I know I was supposed to die almost 50 years ago, but still hanging on; reminds me of the old...
  15. Replies
    12
    Views
    3,204

    Sounds like this is working out so well that I...

    Sounds like this is working out so well that I can't imagine why I have always refused to use Tobi.
  16. Replies
    18
    Views
    5,402

    I have been going down the progression of...

    I have been going down the progression of Glutathione myself. I took just the tablets for too long and then I found out that they don't get absorbed at all so now I'm taking the Pharmanac and a...
  17. Replies
    14
    Views
    2,269

    Sounds like the vest is working. Ask your Dr...

    Sounds like the vest is working. Ask your Dr about Mn. Protocol if you aren,'t already using it. That will help to clear your lungs much quicker.
  18. Thread: Vitamins

    by scarecrow
    Replies
    23
    Views
    7,601

    I have to agree w/ Bill. Tell him that there is...

    I have to agree w/ Bill. Tell him that there is always a reason when you end up on IV anti-boitics. If all we had to do was take vitamins every day most of us would still be in great health. If he...
  19. I'm 57 and work full time driving truck...

    I'm 57 and work full time driving truck cross-country. Lived a VERY active life up until the time I started driving truck about 20 years ago, then I let that go to drive day and night to make a...
  20. Replies
    3
    Views
    1,216

    As someone who is looking back on 30% let me say...

    As someone who is looking back on 30% let me say that every point you lose from now on is like a piece of your life that has been taken away.

    I don't say that to be negative, because I haven't...
  21. Thread: vest wanted

    by scarecrow
    Replies
    21
    Views
    5,756

    I know you don't want to wait too long but it...

    I know you don't want to wait too long but it seems like several times a year somebody has one that they either want to give away or sell very cheap.
  22. Replies
    7
    Views
    1,727

    If it comes down to a choice between gaining...

    If it comes down to a choice between gaining weight and physical activity I would choose physical activity every time. Weight will sort itself out if you are eating good quality food but every day...
  23. Replies
    11
    Views
    2,701

    Great to hear that you are OK, but would sure...

    Great to hear that you are OK, but would sure like to hear an explanation of what happened.
  24. To anybody reading this, I hope it doesn't come...

    To anybody reading this, I hope it doesn't come out the wrong way, but I absolutely refuse to be a COMPLIANT PATIENT. Nobody knows my body or cares what happens to me as much as I do. I do tend to...
  25. As I understand it the 2 things that cause...

    As I understand it the 2 things that cause problems for us and for most people really, just worse for us, is inflamation and build up of mucus from being too thick. It seems like the 2 things pretty...
Results 1 to 25 of 118
Page 1 of 5 1 2 3 4