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Type: Posts; User: Hardak

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  1. Thread: Superfoods

    by Hardak
    Replies
    7
    Views
    3,640

    Local raw honey will help with seasonal/plant...

    Local raw honey will help with seasonal/plant allergies, a spoon full or so a day should keep you from having nearly as badly of a reaction.
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    5
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    2,542

    I've found Zantek to be 0% effective vs my heart...

    I've found Zantek to be 0% effective vs my heart burn. Anytime I'm not on a PPI that's delivered by gelcap, or something IV. I don't see to absorb it .
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    12
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    3,490

    I've been battling this for about 12 months now....

    I've been battling this for about 12 months now. I took me nearly 9 months to find a med regimeent I can tollorate. I'm on Clofazimine and Linezolid now to deal with it (two orals) Most all the IV's...
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    4,555

    Birds.. stay away from birds... there poop is a...

    Birds.. stay away from birds... there poop is a killer to anyone with a compromised immune system.
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    4
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    2,150

    I meet a guy earlier this month who had a...

    I meet a guy earlier this month who had a transplant and held on to his SSI. He did warn me that 1 year after Tx to expect to have SSI declare you no longer disabled and expect to have to go to court...
  6. Checking in with the CF doc is a good idea on...

    Checking in with the CF doc is a good idea on this one. In my case I've got a chunk of cartilage that I mangled years ago and its never healed right. Good hard cough and I can see the ribs separate....
  7. Thread: Good Probiotic?

    by Hardak
    Replies
    4
    Views
    1,535

    I go yogurt nuts when on antibiotics. I don't...

    I go yogurt nuts when on antibiotics. I don't tend to get thrush but I do end up with a yeast infection (I've got a foreskin). Gut wise I end up a bit off but nothing that sends me back to the Dr...
  8. Replies
    18
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    3,233

    My big worry about two adult CFer's spending much...

    My big worry about two adult CFer's spending much time together at all let alone dating/living together is this. You two are going to go in opposite directions in your day to day life. Both of you...
  9. Replies
    6
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    3,580

    Have you considered weight bearing hikes/walks?...

    Have you considered weight bearing hikes/walks? It should work most your body fairly evenly and do a fair bit for the legs. You can also take a low weight (under 10) and hold it out at arms length...
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    2,364

    I've had issues with this some my self. In my...

    I've had issues with this some my self. In my 20's I would see a chiropractor on a regular basis. tomorrow I'm going to as a physical therapist, to see what they have to say. I have a roller as well...
  11. Replies
    6
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    4,232

    Marijuana is still trying to find its acceptance...

    Marijuana is still trying to find its acceptance in society. Even in a state where its legal for recreational use, you see back lash or dissension. If your not smoking it, (not vaping it would be...
  12. As PFT's and FEV1 fall along with more scar...

    As PFT's and FEV1 fall along with more scar tissue build up, one is more and more likely to experience the constant and persistent phlegm cough that many CF patients have. My suggestion to you is...
  13. Replies
    6
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    867

    Well as I understand it long as you have the CF...

    Well as I understand it long as you have the CF slime going on, there will be issues with the sinuses. I had mine cleaned out earlier this year simply because they where that packed. Apparently had...
  14. I tend to be an open book about my CF. It mostly...

    I tend to be an open book about my CF. It mostly comes down to personal choice about how open to be. If I start to hear the pity party coming out I look at them and say its had its trade offs and I...
  15. I know of a surprisingly high number of CFers...

    I know of a surprisingly high number of CFers that are getting told "Its Fibromyalgia" as of late, I know of a few GP's that think its the current go to for undiagnosed chronic pain. I would suggest...
  16. Talking about CF or any chronic illness is highly...

    Talking about CF or any chronic illness is highly a matter of how you approach it, being "I deal with this..." is one thing. It is another when it comes into "poor me" subject matter, and the line...
  17. Thread: lung function

    by Hardak
    Replies
    65
    Views
    12,654

    I'm 32 with FEV1's around 4o%

    I'm 32 with FEV1's around 4o%
  18. Replies
    26
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    7,374

    I've been nebbing saline for a few years off and...

    I've been nebbing saline for a few years off and on now, won't cause any harm and if the added moisture seems to help go with it!
  19. Replies
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    536

    Keep in mind the port is sutured down to the...

    Keep in mind the port is sutured down to the muscle under it, check to see if the port is hyper mobile and make 100% sure its not acting like it wants to spin on the end of the line (don't go giving...
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    3
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    840

    You may want to look into trying something other...

    You may want to look into trying something other then the meropenem next time. I'm flat out allergic to it and my sister's pain levels hit the roof when she is on it, so I've heard of pain issues...
  21. Thread: Yoga?

    by Hardak
    Replies
    48
    Views
    12,859

    Go for it, its done wonders for my upper back,...

    Go for it, its done wonders for my upper back, granted its still a mess, but a much better one then it was.
  22. Replies
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    5,413

    I've been stock piling meds for years now figure...

    I've been stock piling meds for years now figure at this point in time other then my puffers(just can't get extra on those) I've got enough to last me 3 months or so, granted the nebulized(sp?) stuff...
  23. Replies
    51
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    9,158

    I go to the UW clinic so I've had the study pitch...

    I go to the UW clinic so I've had the study pitch run by me. They where delivering the gallium over a 5 day IV drip.
  24. Replies
    11
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    2,406

    Check with the legal aid that CFqueen mentioned...

    Check with the legal aid that CFqueen mentioned above, you might also want to consider doing the marriage thing but falling just short of signing the papers for the state. This may or may not be...
  25. Replies
    10
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    2,210

    I know for me other then home/hospitals I with...

    I know for me other then home/hospitals I with out thinking about it suppress my cough once I step out the door. for me its a comfort thing with those I'm around.
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