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Type: Posts; User: Krysm3

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    Hi! So I got a vest last year at the urging of my...

    Hi! So I got a vest last year at the urging of my cf center doctor and didn’t find much relief from it. In fact, my husband performing manual cpt works better than the vest for me. I also got a...
  2. Thread: Disability

    by Krysm3
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    Disability

    Has anyone gone through compass attorneys to file for disability and been denied?
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    An unvaccinated child is not just walking around...

    An unvaccinated child is not just walking around carrying diseases. You should be more concerned with the recently vaccinated children around your son shedding the live virus. If your child is...
  4. For me, it wasnít a lack of interest in...

    For me, it wasnít a lack of interest in determining what cf mutations I am. I was diagnosed 4 years ago (and had zero symptoms until 5 yrs ago) and this is the first time Iíve heard that there were...
  5. I am pancreatic sufficient. Iím not sure what...

    I am pancreatic sufficient. Iím not sure what class 1/2 mutation is though

    Edited to add: ok, I am class II mutation and class IV
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    Thank you! They havenít denied it though, but...

    Thank you! They havenít denied it though, but since itís out of network, we have to meet the high deductible before there is any coverage, so I donít think we would have to appeal?
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    Insurance vest coverage

    Has anyone had luck with BCBS and a vest company being considered in network? I need a vest (Iíve never had one) and the 2 companies I was working with are considered out of network and the price OOP...
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    My sweat test was normal from the start...I was...

    My sweat test was normal from the start...I was diagnosed in my late 20ís and Iíve been on sodium chloride from the beginning. Not for the salt content, but to ďmoistenĒ the mucus.
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    You can get pseudomonas with no underlying...

    You can get pseudomonas with no underlying issues...from what I understand, it's not common, but it happens
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    I use a Pulmomate? Nebulizer...it's kinda big. I...

    I use a Pulmomate? Nebulizer...it's kinda big. I also use hypertonic saline and it takes about 10minutes to nebulize!
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    It's definitely in my lungs =). It's a deep hard...

    It's definitely in my lungs =). It's a deep hard cough. I broke a rib from coughing at the beginning of all of this =)
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    I was given an aerobika from my clinic a few...

    I was given an aerobika from my clinic a few months ago and I LOVE it! I attach it to my nebulizer cup when I'm nebulizing my saline. I haven't had a problem with hoses popping off.
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    Yes, just from my lungs and I can feel it too....

    Yes, just from my lungs and I can feel it too. Everything else has been clear and I've never had sinus issues either.
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    Oh wow! My sputum culture after my picc line last...

    Oh wow! My sputum culture after my picc line last summer came back negative, but I have been coughing non stop since I was infected with pseudomonas in December 2012. It's not nearly as bad as it...
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    Exercise has worked best for me. UNC put me on a...

    Exercise has worked best for me. UNC put me on a regimine of running daily, but the days I can't, I nebulize saline. mayo gave me an acapella, but it didn't do much. UNC gave me an Aerobika and I...
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    Recently diagnosed at 31

    Hi! My name is Krystin, I'm 31 with two kids and here's my story.
    December 2012, I was at the beach enjoying myself in a hot tub. Two days later, I started coughing. Productive coughing. I assumed...
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