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Type: Posts; User: LunaFaith

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    on my consent paperwork has this on it, hopefully...

    on my consent paperwork has this on it, hopefully some part of this is helpful, I also have yet to be contacted so I may not have qualified, they ran some blood work to see if what they need to be...
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    we discussed it at length before I was ever given...

    we discussed it at length before I was ever given any paperwork to sign, I am just waiting to see if I get approved, my lung function isn't getting any better and only really gets worse when I'm...
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    If I read the paperwork I had to sign correctly...

    If I read the paperwork I had to sign correctly this is supposed to be a trial, from what I recall they (the company) are trying to get the FDA to approve its use
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    taking Ivacaftor?

    I just saw my healthcare team and was told that I qualify for an experimental treatment protocol, apparently Ivacaftor now covers 23 mutations and I have one of those mutations. I am still waiting...
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