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Type: Posts; User: Lance2020x

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    I'm a video producer / motion graphics animator....

    I'm a video producer / motion graphics animator. As I get older I'm realizing travel and "working in the field" are taking more out of me, so a few years ago I began heavily investing in learning...
  2. I'm a Nashville citizen, also DDF508, 33 years...

    I'm a Nashville citizen, also DDF508, 33 years old.
    I grew up in East TN driving the 2 hours to Vanderbilt Pediatric from the age of 5, then transitioned to the adult CF clinic. I moved to...
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    Question here from a ΔΔF508.... I've read a ton...

    Question here from a ΔΔF508....
    I've read a ton of articles on Orkambi and how excited everybody is about it, how it "Helps correct the gene" etc. but I still can't figure out exactly what it will...
  4. Thanks Jaimers! I called the local clinic but...

    Thanks Jaimers! I called the local clinic but still haven't been able to reach anyone.
    I did speak to the local CF chapter and they had some good advice.

    The reason I posted here is that I want...
  5. How's the healthcare and coverage in Colorado?

    Hello everybody!

    I've made the decision that (pending job opportunities) I'm shooting to move to Colorado around June of this year.

    I want to go ahead and get started on the process of...
  6. Share your tips to improve day-to-day life!

    Hey everybody!

    I'd like to start a running list of handy tips for a better life and health management!

    I was thinking of a few things I've discovered on my own that have helped me with my CF,...
  7. Making yourself available for international research?

    My girlfriend and I are trying to take a trip to Thailand next Spring, and I've heard that CF is incredibly rare in Asia and sometimes university hospitals pay for some travel expenses in exchange...
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    My pharmacy once sent me some HIV medication...

    My pharmacy once sent me some HIV medication instead of my Azithromycin... It was a simple mix-up at the pharmacy but it was strange
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    Thanks for the GREAT responses everyone. I've...

    Thanks for the GREAT responses everyone. I've been out of town on a business trip and will be back later this week and able to give more focus to these responses, but thanks again for all the info!
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    That's exactly how I feel! I suppose I'll speak...

    That's exactly how I feel!
    I suppose I'll speak with my doctors and see if they know anyone in need.
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    An Overstock of Extra Enzymes

    Hey everybody!

    I don't know if this is even doable or kosher (maybe there are legalities?) but I've been organizing all my meds and I have a MASSIVE back stock of Creon 24000 and Pertzy 16000....
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    My doctors put me on Cayston (three times a day...

    My doctors put me on Cayston (three times a day one month on one month off) and the first few days of starting the monthly treatment I would get INCREDIBLY sick. Same symptoms as the flu for about 2...
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    Thanks Bookworm, I really appreciate it! I did...

    Thanks Bookworm, I really appreciate it!
    I did a bunch of research and decided to order one. This is my first purifier ever, so I'm really excited.
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    What a beautiful project, this is the first I've...

    What a beautiful project, this is the first I've heard about it! If you decide to do portraits on the west coast let me know :-D
    Also my brother lives in Tennessee and has CF as well if you want to...
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    Dealing with Smoke and Fires

    I live in Northern California where fires are not uncommon.
    As I'm sure you've heard we are having some pretty severe fires in the area at the moment and one of the side effects that nobody talks...
  16. Thank you all so much for your encouragements,...

    Thank you all so much for your encouragements, kind words and identifying affirmation.

    As a quick update, my incredible lady and I had some very difficult discussions about the realities of my...
  17. Cystic Fibrosis, Relationships and Wanting Children

    I'm curious about those with CF and their desire for children.
    I'm dating the most amazing woman I've ever met, and she has been a better support for me and my health than I honestly knew how to...
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    Great idea Beau. This is what I do as my...

    Great idea Beau.
    This is what I do as my profession. If you need help with the post production (or just want me to take that background hiss out of your promo video) let me know how I can help.
  19. So I just got a voicemail from my doctor (somehow...

    So I just got a voicemail from my doctor (somehow I missed the call :-/) and they suggested that it is probably a mucus plug... but I feel that... while it's possible and I'll act accordingly (doing...
  20. Woke up with constant chest pain. Any thoughts on what this could be?

    I've never had anything like this before, and it's very strange... I've got a call into my doctor and hope to hear back tomorrow, but in the meantime I figured I'd ask this....

    I woke up about 4am...
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    I have the same issue.... with all the time I...

    I have the same issue.... with all the time I spend on treatments adding ANOTHER thing to the routine just... sounds overwhelming. I've started the Couch to 5k running plan about 6 times.
    However,...
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    Well, Enzo, any update here?

    Well, Enzo, any update here?
  23. Thread: Running

    by Lance2020x
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    I use the 'Couch to 5k' program. It is a three...

    I use the 'Couch to 5k' program. It is a three times a week program (I do Monday, Wednesday, Friday) that SLOWLY works to build you up to being comfortable and healthy running.
    It takes 9 weeks and...
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    Okay... I'm not trying to be a stickler, you just...

    Okay... I'm not trying to be a stickler, you just have to understand I LOVE baking, am known in friend circles for my breads, and though I eat bread less than you'd think (considering how much I bake...
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    I felt exactly like you my whole life. I honestly...

    I felt exactly like you my whole life. I honestly just thought it was normal. I was diagnosed ADHD, put on Adderal etc. but would drive home from work, park in front of my apartment and fall asleep...
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