Search:

Type: Posts; User: samaruba

Page 1 of 2 1 2

Search: Search took 0.00 seconds.

  1. Hi there CyrilCrodius. That's what I thought too....

    Hi there CyrilCrodius. That's what I thought too. However, we've upped the dose of Curcumin and Genistein and his sweat test has gone down from 118 to 59mmol/L in February this year (2014). At the...
  2. I'm so glad you've found it! I know there must be...

    I'm so glad you've found it! I know there must be so many people around that could benefit from this, but I just don't know how to reach them. There are more an more people trying this combo and so...
  3. News for gating, residual function and conductance mutations!

    Hello all,
    With this post I'm hoping to reach patients with gating, residual function and conductance mutations. We have found a combination of two food supplements that have a synergistic effect on...
  4. I've read a newspaper article, where the guy with...

    I've read a newspaper article, where the guy with CF taking Kalydeco says that at first he didn't notice a big difference but when he started taking it with very fatty foods, like lots of bacon, he...
  5. Is there an easier way to give my toddler the salt he needs?

    I usually put in in the straw of a juice box (I'm Dutch. Not sure how you call those boxed juices for kids). I use a straw to take it out of the salt shaker, holding it horizontally and than...
  6. Replies
    29
    Views
    4,080

    vx770 for some other mutations!

    mama Scarlett,
    I know how you feel.... shocked and very confused. I just heard it 5 days ago..... My head is still spinning....
    I too was happy for all with G551D and hoping they'd be close to...
  7. Replies
    29
    Views
    4,080

    vx770 for some other mutations!

    mama Scarlett,
    I know how you feel.... shocked and very confused. I just heard it 5 days ago..... My head is still spinning....
    I too was happy for all with G551D and hoping they'd be close to...
  8. Replies
    29
    Views
    4,080

    vx770 for some other mutations!

    Okay, the link is strange... I didn't know...sorry...!
    Otherwise just Google: Van Goor S1251N VX770 For me it is the second link that comes up on Google.
    It's a PDF file.
    I believe it's a...
  9. Replies
    29
    Views
    4,080

    vx770 for some other mutations!

    Okay, the link is strange... I didn't know...sorry...!
    Otherwise just Google: Van Goor S1251N VX770 For me it is the second link that comes up on Google.
    It's a PDF file.
    I believe it's a...
  10. Replies
    29
    Views
    4,080

    vx770 for some other mutations!

    Two days ago I received the message of my life! It seems that VX770 will probably work on some other mutations than G551D as well. Mostly gating mutations. On of which my son has...... <img...
  11. Replies
    29
    Views
    4,080

    vx770 for some other mutations!

    Two days ago I received the message of my life! It seems that VX770 will probably work on some other mutations than G551D as well. Mostly gating mutations. On of which my son has...... <img...
  12. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    2,286

    sharktank

    Hi,
    <br />My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting...
  13. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    2,286

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  14. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    2,286

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  15. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    2,286

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  16. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    2,286

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  17. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,575

    sharktank

    Hi,
    <br />My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting...
  18. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,575

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  19. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,575

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  20. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,575

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  21. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,575

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  22. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,083

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  23. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,083

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  24. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,083

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
  25. Thread: sharktank

    by samaruba
    Replies
    9
    Views
    1,083

    sharktank

    Hi,
    My name is Sam, I have a 3 yr old son with CF. When I learned of my son's diagnosis, I became a member of a CF newsgroup called Sharktank, that was started over 14 years ago. I am posting this...
Results 1 to 25 of 36
Page 1 of 2 1 2