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  1. Thread: Leaving

    by samb
    Replies
    122
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    9,097

    Leaving

    I would also be interested in the new forum <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    2,120

    Daughter without CF

    Thank you... I never knew you had to train yourself to sweat. I will be trying that before her next test. Iam going to call the Toronto Hospital just have been so busy. I have hopes that when I...
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    Favorite fiction books?

    I just finished reading Divergent!! Amazing! As well as The Hunger Games series. I am right now reading City of Bones which is book 1 of a trilogy.
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    Daughter without CF

    Im going to try! It can't hurt and if we get a result than even better!!!
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    2,120

    Daughter without CF

    I will ask about an appeal. It does seem like we are really gettin no where with the sweat test and I am getting frustrated. I will try feeding her salt before her sweat August 1st. Not too sure if...
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    Daughter without CF

    The doctor says that here it is an issue of having to get a positive sweat test done in order to qualify so to speak for a genetic test. I think you would want to know sooner than later especially...
  7. Replies
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    Daughter without CF

    It just really scares me because CF has never been ruled out. In alberta her younger sister was tested at birth but when she was born it was in BC and a year before they started testing at birth. I...
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    Daughter without CF

    I am going to give her some of her sisters enzymes since they are all free anyways it shouldn't hurt to give her a few. I also take them since I have had my gall bladder removed if I am eating...
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    Daughter without CF

    we are in Canada and he says it is different here. I'e been trying to figure out since Nov 2010 <img src="i/expressions/face-icon-small-sad.gif" border="0">
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    Daughter without CF

    My 5 year old daughter has never been diagnosed but has never had it officially ruled out. She has had over 10 sweat test but they are all incinclusive because they can not collect enough sweat. I...
  11. Daughters Throat Swab POSITIVE for first time ever :(

    Thank you <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. Daughters Throat Swab POSITIVE for first time ever :(

    Thank you <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. Daughters Throat Swab POSITIVE for first time ever :(

    Any one know anything about this? CF clinic said they are just going to monitor it for now.
  14. Daughters Throat Swab POSITIVE for first time ever :(

    Any one know anything about this? CF clinic said they are just going to monitor it for now.
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    Any Canadians on here?

    I am from Edmonton, This drug doesn't target my daughters mutation but I would be more than willing to sign the petition!
  16. Replies
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    608

    Any Canadians on here?

    I am from Edmonton, This drug doesn't target my daughters mutation but I would be more than willing to sign the petition!
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    2,349

    Any Canadians on here?

    I am in Edmonton, Kalydeco doesnt help my daughter but I would be more than willing to sign a petition to get it here faster!
  18. Replies
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    2,349

    Any Canadians on here?

    I am in Edmonton, Kalydeco doesnt help my daughter but I would be more than willing to sign a petition to get it here faster!
  19. looking for parents with CF children to talk with

    I have a 18 month old daughter with cf. You can message me or add me to fb if you would like.
  20. looking for parents with CF children to talk with

    I have a 18 month old daughter with cf. You can message me or add me to fb if you would like.
  21. Thread: 3905inst

    by samb
    Replies
    8
    Views
    3,584

    3905inst

    Thank you... I am going to send this info to the cf doc we deal with and ask him what it means lol. I dont undertsnad all the medical terms... lol
  22. Thread: 3905inst

    by samb
    Replies
    8
    Views
    3,584

    3905inst

    Thank you... I am going to send this info to the cf doc we deal with and ask him what it means lol. I dont undertsnad all the medical terms... lol
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    How many of you underwent an abortion

    I would be less worried about being pergnant and more worried about having an std if you arent using any form of protection :s I would contact your doctor also
  24. Thread: 3905inst

    by samb
    Replies
    8
    Views
    3,584

    3905inst

    I am guessing no one has any info on this gene... ??
  25. Thread: 3905inst

    by samb
    Replies
    8
    Views
    3,584

    3905inst

    I am guessing no one has any info on this gene... ??
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