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  1. Replies
    5
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    2,890

    I celebrated 9 years this past June. Am doing...

    I celebrated 9 years this past June. Am doing well!
  2. Replies
    5
    Views
    2,890

    coming up on 5 years

    Haven't posted in a while, but for those of you still waiting, keep hoping. I will be 5 years post this June and things have gone really well. I've been working fulltime, traveling and exploring new...
  3. Thread: mycelex troche

    by jfarel
    Replies
    8
    Views
    1,816

    mycelex troche

    I think we take it forever. But I am not positive. I have been on for 14 months. Every day post transplant.
  4. Thread: mycelex troche

    by jfarel
    Replies
    8
    Views
    1,816

    mycelex troche

    I think we take it forever. But I am not positive. I have been on for 14 months. Every day post transplant.
  5. Thread: mycelex troche

    by jfarel
    Replies
    8
    Views
    1,816

    mycelex troche

    I think we take it forever. But I am not positive. I have been on for 14 months. Every day post transplant.
  6. Replies
    11
    Views
    3,200

    Scuba Diving and Transplant

    I have heard stories of people doing it, but off hand I do not know anyone.
  7. Replies
    11
    Views
    3,200

    Scuba Diving and Transplant

    I have heard stories of people doing it, but off hand I do not know anyone.
  8. Replies
    11
    Views
    3,200

    Scuba Diving and Transplant

    I have heard stories of people doing it, but off hand I do not know anyone.
  9. Replies
    50
    Views
    4,730

    What do you do for hemoptysis?

    I agree, adding ice or frozen veggies does seem to help. Before my transplant I would get bad bleeds from time to time, but taking ADEKS vitamins (Since they have a lot of K, for clotting) regularly,...
  10. Replies
    50
    Views
    4,730

    What do you do for hemoptysis?

    I agree, adding ice or frozen veggies does seem to help. Before my transplant I would get bad bleeds from time to time, but taking ADEKS vitamins (Since they have a lot of K, for clotting) regularly,...
  11. Replies
    50
    Views
    4,730

    What do you do for hemoptysis?

    I agree, adding ice or frozen veggies does seem to help. Before my transplant I would get bad bleeds from time to time, but taking ADEKS vitamins (Since they have a lot of K, for clotting) regularly,...
  12. Replies
    19
    Views
    3,544

    PFTs after transplant

    @ mCHRISTofSUBURB..
    <br />
    <br />Mine Fev1 was similar to yours. I didn't even get mine measured until 3 or 4 weeks post tx. I had some minor issues and they didn't want me blowing hard for a few...
  13. Replies
    19
    Views
    3,544

    PFTs after transplant

    @ mCHRISTofSUBURB..

    Mine Fev1 was similar to yours. I didn't even get mine measured until 3 or 4 weeks post tx. I had some minor issues and they didn't want me blowing hard for a few weeks. My...
  14. Replies
    19
    Views
    3,544

    PFTs after transplant

    @ mCHRISTofSUBURB..

    Mine Fev1 was similar to yours. I didn't even get mine measured until 3 or 4 weeks post tx. I had some minor issues and they didn't want me blowing hard for a few weeks. My...
  15. Replies
    23
    Views
    3,854

    Worried about resistance

    I agree with Anna, with CF, resistance is pretty par for the course. B. Cepacia, is really the only one that some transplant programs will refuse.
  16. Replies
    23
    Views
    3,854

    Worried about resistance

    I agree with Anna, with CF, resistance is pretty par for the course. B. Cepacia, is really the only one that some transplant programs will refuse.
  17. Replies
    23
    Views
    3,854

    Worried about resistance

    I agree with Anna, with CF, resistance is pretty par for the course. B. Cepacia, is really the only one that some transplant programs will refuse.
  18. Thread: "End Stage" CF

    by jfarel
    Replies
    29
    Views
    15,150

    "End Stage" CF

    Generally speaking you are considered for transplant below 30 percent fev1. Other factors come into play as well, but when you hit 30 percent you don't have much margin for error if you get sick....
  19. Thread: "End Stage" CF

    by jfarel
    Replies
    29
    Views
    15,150

    "End Stage" CF

    Generally speaking you are considered for transplant below 30 percent fev1. Other factors come into play as well, but when you hit 30 percent you don't have much margin for error if you get sick....
  20. Thread: "End Stage" CF

    by jfarel
    Replies
    29
    Views
    15,150

    "End Stage" CF

    Generally speaking you are considered for transplant below 30 percent fev1. Other factors come into play as well, but when you hit 30 percent you don't have much margin for error if you get sick....
  21. Replies
    14
    Views
    2,493

    My second chance :)

    Congrats Shaun. Had my Transplant last June. 120 percent is awesome. I average around 85-90 fev1 right now and I am about 7 months out.
  22. Replies
    14
    Views
    2,493

    My second chance :)

    Congrats Shaun. Had my Transplant last June. 120 percent is awesome. I average around 85-90 fev1 right now and I am about 7 months out.
  23. Replies
    14
    Views
    2,493

    My second chance :)

    Congrats Shaun. Had my Transplant last June. 120 percent is awesome. I average around 85-90 fev1 right now and I am about 7 months out.
  24. Thread: CAUTION

    by jfarel
    Replies
    32
    Views
    4,964

    CAUTION

    I'm not at Columbia, but at my center I notice a pretty big difference between the handheld spirometers they use in the clinic and the larger machine, which they use on bronch days. It's very...
  25. Thread: CAUTION

    by jfarel
    Replies
    32
    Views
    4,964

    CAUTION

    I'm not at Columbia, but at my center I notice a pretty big difference between the handheld spirometers they use in the clinic and the larger machine, which they use on bronch days. It's very...
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