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  1. Replies
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    Thanks for sharing! I did make a blog on the news...

    Thanks for sharing! I did make a blog on the news when it hit the wires. http://forum.cysticfibrosis.com/entries/393-Median-age-of-survival-for-CFers-surpasses-50-years-of-age!
    Good to see followup...
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    I have featured her rememberance on the homepage:...

    I have featured her rememberance on the homepage: http://www.cysticfibrosis.com/we-remember-jazzysmom-melissa-5-years-melissa-is-our-angel/
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    FYI...I shared this on the CF facebook page and...

    FYI...I shared this on the CF facebook page and there is also some advice and a discussion taking place there.
    See: https://www.facebook.com/knowcf/posts/10152964474168777
  4. Thread: Powerlifting

    by enniob
    Replies
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    Hi bookworm, I did get your form submission...

    Hi bookworm, I did get your form submission feedback in my inbox and will take a look at this thumbs issue. Thank you for pointing it out to me!
    - Chris
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    Hi Littlemyth, what a nice video you have made...

    Hi Littlemyth, what a nice video you have made for little Jude! I really enjoyed it and shared it on the CysticFibrosis.com Twitter account https://twitter.com/KnowCF ... every bit counts so keep up...
  6. Thread: Fundraiser

    by enniob
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    20,392

    Hi Roxanne, Thank you for starting off this new...

    Hi Roxanne, Thank you for starting off this new forum with this excellent initiative! I have liked your facebook page both personally ( https://www.facebook.com/cysticfibrosisdotcom ) and with the...
  7. Thread: From Italy

    by enniob
    Replies
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    1,537

    Hi Sara, welcome to the forums! This is a great...

    Hi Sara, welcome to the forums! This is a great place to connect and learn from others that are going through what you are going through. I am sure there are many here that can help you. Califormia...
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    Maybe we'll have CF Bots in the future...they'll...

    Maybe we'll have CF Bots in the future...they'll take care of all your pills, presenting them at the right time in the right amounts. They'll take care of all the devices, clean them order new parts...
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    I can't replicate this issue. The site loads fine...

    I can't replicate this issue. The site loads fine for me. Can anyone else see this? What browser are you using DmT124?
  10. Hi TreasureGoddess - Thank you so much for...

    Hi TreasureGoddess - Thank you so much for sharing! This was indeed amazing. I have shared it on our facebook: https://www.facebook.com/knowcf/posts/10152842078838777
    Morgan Grindstaff also has a...
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    There are a ton of fiber supplements selling...

    There are a ton of fiber supplements selling online. Most are good. Fiber is Fiber...can't go wrong. Just look at what else they put in there. Shop at a bodybuilding store...they are usually pretty...
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    As I mentioned above, I do not think it can hurt...

    As I mentioned above, I do not think it can hurt to try and experiment with varying amounts of fiber in your meals. More fibre can have a positive effect on food absorption and enzyme efficiency. I...
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    You should try to play around with fiber content...

    You should try to play around with fiber content of each meal. High fiber allows longer digestion (food passes through you slower) and low fiber allows for faster digestion (food passes through you...
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    Hi All, found this press release that has some...

    Hi All, found this press release that has some good information: http://www.theguardian.com/world/2014/sep/08/children-respiratory-virus-illinois-missouri

    Basically:
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    What a great song!! I am sharing it on our...

    What a great song!! I am sharing it on our facebook and twitter :) ...
  16. Thanks for sharing Emily!

    Thanks for sharing Emily!
  17. Thread: Breo

    by enniob
    Replies
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    5,578

    This caught my interest. Here is the manual on...

    This caught my interest. Here is the manual on BREO ELLIPTA for those interested: https://www.gsksource.com/gskprm/htdocs/documents/BREO-ELLIPTA-PI-MG.PDF
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    It's not often you see LittleLab4CF make a...

    It's not often you see LittleLab4CF make a mistake...one for my bookmarks ;)
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    I must say I am touched by the level of "quality...

    I must say I am touched by the level of "quality information" and open sharing on this community thread. Its such a beautiful demonstration of the power of this community to connect and educate each...
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    Have you looked for some local support groups and...

    Have you looked for some local support groups and parents in the same situation you are with teenagers with CF? It might help to talk to others that are going through similar life experiences. Maybe...
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    Wldhrtd1, I just made some updates to the...

    Wldhrtd1, I just made some updates to the website. So you should be ok. Also all posts that were pending approval has been approved, so all messages should be available.
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    We do not monitor posts. It was a problem with...

    We do not monitor posts. It was a problem with the spam filter, and I'm working on getting this fixed.
  23. Thread: Spam

    by enniob
    Replies
    1
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    799

    Send me the link of the spam so I can clean it......

    Send me the link of the spam so I can clean it... I did some updates yesterday and today, so the should go away.
  24. Kaethe108, thank you for the information. I will...

    Kaethe108, thank you for the information. I will take a look here and will let you know.

    -Ennio
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    Emer76, I'm going to contact the manufacture and...

    Emer76, I'm going to contact the manufacture and see if we can get the filter and the compressor. We do have the DeVilbiss compressor on our store...
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