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  1. Thanks everyone! This information is really...

    Thanks everyone! This information is really helpful, now I'll have some ideas for other options when we go in to meet with the ENT. I think if they suggest surgery anyways we will likely do it but...
  2. Thanks! He's not on HTS at the moment but they...

    Thanks! He's not on HTS at the moment but they are scheduling an HTS challenge for our next visit to see if it tolerates it. We started adding in nasal saline spray with every treatment but he kind...
  3. Sinus Surgery in 4 Year Old- Looking for Information

    Hi everyone! My son is 4 years old (DDF508) and it looks like sinus surgery might be happenning in the next few months. From Sept-December he was on sick plan almost non stop (3 weeks to get rid of...
  4. Thread: Want some TOBI?

    by CCyr
    Replies
    8
    Views
    1,490

    Awesome!! I'm so glad it will go to a family that...

    Awesome!! I'm so glad it will go to a family that really needs it! Please email me at [email protected] and I'll get it in the Mail ASAP for you guys :)
  5. Thread: Want some TOBI?

    by CCyr
    Replies
    8
    Views
    1,490

    Want some TOBI?

    Hi everyone! My son was taken off TOBI a few weeks ago (one year neg for pseudo! woo hoo!) and we have 1.5 months supply lying around. Could anyone use it? I'm sure there's a family out there that...
  6. Replies
    33
    Views
    6,480

    Oh boy. I stopped reading after you declared that...

    Oh boy. I stopped reading after you declared that neither one of us are scientists. I should have mentioned I am a scientist, I went to Brown, and I've worked in research and quality control for...
  7. Replies
    33
    Views
    6,480

    WOW CFjeff73 could not be more wrong. This kind...

    WOW CFjeff73 could not be more wrong. This kind of BS really makes my blood boil. I could go on and on explaining how dangerous it is for uninformed individuals to spout this type of completely...
  8. Hi everyone! Thanks so much for your words of...

    Hi everyone! Thanks so much for your words of wisdom!! It's really interesting to me that others have a similar experience- I always assumed IV antibiotics were for when he was very sick. My CF...
  9. Advice for Possible Hospital Admission for 3 year old

    Hi everyone, I was hoping you could give me some advice about hospitalizations.

    Some background: my son is 3 and has been on the "healthier" end of the CF spectrum so far (DDF508). He developed...
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